Littlemisssunshine8721 minutes ago
This is my first post so please bare with me.
Can anybody help me with symptoms I’m having and test results. I saw a rhuematologist yester...
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Led TV Reaction
loopy-lou6 hours ago
I react severely to all forms of lighting. I have just purchased a new LED TV (had a very old TV previously). However, I have reacted to th...
Hello I'm a Newbie
slaithwaite7 hours ago
Long post alert.
This is my first foray on this site so let me give you a little background.
I was diagnosed with Sjogrens Syndrome jus...
6 Replies2 Likes
Should I ask for second opinion?
Melcw18 hours ago
I am looking for some advice please....
I was diagnosed with rheumatoid arthritis 4 years ago and have recently been diagnosed with autoimmun...
Invest in olive oil now?
whisperita day ago
According to Lupus News Today, a recent research paper shows that virgin olive oil may help reduce SLE activity. The study found that lab mi...
9 Replies5 Likes
SHORT SURVEY: Help researchers at UCL with their plans for a study looking at the impact of gender and puberty on lupus and treatments.
Paul_Howarda day ago
Researchers at UCL Centre for Adolescent Rheumatology are interested in studying the impact that gender and puberty may have on lupus and th...
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August's Topic of the Month - Coping with Lung Problems (We want to hear your tips and experiences)
Our Topic of the Month discussion for August is 'Coping with Lung Problems'.
A large proportion of people with lupus will experience some for...
8 Replies3 Likes
Subtle reminder that I should be taking care of myself....
Wunder532 days ago
Went to the theatre to see a show.... The gentleman sat next to my husband asked him if he'd heard of lupus? And explained that he'd recentl...
8 Replies12 Likes
July's Topic of the Month - Caring for your Feet
Paul_Howard2 days ago
We've published our Topic of the Month article for July about caring for your feet. You can read it at lupusuk.org.uk/caring-for-y......
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Feels Like so Much Waiting and Worrying
eirinym2 days ago
I'm really trying to go day to day with what's been happening to me. When this all started with stomach problems I didn't really expect to e...
whisperit2 days agoPOPULAR
Something really positive to report! Less than a fortnight after being referred for a home Occupational Therapy assessment, I have already g...
25 Replies18 Likes
RASH: sitting under fluorescent lighting at work makes my skin feel like it's burning, and this happens.
AField2 days ago
I've developed various symptoms, some very bizarre, since I started to become unwell in March 2016. I am back and forth to the GP to only be...
2 Replies1 Like
lupus or/and fibromialgia?
Mandypandy19693 days ago
Hi all, not been on here for a long time as first I was diagnosed with lupus last February but now it's been confirmed I have fibromialgia. ...
17 Replies1 Like
faithnhm3333 days ago
Hello to everyone. Hope all is well. Has anyone experienced dents above the knee in both legs?
Any suggestions for shampoo?
Lili183 days ago
I’ve recently been diagnosed and still don’t know how to go about this. Can anyone recommend a shampoo and skin care?
10 Replies1 Like
LSurtees3 days ago
Hope you are all doing well?
I have been on steroids now for 2 years and my dose changes all the time plus every three months I have i...
Only me again 🙄. Has anyone opted for a hysterectomy during their battle with Lupus! I feel my hormones are feeding every flare
Lisalou193 days ago
I can literally tell what day I’m on during my cycle, due to increased skin rashes, painful hands , feet and back!
I’ve always noticed my ho...
Is yoga enough
Saranda3 days ago
Hi guys I have read that I need to do excercises . Since I have been diagnosed eoth lupus I am trying to do yoga. It is really helping me. B...
LLH763 days ago
I had my Rheumatology appointment at The Royal Free Hospital today, I’m not going to name and shame or go in to detail but I think I need to...
5 Replies1 Like
Never ending lupus!!
Sara_A3 days ago
I’ve currently been off work for just over a week now following a flare after being abroad in the sun (never had any problem with the sun b...
7 Replies2 Likes
Coping with depression
Josieswolf4 days ago
Hi everyone i’m sure I am not the only one who feels like this, but how do you cope with depression. The past three years have been so hard ...
15 Replies2 Likes
Plaquenil and Ringing in Ears?
sflynn844 days ago
Hi all, I was wondering if anyone has had ringing in their ears after starting plaquenil? I have been plaquenil for one year and it was almo...
Information on Nettienet
AgedCrone4 days ago
Sadly this is the answer I got about Nettienet.
As I remember wasn't she justt as about to see her Rheumy about going on a new drug?
1 Reply1 Like
Prednisolone diary 13 - what do I know?
whisperit4 days ago
Entry 12 was written a week after going up to 24mg of methyl prednisolone. It left me feeling much improved in mood and energy levels, and o...
18 Replies3 Likes
How do I know whether my symptoms are lupus related?
Wunder535 days ago
New to this site and looking forward to some guidance and support with my diagnosis... I'll briefly outline my journey thus far...
After a ro...
LouLamb5 days ago
Have driven down to Clacton today with my mum. My brother has got a caravan with our cousins and we’ve joined him. I was going to come home ...
18 Replies1 Like
Osteoporosis and height
ellejay465 days ago
Earlier in the year I was found to be having osteoporosis (at 18 years old...). I used to be 159cm but went down to 156 then 1...
Possible food poisoning when on rituximab
weathervane5 days agoPOPULAR
Hello all, ive had a bad night, diarrhoea, painful guts , bit dizzy and cold . Im thinking food poisoning or gastric flu . My worry is shou...
Diagnosis for sjigoens disease
Mystik5 days ago
Does anyone have sjigoens disease
And how did the Drs disease sijgoens ?
Did any one have a lip biopsy ?
7 Replies1 Like
Amber5605 days ago
Wonder if anyone else has had so many diagnosis? 12 years ago diagnosed with rheumatoid arthritis. About 4 years ago found was incorrect d...
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