The words that mold us
katidid14 hours ago
I was checking a new message from my doctor who is ordering a cardio study. I scrolled through mostly to double check the day, time, locatio...
3 Replies1 Like
LouLamba day ago
I’ve got a red mark under my left eye which appeared roughly Thursday I think . It’s getting redder and sore.
Today at work just before half...
New to this site
Tia666a day ago
This is my first time on a forum. I have been diagnosed with lupus and rheumatoid arhritus I also have a mechanical mitral valve and ...
Jill412 days ago
Has any one with lupus been awarded lpip I have lupus fibromyalgia arthritis in feet vit d defiency calcium defiency, b12 defiency plus a fe...
Chaz12262 days ago
Here are the tests listed x
Pursuing diagnosis 2.0
Bubble892 days ago
I posted on this forum several years ago as I had suspicions about lupus even then.
I’ve struggled with my health for 7-8 years now, and thi...
10 Replies1 Like
Will I always look like this ?
Chaz12262 days agoPOPULAR
I’m struggling with symptoms today, anyone else look like me, what do you say when people ask what’s wrong with your face? How can I make it...
Methatrexate and sickness
Ianrussell693 days ago
Hi I’ve not posted for a long time I’ve had a very good run the Meds seem to be working very well after 3 crappy yrs anyhow my daughter is n...
Something I have been watching online.
overnighthearingloss3 days ago
There's an online series running at the moment. It's currently about halfway through but they usually do a replay weekend at the end where y...
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Positive Ana then negative
Kwilliams1230843 days ago
Hi everyone. 4 weeks ago my pcp ordered blood work because he suspected I had a thyroid issue. He also did an Ana test. The Ana test came ba...
And this is me on a good day....
whisperit3 days agoPOPULAR
My extreme chronic fatigue has taken an extra twist as I add hydrocortisone into my steroid mix, and I'd be delighted if anyone has thoughts...
39 Replies6 Likes
Anybody Else Experienced This?
Mrsdoozer3 days ago
Hope everyone is managing to keep warm and as well as possible for all us autoimmune warriors in the build up to the festive per...
Swelling above ankles
Chaz12264 days ago
Hello all my anxiety is kicking in, all night I’ve been having horrible throbbing knees , I took my socks off and noticed under the band lin...
I feel worry about it .
Zohreh4 days ago
Hi , I’m 36 old lady and recently have found out that I have been diagnosed with lupus . This really effect my skin and loosing my hair .
3 Replies2 Likes
WHO IS MENTAL
Naz20055 days ago
Hi been suffering with right head pain neck & shoulder pain head has been goin numb & cold from right side been to GP before he said i think...
15 Replies2 Likes
Update - one step closer!
Chaz12266 days ago
Hello everyone Thankyou all for your support and guidance!
I’d just like to update everybody, I managed to get an appointment with my GP toda...
7 Replies5 Likes
First NHS appointment at The Kellgren Centre MRI
Littlemisssunshine876 days ago
Hi everyone, I promised I’d update through this journey with my second opinion after the first rheumatologist I saw dismissed my bloods and ...
4 Replies8 Likes
Thank you to everyone who contributed to the recent research study
Paul_Howard6 days ago
I want to say a massive THANK YOU to everyone who took the time to share their experiences about their journey to diagnosis and ...
3 Replies12 Likes
Catcon017 days ago
I am just asking for advice. I have SLE and loads of other things but had a bad chest infection and after three lots of antibiotics two...
Burnley12347 days ago
Beggining to realise that getting diagnosis and or treatment is nearly impossible had to go to hospital yesterday I'm away from home and was...
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Plasma or Stem cell treatment use with Lupus people
Roanna8 days ago
I've been told I need a new knee by my specialist and my second opinion just wants to inject my knee which makes me think one is extreme th...
Follow up on WOWZERS!
katidid8 days ago
Check this out. Sooooooo many of us are having similar experiences! For me it was my blood work and pelvic MRI. Oh! I found a copy of an ECG...
4 Replies3 Likes
Presentation - Annual Lupus Conference!
Sorry for the delay, but here is the presentation given by Dr. Wallace at the national Lupus convention this past September in LA. So...
2 Replies5 Likes
Any advice greatly appreciated.
Georgie-girl8 days ago
Hi all and hope you are all as well as you can be. Winter can be a pretty tough time for a lot of you I know. It's been a while since I hav...
8 Replies1 Like
Lupus diagnoses turns to fibromyalgia
ChantelF8 days agoPOPULAR
Hi guys, I haven't been on the forum for a while. I suppose I was feeling a bit fed up.
I was diagnosed with with Lupus in February I think ...
suemac8 days ago
I've been getting headaches now for 2mths doctor wants me to start amitriptyline 2 a day for 3 days then take 3 a day for 2 days then 4 at n...
Just a Moan because I need someone to hear it!
Lupiknits8 days agoPOPULAR
The cold snap is affectingly me badly and I think longingly of the three meds that I couldn’t tolerate.
The dog, because the winds were so st...
21 Replies5 Likes
£10 Christmas Bonus
Lupiknits8 days ago
I received a letter from DWP telling me I shall have a £10 bonus because of my PIP. I’ve been planning all year on what to spend it on.
13 Replies7 Likes
Am I just lazy?
Jammyonion139 days ago
Hi again I’ve felt so crappy and exhausted physically and mentally drained my whole body is aching I’m not sleeping (nothing new there) I’ve...
9 Replies3 Likes
dees22019 days ago
I also meant to add to my post that 4 years ago my step daughter died of sepsis aged 44, i was in close contact before she was admitted to h...
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