Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,945 members • 28,269 posts

Sort posts by:

Leeds Lupus Group - Coffee and Chat Meeting - 13th July!

Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 13th July at 12pm, at Starbucks (Leeds City Point), 9-11 St Pauls, King...

Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Satu...

michaellasmith

Administrator•11 hours ago

Be the first to reply

following ophthalmology

(Hi MEGS) For those of you who know my journey ive had a real struggle, and still am but have had some help with a steroid trial but no healthcare. Finally I...

(Hi MEGS) For those of you who know my journey ive had a real struggle, and sti...

stiff19

•3 days ago

29 Replies

Cutie Mix Up

Hello EveryoneJust thought i'd post this lovely picture of a Mummy Duck and her cute babies. They took a wrong turning and ended up at a red carpet film...

Hello EveryoneJust thought i'd post this lovely picture of a Mummy Duck and her ...

misty14

•3 days ago

17 Replies

Want to take advantage of all our features? Just log in!

Don't know where to start

After 4 years I still don't really know what I have.Initially diagnosed with Undifferentiated Inflammatory Arthritis, then discovered by accident that it had...

After 4 years I still don't really know what I have.Initially diagnosed with Und...

Brychni

•4 days ago

26 Replies

Weekend vibes

Hope everyone has a wonderful weekend 😘💕 A photo of one of my favourite places in North Devon, is Arlington. It has some lovely wooded walks, its a great...

Hope everyone has a wonderful weekend 😘💕 A photo of one of my favourite pl...

Graystar

•4 days ago

2 Replies

Muzvare

I am a woman aged 53. Iwas diagnosed with lupus two weeks ago. However, I was not given any treatment. I got no advice on what to do next. I am supposed to...

I am a woman aged 53. Iwas diagnosed with lupus two weeks ago. However, I was ...

Muzvare

•4 days ago

14 Replies

Fruits of the Summer harvest just to cheer you up☺️

Hi folks ,Thought I share you my picks of the garden the far left pot of strawberries was picked This morning the other 2 was pick the last 2 days morning and...

Hi folks ,Thought I share you my picks of the garden the far left pot of strawbe...

KnitSewPurl

•5 days ago

10 Replies

New CAR-T lupus trial recruiting now

A new trial is assessing whether a type of CAR-T cell therapy is safe for people with SLE. This trial is recruiting now. You can find out more information...

A new trial is assessing whether a type of CAR-T cell therapy is safe for people...

Debbie_kinsey

Administrator•6 days ago

Solstice evening stroll

How is this for a view? My health is deteriorating but I can still sometimes get out to appreciate this beautiful island that is my home. Best wishes to...

How is this for a view? My health is deteriorating but I can still sometimes ...

IsleofWight1

•6 days ago

12 Replies

Reasons to Smile

Hi lovely Lupies. I thought you might like to see my latest pottery piece. While it is nowhere near as gorgeous as my beautiful boy Finlay, I think it captures...

Hi lovely Lupies. I thought you might like to see my latest pottery piece. While...

CecilyParsley

•6 days ago

46 Replies

How to wash sun cream, any tips please

Hi all, I am having to start putting 50+ sun cream on my face every day. However, I find it difficult to clean my face fully every evening. I am sure there is...

Hi all, I am having to start putting 50+ sun cream on my face every day. However...

Petrof

•6 days ago

17 Replies

Advice on appointment delays please?

Hi all, hope you're well 😊 I was recently diagnosed with Sjogren's Syndrome in February this year. At this appointment I was put on a 4 month trial of...

Hi all, hope you're well 😊 I was recently diagnosed with Sjogren's Syndrome in ...

Helzipop

•7 days ago

4 Replies

so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?

diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry...

diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent dow...

Bigdave79

•7 days ago

34 Replies

Discoid lupus

Does anyone have discoid lupus? If yes I would love to hear more about how you cope with it and if anything has worked for you. I used to have black/brown...

Does anyone have discoid lupus? If yes I would love to hear more about how you c...

exLover_girl

•7 days ago

1 Reply

Neuro-opthamology app

Hi I have sjogrens and take hydroxycloroquine. I was just wondering as anyone ever been referred to neuro-opthamology. I was just wondering why I was...

Hi I have sjogrens and take hydroxycloroquine. I was just wondering as anyone e...

M_90

•7 days ago

2 Replies

thank you for the help! ❤️

I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I...

I recently posted asking if anyone had pancreatitis issues with lupus (just been...

Loobie72

•8 days ago

3 Replies

La Roche Posay new version SPF 50+ larger volume that uses on the body

Hi all ,For those who uses La Roche Posay SPF50+ has anyone used the Family version SPF 50+ it is a 300ml trigger bottle or the Body lotion moisture 250mls SPF...

Hi all ,For those who uses La Roche Posay SPF50+ has anyone used the Family vers...

KnitSewPurl

•8 days ago

12 Replies

Lupus toothpaste reaction

Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers....

Hi all, I have had Lupus for a long time but it never affected my mouth before....

LupusMigraineetc

•9 days ago

73 Replies

blood test results

I have posted on here before about my son. It started with a rash on his ear which then went to his face (bridge of his nose and eye brows). Around the time...

I have posted on here before about my son. It started with a rash on his ear wh...

Demaso33

•9 days ago

Be the first to reply

Opinions please

Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In...

Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my ...

Haylz2109

•9 days ago

16 Replies

Ana vs ENA

Hello, After many years of joint pain and 5+ years of eye troubles, I was given a series of blood tests including autoantibodies. I've come back positive three...

Hello, After many years of joint pain and 5+ years of eye troubles, I was given ...

Soph160

•9 days ago

Be the first to reply

new member

Hi. My name is Emchar. I am waiting for diagnosis of possible Sjögrens or other issues related to swollen salivary glands and dry mouth and Raynauds. My...

Hi. My name is Emchar. I am waiting for diagnosis of possible Sjögrens or other ...

EmChar

•10 days ago

3 Replies

Spray tan

Hi all, I have cutaneous lupus and am avoiding sun exposure, using high factor sunscreen just to stay in the shade etc. also been on hydroxychloroquine for...

Hi all, I have cutaneous lupus and am avoiding sun exposure, using high factor s...

Biscay

•10 days ago

6 Replies

Worried about husband

Hi, I’m worried about my husband who has had chrohns for 20+ years and has now been diagnosed with drug induced lupus from inflimab which they said would go...

Hi, I’m worried about my husband who has had chrohns for 20+ years and has now ...

Denny39

•10 days ago

17 Replies

Rheumatogy appointment

hi recently referred to Rheumatologist for symptoms of Rheumatic condition. I had swollen salivary glands 2 years dry mouth so trouble eating; Reynauds...

hi recently referred to Rheumatologist for symptoms of Rheumatic condition. I ha...

EmChar

•10 days ago

2 Replies

Dam Lupus

I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒

I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" ...

Will1408

•10 days ago

7 Replies

Gel nails and lupus/raynauds

Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate...

Hi everyone 🌸 May sound like a silly question but Im just curious if anyone he...

Shann07

•10 days ago

13 Replies

Eye troubles

Hi my lupus community I need your thoughts on my dilemma. I have had a lupus diagnosis for 20 years now and have been on lots of different meds over the...

Hi my lupus community I need your thoughts on my dilemma. I have had a lupus d...

littlemissp

•12 days ago

18 Replies

Sunscreen in the news

Some sunscreens failing Which tests - useful to be aware as its an important part of our armoury. x https://www.bbc.co.uk/news/articles/cgeevnvj997o

Some sunscreens failing Which tests - useful to be aware as its an important par...

lupime

•12 days ago

3 Replies

REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!

Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The...

Don't forget, if you live in Northern Ireland and are interested in volunteering...

michaellasmith

Administrator•12 days ago

Be the first to reply

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Leeds Lupus Group - Coffee and Chat Meeting - 13th July!

following ophthalmology

Cutie Mix Up

Don't know where to start

Weekend vibes

Muzvare

Fruits of the Summer harvest just to cheer you up☺️

New CAR-T lupus trial recruiting now

Solstice evening stroll

Reasons to Smile

How to wash sun cream, any tips please

Advice on appointment delays please?

so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?

Discoid lupus

Neuro-opthamology app

thank you for the help! ❤️

La Roche Posay new version SPF 50+ larger volume that uses on the body

Lupus toothpaste reaction

blood test results

Opinions please

Ana vs ENA

new member

Spray tan

Worried about husband

Rheumatogy appointment

Dam Lupus

Gel nails and lupus/raynauds

Eye troubles

Sunscreen in the news

REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive