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    Hi first time on here n

    Hi i have been diagonised with lupus and sjogens and numourous other things !! Very sun sensative wear factor 50 all the time .but still have very sore hands anywhere the sun touches ...i have been put on mepacrine 100 gm a day my skin looks ...

  • Hi everyone

    My name is Judy. I was diagnosed with SLE about 14 years ago. I have good and bad days like everyone else. Sometimes when I feel well I go in denial and then boom a flare sneaks up and i face realty. I've been under a lot stress lately and find it...

  • SLE and possible CNS problems...

    Hello!
    It's my first time on here would be really grateful for some advice and info as I've been experiencing possible CNS probs over the last few months.
    I'm 29 and have SLE and was diagnosed in 2011, so far it has just been affecting my skin, ...

  • Hidden

    Sooooo unfit! Any suggestions what the best exercise would be for fat 46 year old woman, who tires easily and can't do stairs etc. n

    I am getting down now. I know I need to exercise but I am worried I set off a flare. I need to work to pay those bills but I also want enough to have holidays too. I can't be off sick.
    As a family we love skiing but due to the lack of cash due to ...

  • Pain

    Is it normal to have severe pain on the bottom of my feet? It feels like they're burnt.......hard to walk as well.
    Anyone else get a burning sensation like I'm describing

  • Tight chest

    I wonder if anyone can throw any light on this one for me. I have several criteria that would be strong indicators for lupus but no diagnosis as yet. My chest has felt tight for ages, as if I cannot fill my lungs fully. When I lie down it feels ...

  • Dla refused my decision today after 10weeks of reconsideration of my application. I posted a couple of days ago after a phone call

    Thursday just gone suddenly I got my decision..i feel really annoyed at the whole process a waste of time..i don't want to take it further as I have no energy to fight with these people, all I can say is I feel very let down my the system. They ...

  • Swimming with lupus

    Hi. I am feeling a little bit adventurous and I will like to take up swimming. I did not learn to swim when I was young and I would like to start now. The thing is, I know most public pools are treated with chlorine. So, does chlorine have any ...

  • Hidden

    Quick Question n

    After a lot of personal stress I seem to be in some sort of flair. My feet are the worst part its extremely painful to walk also the consent tiredness. I saw my rheumy a few weeks back he injected both my ankles with steroids the left one worked...

  • Middle back pain

    I wake up with this pain most mornings. I don't know if it's arthritis, my stupid mattress that's sinking in (foam) or some internal organ problem I should be worried about. Anyone else have this

  • Having a 'Why me?' day :-(

    Having a bit of a wobble so just want to let vent in the safety and anonymity of this forum! I was diagnosed a year ago with MCTD overlapping with SLE after having symptoms for a number of years that then all escalated and crashed together in the ...

  • I feel such a mess right now

    Hi all. My general joint pain is barely under control at the moment and I hardly feel the effects of taking the plaquenil. My rheumatologist has said step it up from 200 mcg to 400mcg for 7 to 10 days during a flare and taper back down. Does this...

  • Dose anyone know anything about ESA appeals after you have been awarded it.

    Had my Incapacity stopped about 12 months ago I appealed and was awarded ESA after going to court on the 13/3/14 I gave it two weeks and had no contact from them, so I phoned them they said I couldn't speak to the department that deals with the ...

  • Psoriasis arthritis

    Hi. Recently been to the rhumy and he got quite animated this time. He has referred me to a rhumy nurse as he now wants me to go on methotrexate, he now thinks psoriatic arthritis. He still wants me on hydroxychloroqine though. My hubby asked if ...

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    Advice needed please. n

    I am already fighting a 5 month long SLE flare and I think I have picked up the virus all the healthy folks are dealing with. I'm on my own, it's my birthday :( the Doctors are closed and I have two blankets, and the fire on full. The dog is ...

  • Can Gabapentin be taken with wafrin

    I got told off today for not taking my pain killers gabapentin does anyone else take this on wafrin ? Does it affect ur levels don't know why I am worried about taking it be greatful if u would let me know

  • Stopped taking Tramadol.

    My night sweats have been reduced by 80% but what can I take for the pain? I have tried all the over the counter pain killers they do little to help, Tramadol helped a little with the pain but the night sweats would keep me awake.
    The pain can ...

  • Hidden

    Misdiagnosis ? ME cfs or lupus n

    Hi all
    I was diagnosed with ME cfs in 2009 after two years investigations. As a side my sister has been diagnosed with Lupus and over the past year since my symptoms worsened we have been discussing together and it appears many of the symptoms ...

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    My Blue Badge Arrived Today! n

    I didn't expect to be approved for a blue parking badge as I didn't fit into the usual criteria, but after a walking assessment with a physio (which didn't involve any walking) I was approved! That along with my first walking stick (which she ...

  • Can someone Tell me abit more about interstitial cystitis?

    Hello

    I recently wrote a page on frequent urination and how it affects me I can hold my toilet for around 3-5 hours so have no problem but the symptoms of the urge to pee comes and goes making it hard to hold it when im always thinking of the ...

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