LouLamb15 hours ago
So my calorie counting weight loss has not been going to plan. I think a big part of that is what I eat. So I’m a plain person who doesn’t l...
RahanaBi9816 hours ago
Hi... so as u know from first post I was diagnosed with Lupus in January and also pregnant.
I was admitted to hospital again on the 31st Jan...
3 Replies2 Likes
Cm2417 hours ago
Hi all. I've had symptoms for 18 months on & off. GP very dismissive but now had a positive ANA. Waiting on ENA results following ANA. Anyon...
3 Replies1 Like
One more sleep~ 2 Wisdom teeth removal & biopsies TOMORROW!
LauraMk30a day ago
Tomorrow is just around the corner, I’ve recently been to the dentist as I was suffering with a thumping pulse in my upper righ...
8 Replies2 Likes
Looking for people around Stratford areas to meet up as m alone just someone who chat with n compare notes with regarding this disease
Mystika day ago
Thanks all u we r all fighters
Tessie62a day ago
...I'm so frustrated. I was diagnosed with mono a couple weeks ago. Since then I'm dealing with 3 infections that won't heal. I haven't ...
mistygrey2 days ago
Does anybody in UK get prescribed Planquenil for Sjogrens or Lupus related diseases?
POTs/ dysautonomia/ autonomic nervous system issues anyone??
Melba12 days ago
Hello, looking for your experiences please and my release from hospital may depend on it!!
I have been struggling with various lupus symptoms...
My Mother’s Lupus Diagnosis
bobbyedmo2 days ago
My Mum has been diagnosed. I live so far and she is alone. Sometimes she can barely move. Surgery is so far away, and she needs to work to ...
sammysam28802 days ago
Good morning everyone,
this is all new to me i just found out i have lupus i have all sorts of feelings i was expecting to find out what type...
5 Replies5 Likes
whisperit2 days agoPOPULAR
I went to my long awaited endo referral today - long awaited, but tbh I was not expecting much. I seem to have exhausted every clinician in ...
25 Replies3 Likes
The Wolf Inside
SjogiBear2 days ago
Since the new year I have been going along to a creative writing class just to challenge myself to try something new and to get my mind occu...
9 Replies13 Likes
Reducing dosage from 200mg to 50mg, is this drastic?
tmh662 days ago
I have recently had my full bloods done and also my thyroid, my bloods i have done as I am on methotrexate and they were fine but apparently...
Cellul2 days ago
Well, not much of an update. ANA tests came back - all negative. Not really sure how I’m feeling about that to be honest.
Been referred to Rh...
SLE and Fibromyalgia, also expert in all aspects of pain and chronic fatigue!😩😴
Wolf_12 days ago
Hi I’m Wolf_1, I’m a 46 year old male and have lived with SLE and Fibromyalgia for 20 years! 🦋
3 Replies7 Likes
Travelling to Australia - advice please
JenniferW3 days ago
My in-laws live in Australia and my sister-in-law has just announced her engagement. She and her fiance made the effort to come over to the ...
11 Replies2 Likes
Sudden onset autoimmune alopecia linked to SLE+drug side effects?
phillippo3 days ago
Suffering/coping/enduring with what my dermatologist has diagnosed:"sudden onset autoimmune alopecia". Drastic hair loss, coming off scalp i...
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Too cute to be ill!
Tellyfic3 days ago
Hi all. I’m Telly, suffering with Lupus for a decade but was in remission for 6 until the birth of my 3 years old daughter.
I was recently ho...
3 Replies4 Likes
Lupus, a short story
kyliesinead3 days ago
I was diagnosed a while ago with UCTD with Lupus traits. I was inspired to write this short story by a post I read on here. I'm sure some ...
12 Replies12 Likes
nikfras4 days ago
hi 🙋 all ..my name Nikki I was diagnosed SLE 1996 ... 2yr after i had my first son..... I also have daughter 20yr who gave me my gourgeous...
2 Replies1 Like
It’s like living a life with bipolar!!!!
Lisalou194 days ago
I have no diagnosis. But at this time of writing I feel really up beat. I have just come out of my most recent flare up
I’m just sitting h...
3 Replies3 Likes
Sandie19644 days ago
I am a mum of a 21 year old who was diagnosed with lupus last year . Last week she was phoned my her the my after her bloodsshowed raised l...
jyotichahal914 days ago
MYOFACIAL pain syndrome in right thigh is making it very painful to walk. Right hip very painful
Tulipano4 days ago
On Friday I have an appointment to see an ent doctor. I always have ear pain and now is starting to make popping noise too. The...
What to do?
Hollydebs4 days ago
Sorry for the long post. Been away from the site for a while as It’s been a depressing 5 months. Often feel if someone above has it in for m...
Trying to hide it from my wife !
Ianrussell694 days ago
Hi all sorry for winging thought I would just get that out the way I’ve had a descent run regarding lupus /mctd but over the last 2weeks I’v...
6 Replies4 Likes
Can't stop going!!
katidid4 days ago
I have to start this by saying I'm a person who has always had to pee a lot more than most. It's been going on so long it's a widespread jok...
ESA benefit changes
Susanking4454 days ago
Hi everyone on this site dwp are very unfair to whom get help and who does not know 62 with arthritis depression and c o d anxiety
Azathioprine: pro's and cons
_jenc_5 days agoPOPULAR
Hope you're all as well as can be. I was hoping some of you may be able to tell me your experiences taking azathioprine (Imuran)...
60 Replies3 Likes
KimW45 days ago
Tiger Nuts....I read that they are anti-inflammatory and high in fiber, which is great but they are Legumes. Are Lupies allowed to eat them?
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