Hidden3 hours ago
Today I help a lady who goes to our church. Her Husband passed away 2 weeks ago. Two of my Grandchildren and I carried a load of dirt in my ...
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hello, I've diagnosed with beginning of lupus, my antinuclear antibodies are positive, I have reynaud's, joint pains, muscle pains and night...
Hidden4 hours ago
Could anyone recommend either Huddersfield, Calderdale or Dewsbury hospital rheumatology departments? This is the choice I have been given f...
A Closer Look At Lupus
Hidden11 hours ago
Came across this while trying to piece together my symptoms. Found it very interesting. healthline.com/health-slide... Still haven't had an...
Tiras12 hours ago
Just another photo of my Grandaughter's chickens.
"The Bareroot Gardener"
Tiras13 hours ago
Well not only am I gardening now but, my Grandaughter who lives with Laura and I, is in "chick chain" 4-H program. For those of you who don'...
Purpletop13 hours ago
Hiya. A quick update.
I've been poorly since last December. I spent Xmas in hospital after having what I call a "funny" episode - something ...
Hiddena day agoPOPULAR
I saw my regular rhuemy today (not the Louise coote who I'm still seeing). He didn't seem to know what was going on at Louise co...
educka day ago
Anybody suffer from allodynia - pain from stimuli which aren't usually painful such as light touch? I answered a post on this a couple of we...
Signed of work again!
Leanne21bulla day ago
Yesterday I went to see my gp and unfortunately I was signed of work again!
As I suffer with electric shocks from my finger/thumb to my chest...
Tiras2 days ago
Today's doctor is the one I don't like. Today I go to the lupus study I'm in. Every 3 months I get inspected from head to toe for any lupus ...
Hydroxy Works. I'm Chuffed!
Lupiknits2 days ago
I hope I'm safe in saying this ......but after 7 months on hydroxy, I'm feeling better than I have in nearly three years. I had been countin...
First bite pain
1985mum2 days ago
I don't know whether to post his here or go over to the sjogrens forum...
As part of my ongoing research I am continually frustra...
Filled in PIP form last week assessment next week. Record?
Footygirl2 days ago
Yes. Thats quick. Bit un nerving but I shall be as I am and will follow Benefits and Work advice. Will let you know how it goes!
Love to all
Hidden2 days ago
I woke on Sunday looking like I lost a poke war, small fingertip sized bruises all over me. Monday the anticoagulant clinic asked that I see...
After my doctors appointment today I stopped by the nail salon and got a pedicure. (Yes I am a normal guy) I have to be barefoot and can't w...
Well today and tomorrow, I will not be in the garden nor will I get to go fishing. The weather is suppose to be beautiful here in the southe...
Lupus or not ???
angbed3 days ago
Biopsy and Bloods were done to investigate hair loss. Dermatologist explained the ANA came back positive at 1/320 but the ENA and ANCA rheum...
This is for Coco
Tiras3 days ago
Here is a photo of me fishing today.
And yes as usual I am barefoot.
Got 70+ sunscreen on maybe it was enough?
Thanks Coco for everything.
Had another good day, got the boat out and went fishing. Use 70+ sunscreen I just hope that was enough. Bright sunny day 84 degrees Fahrenhe...
Heavy legs 😞
Hidden3 days ago
Do any of you guys get heavy achey and hot legs and feet? I am used to my legs not playing ball at times with restless legs syndrome, but...
Toastie-693 days ago
Just a quick question I hope someone can help me with. I'm diagnosed with UCTD, possible emerging lupus as I'm positive for dsDNA of "reason...
Latest on skin rash
molly193 days ago
Latest skin rash, been put on 30mg prednisolone and 400mg quinoric. I'm pretty much confused with hydroxyquine, it seems to change like the ...
Pipido363 days ago
Has anyone ever used activated charcoal for aiding digestion or lower cholesterol? If so does it work? I met someone who mentioned that that...
Squeeker3 days ago
I'm new to this site, I'm looking to chat with other folks and to hear their experience of lupus.
I've had my first treatment of Rituximab ...
carollesley3 days ago
i was getting full care part of pip just been assessed and have cut my money down saying i dont need a lot of help has this happened to any ...
WONDERFUL Facebook Video link re "I don't look sick, & you don't look stupid..looks can be deceiving!"
Barnclown3 days ago
(🙄 I hope the link works...have never posted a link like this before)
Next problem: receding gums and burning mouth related to CT disease or ageing?
Just wondered as I've realised that, despite no obvious sign of gum disease and apparently excellent oral hygiene - my gums on lower front t...
anner404 days ago
I was diagnosedreturnewith SLE a year ago & around March suffered chronic pain in my TMJ. Gp said eara were fine, dentist said teeth were f...
Can anyone help me with this
Minka14 days ago
Does anyone on here get the ligament running under the knee cap sore and clunking and inside ankle pain like it's going to collapse on the a...
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