Hidden4 hours ago
Drawing attached is by my hubby. There's a 🎃 theme song to this post from me. I managed my ten minute phone consultation with my new and v...
4 Replies2 Likes
Opinions needed on business idea - am I nuts?
Cookiecutter765 hours ago
Hi! I've had lupus since I was a child and have had to take this year off work (I'm a primary school teacher) due to bad reactions from medi...
Be the first to reply
Having to work hours back for hospital appointments
Hidden19 hours ago
Not sure if anybody can give some advise but I have lupus and it has effected nearly everywhere kidneys lungs joints the lot I have been on ...
Dates and telling them about Lupus?
Hidden20 hours ago
I'd prefer to be honest straight away. How should I tell him I have Lupus? I don't really want to pile it on this guy and make him uncomfort...
Scared of a Lupus Diagnosis
Musspussa day ago
I currently have autoimmune hypothyroidism, autoimmune urticaria, pcos and my blood tests have regularly come back as being 'within the aver...
5 Replies1 Like
👏👏👍Neat Explanations: secondary VS primary sjogrens etc
Hiddena day ago
😆: happy me today! Reading the masterful explanation on the USA's Sjogrens Syndrome Foundation website has helped me "take a more informe...
10 Replies11 Likes
Got my blood work back online.......HELP!!!!
LucyK5821a day ago
Ok, so I am assuming I will not be diagnosed with lupus. My ana came back negative even though it was positive last time. My sed rate (esr) ...
MRI examination of the brain results - can anyone shed any light? Bilateral tiny frontal white matter high signal could be due to migraine.
Wendy39a day ago
I got a copy of the MRI results of my brain on Friday and it says the following: (I've got type it, my phone camera is playing up).
13 Replies1 Like
Prednisone makes me feel amazing!!!!
LucyK58212 days ago
Ok so my rheumatologist put me on 5mg twice a day of prednisone until I go back next week to see her for my blood work results. I know that ...
12 Replies7 Likes
lupus and stomach
Hidden2 days ago
Just wondering if anyone has ever had their lupus attack their stomach? As I Believe that mine might be doing that.
So last Tuesday evening ...
Disappointing rheumy appt
Westgirl2 days ago
Hi all, finally seen in rheumatology clinic yesterday but no further forward..
The consultant there is well known for expertise in lupus so I...
16 Replies1 Like
Ears And Glands
Made an appointment to see my GP this afternoon. Over the weekend I started developing really painful ears that also felt stuffed up. I also...
Anyone had a Meniscus Tear?
Nat19692 days ago
I've been having knee and calf pain for about 6 months now and have just had an MRI and been told I have a Meniscus Tear in my knee. Seems ...
Occupational Health Professional...
steve612 days ago
Hi All, anyone here who as visited a Occupational Health Professional due to absences from work?
I'm due to visit one on Friday afternoon sur...
A 'mystery' illness explained.
WH-29112 days ago
I believe that the latest video provides a very understandable description of a virtually 'unknown' illness to the majority of the populatio...
1 Reply4 Likes
Too much prednisilone or too little? Take a guess!
whisperit2 days ago
So stopping my mycophenolate hasn't stopped the daily round of hot flushes, shaking, and nausea. My rheumy has suggested cutting down my pre...
Sjogren's Sensory Ganglionopathy and Ataxia
Hidden2 days agoPOPULAR
Hi All. This photo extract was taken by me from the summer edition of the BSSA magazine - devoted to Small Fiber Neuropathy and Ganglionopat...
35 Replies2 Likes
Jess_doyle3 days agoPOPULAR
Hey, I asked my doctors before about should I change my diet cutting out foods or different types, and they said it would make no difference...
26 Replies3 Likes
discs in my neck
heartgirlx43 days ago
hi i was about to go for surgery on my discs in my neck, but after having a pre op and seeing the anethetist they have told me that i cant ...
4 Replies1 Like
misty143 days ago
I have suddenly got a swelling on my right eyelid on a blood vessel. I can have bruises there but never had this and wondered ...
18 Replies1 Like
Just feeling worried
Hidden3 days ago
Just wanting to worry silently somewhere.sure you understand as I don't want my family to worry anymore than they do.
My consultants secreta...
LouLamb3 days ago
Saw nurse at hospital on Thursday and she told me to get blood test before I saw doctor today . I went to see doctor today a different one a...
3 Replies3 Likes
Sandyb13 days ago
Hi about 3 weeks ago I was unwell so had a day of of work. I ate a peanut snd my lip swelled up. Went docs snd he said it was because I was ...
I have very itchy scalp and severe thinning hair....itchy rashes on other areas to..... it this itchy scalp with hair loss is driving me mad...
9 Replies1 Like
Wheat reactive, but neg for coeliac?
Hidden3 days agoPOPULAR
This just pinged to my inbox from Lupus News Today...I'm especially interested cause I'm one of those who always tests/biopsies neg for coel...
46 Replies5 Likes
Feeling unwell all of the time
Rubizzalf3 days ago
Hi All, I am wondering if anyone can help. I am a type 1 diabetic on insulin which consists of 3 x novorapid injections a day and 1 levemir.
Lupus: An Invisible Monster - New LUPUS UK Video
Paul_Howard3 days ago
Today as part of Lupus Awareness Month in the UK we have launched a new video to help raise awareness of the effects lupus can ...
11 Replies23 Likes
Surfergirl19623 days ago
I am currently being tested. It will explain a lot if my results come negative. I was tested 28 years ago and my ANA was negative. However s...
lol764 days ago
hi am lol was diagnosed with lupus 16 months ago I have nephritis stage three and am really scared help haha I have a brill nephrology team ...
Will Plaquenil / hydrochloroquine interfere with l biopsy result?
Hidden4 days ago
Been diagnosed with sjorgens syndrome. I've been waiting for a lip biopsy referral for months, it's been now speeded up by GP and du...
10 Replies3 Likes
Start a Community