Han413 hours ago
I've just joined this forum after been diagnosed with lupus just over a month ago
1223rylan19 hours ago
For 8 months i have been dealing with thickened cheeks,small welt type places that burn all the time on the inside ,yellow tint to them also...
mollyaimeea day ago
I’ve only recently been diagnosed with SLE (around 5 weeks ago now) and so I’m slowly coming to terms with everything it brings. F...
asking for help finding a doctor in Reading
jessa08a day ago
Good day! I have lupus Nephritis. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this me...
Belimumab and Rituximab combo
LydiaGa day ago
Hello! I have SLE which and my rheumy has recently suggested Rituximab and Belimumab infusions combo (Rituxi every 6 months with Belimumab a...
2 Replies1 Like
give me a break please!!!! pukey ??? any1 else?
amanda73a day ago
constant throwing up ??? I over heat and sweat loads then I am as sick as a dog stopped nsaids so its not those as stopped them over 6months...
New additions to the already long list
RubyTuesday2a day ago
Well, I have just been referred under a two week rule for suspected bowel cancer (I should be seen by colorectal team soon. Then my GP rang ...
7 Replies1 Like
EveWarwicka day ago
I messed up my appt with Rheumy, forgot about the dry mouth, but did say gritty eyes, think I had brain fog. My Dr told me yesterday my bloo...
Struggling with sleep and fatigue
imzia day ago
Recently I have been really struggling with waking up in the mornings it’s a right battle I just feel so tired and sleepy each morning an...
1 Reply1 Like
patient1652 days ago
Lupus 15+ years. Chloroquine, Cellcept, Azathioprine, one dose of Rituximab. Now starting on Tacrolimus but worried about long term....
New PIP review information
flap72 days ago
This will be of interest to many who use this forum - let's hope there is more concrete information to follow.
2 Replies2 Likes
Janethaywood502 days ago
Hi, I have fibromyalgia and peripheral arterial disease plus a few others, but my memory is that crap I can’t recall them lol. I’m here to a...
Anyone had an Acute Kidney Stage Warning?
Lupiknits2 days ago
My last two blood tests have highlighted an acute kidney stage warning, so instead of seeing my GP next week after the blood tests last week...
6 Replies1 Like
NewYorktoParis2 days ago
Hi, a family member has recently been diagnosed with SLE. Currently back in hospital, what is the best treatment to stop the rim of the ear(...
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Mycophenolate and feeling awful after a month -- normal??
panda22 days ago
I've been taking my generous concoction of meds seemingly a-ok, until now. I started Mycophenolate early May, without issue at ...
Please help do I have lupus
Tyco12 days ago
Hi please can anyone help me before I go mad. A doctor at work says I may have lupus after lots of different out breaks I have. I won't list...
PIP Application Nightmare
andyking19903 days ago
I have joined the forum as a family member of someone suffering from Lupus in order to gain further insight and understanding.
7 Replies2 Likes
This ones about my daughter
Ianrussell693 days ago
Going back to my post about my daughter she was diagnosed with anckalosing spondylitis then went to see our phyio and she said I’m not a dr ...
3 Replies3 Likes
Babyida3 days ago
Hi all my health issues are getting me down, I’ve been suffering with joint pain and rashes for 10 year since my mum pasted away. I’ve had a...
5 Replies2 Likes
Interviewee needed for ELLE UK
Chanpreet_Walia3 days ago
ELLE UK is looking to interview a woman with lupus (aged 18-35) to share her experience of losing her eyebrows for an online article. ELLE U...
Swifty774 days ago
Hi everyone - i posted a couple of months ago about my pregnancy and issues with my baby's growth in the womb. The baby has now arrived! Sh...
19 Replies22 Likes
Positive anti dsdna but no symptoms
Parker424 days ago
My anti dsdna has come back positive, but other than occasional arthritis flares I haven’t had any other symptoms. Does this mean I will eve...
englishrose674 days ago
Hi my lupie friends
Does anyone suffer with intermittent chest pain? I have been last couple of weeks. The first time was quite painful when ...
4 Replies2 Likes
Rhod4 days ago
This is my first post and I don’t even know if I have SLE but after 20 years of going to Doctors and complaining about pain and fatigue I fi...
4 Replies6 Likes
COPING DAY TO DAY ? ? ?
Bronn4 days ago
Hi everyone, just so fed of this today. Since my renal then chest infection cleared up I get 1 good day 1 bad day alternately. Good days ...
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abt844 days ago
I was wondering if anyone has had an itchy, burning rash on their joints? It start on one elbow a week ago and is now on b...
Questions about Disease Activity and Plaquenil dose
ecough5 days agoPOPULAR
I had an appointment with my Rheumy this past week and she told me a couple of surprising things based on what she says is "new r...
20 Replies2 Likes
balamuti5 days ago
Hi all, Just wanting to connect with others and possibly gain some advice here. Brief history 6 years ago I had a retinal vein occlusion (TI...
5 Replies1 Like
MOOG1445 days ago
Hoping for some advise...
I was diagnosed with SLE and Lupus Nephritis in Feb.
I've started on 60mg steroids and MMf straight away, last mo...
3 Replies1 Like
If not Lupus... what next?
BubbleMonkey6 days ago
Not exactly lupus related. I guess technically it's the opposite. It seems a few people here are lupus-like though or will have been through...
17 Replies3 Likes
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