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LUPUS UK
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ACR guidelines for HCQ during COVID 19

From the American college of Rheumotology today addressing HCQ suggested guidel...

Mycophenolate - sore throat

How sore should your throat be before you stop taking mycophenolate? Taken pain ...

Hi all, hope yr all keeping safe. Just a quick question?

I had an email/text from the rheumatoid department asking not to attend any to a...
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Methotrexate bloods

I've just had my monthly bloods taken, (my first time out of the house in 3 week...

Looking for advice x

Hello, I have SLE and take hydroxychloroquine and amitriptyline. Recently my s...

Feeling scared

Dear all I’m sorry I usually try and post something positive but I’m feeling re...

Crawling sensation all over

Anyone else have crawling sensation / buzzing all over worse at night laying sti...

Covid 19 and work

Has anyone received the letter from GP asking them to isolate for 12 weeks I was...

Hydroxychloroquine media request

Hi everyone, I've been contacted by a journalist for Associated Press who would ...

Restless legs

Dear all, I seldom write on here, but I do read all your posts with interest and...

COVID-19 and UK Hydroxychloroquine Supply (UPDATED 02/04/2020)

Hi everyone, We’ve just published updates to our article about the UK Hydroxychl...

low white count, no one will provide a letter for work. Does my son need one? Any help please

Hi, Can anyone help my son please. I have Lupus etc but have retired son isolate...

A story for your children or share virtually with grandchildren

An appropriate story from our local village school: https://twitter.com/ysgol_n...

Determined to get his nuts!

Caught this cheeky chappy trying his best to get to the nuts. Taken from inside ...

Had DLE 20 yrs stress induced attacks now 1 or 2 pa so unmedicated Q1 Does DLE add to Covid risk Q2 If contracted is impact heightened?

Underlying DLE unmedicated - COVID19 risks?

Very interesting.....

https://www.nytimes.com/2020/04/01/health/coronavirus-cytokine-storm-immune-syst...

Newly diagnosed

Had call from gp on Monday, all tests came back saying lupus, but cant refer du...

Self isolation

It’s like being an astronaut apart from the gravity!

It's only me

Just thought I would catch up with you all. Please Be careful out there! I was s...

Abandoned

I have Lupus and scleroderma and on 25mg methotrexate yet my doctor has said I a...

Lupus sufferer

I am 66 this year, I have systemic lupus, high blood pressure and rheumatoid art...

US nurse with lupus

Interesting article about ppe and hcq shortages for those who need it most....

Just saw this om Twitter

Can we have more clarification of these \"malaria drugs\" that @michaelgove ment...

We want to hear from our LUPUS UK members!

LUPUS UK would like to know why YOU joined as a member of LUPUS UK and how the c...

Lupus & Financial Support

Hi, I have received a letter from the NHS requesting me to shield due to Lupus. ...

Confused.com

I’m just looking for the easy answer! 🙈 I have lupus. Take hydroxychloroquine. ...

OT

Hi all, I had my assessment for the OT a few weeks back. Last week they delive...

High risk letter

Received my letter today, 3 months of not going out!!! Needs must I suppose. On ...

Just a bit of banter in gloomy times

Just be careful because people are going crazy from being in lock down or maybe ...

Caption Competition!

While we are all isolated I wondered if it might be fun to think of a caption fo...
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