Nicole20009 hours ago
It's been a long day.
I've been up since 5:45 am, I left the house at 7:15 am, manoeuvred through the morning traffic and arrived at the offi...
1 Reply2 Likes
Sorting it all out
bones-bones10 hours ago
Hello....sorry to moan but......
I am feeling more than normally fed up today. Every time I think I might be winning
Something pops up to tell...
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Visit to GP and her views on pain
Lupiknits10 hours ago
I'll say it again. Changing GP practice is looking like one of the best decisions I've made.
I had a follow up today after a GP prescribed an...
And so my saga continues.......
Wendy3916 hours ago
I saw my GP yesterday to discuss my new diagnosis and treatment plan, following my appointment with Dr K at the London Bridge Lupus Centre.
9 Replies2 Likes
LSurtees21 hours ago
I have been up all night and had three nose bleeds that have taken a while to stop. I am on Tinzaparin injections to thin my blood an...
4 Replies1 Like
faithnhm333a day ago
This may sound strange, but sometimes I have a wet feeling in my back, has anyone else experience this?
3 Replies1 Like
diane46a day ago
Been on methotrexate for aboutique two years now I was on 20 mg by injection but over the last month I have been having crampsome in my stom...
Meds for chronic fatigue
Cynthiabydesign405a day ago
I've been in bed for about 3 yrs now. I can barely get up to brush my teeth I'm so exhausted! I have lupus, fibromyalgia, chronic pain, sev...
8 Replies1 Like
LouLamba day ago
Had a result at work found out your allowed to wear shorts !!! Love wearing shorts before I got raynaurds I use to wear shorts all year roun...
MagsaTrini2 days ago
Is a hot red burning scalp a symptom of lupus...... It's been a few days now and very painful.... No itching , just red burning and hot to t...
15 Replies2 Likes
Does anyone get this?
Tinkerjack19122 days ago
Hi, does anyone get swollen ankles and feet with a rash? The rash can go up my leg just under my knee, in my thighs and in my arms.
World Lupus day report of survey of Lupus patients experience of living with Lupus
fabwheelie2 days ago
Thanks Lupus UK for being involved in producing this "Lupus knows no boundaries report"
Here are some links to the report ......
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Nurseladybird2 days ago
Finished my trial of prednisolone 4 days ago and am now having major migraine issues. I had 3 yesterday - all with aura - and now hav...
5 Replies1 Like
Depression, too much UV or just autoimmune flare or all of the above?
maggielee2 days ago
I went to GP to discuss problems with tiredness (more since the days have gotten longer) and headaches and migraines (use of pain relief etc...
8 Replies2 Likes
Child hair loss
Nikki2462 days ago
When I went to put sun cream on my daughter's neck (she's 10 next month), I lifted her plait up I noticed a bald patch. It's completely smoo...
ShadowSky2 days ago
Hi this is to all my friends out there with Lupus. Please can I ask if any of you suffer with sharp chest pains shooting across your chest t...
6 Replies1 Like
mangotea2 days ago
Hi! I'm really new here and was just hoping for some advice!
I recently went to my GP with a rash I've had on my hands on/off for about 2 ye...
Sjogrens specialists Sussex
Purpletop2 days ago
Hi guys, for those of you who suffer with Sjogrens and are based in Sussex, who do you see and what are your views about your specialist?
10 Replies1 Like
gillian-513 days ago
Hi everyone I was diagnosed with sle about five years ago. Everything has been going as well as it can until a month ago when my legs starte...
9 Replies1 Like
To anyone suffering from Lupus or still waiting to be diagnosed. My truth about Aspartame.
JGAV3 days ago
This is my first post on this site. I am not a medical professional but simply a patient that has been suffering over the last 3 years from ...
18 Replies2 Likes
Back from my gp
pascalelupus3 days ago
Hi everybody, thank for all your supports. I'm back from my gp and he advice me to consult my gp instead because of my allergy to so many an...
A few words of advice/encouragement please. Possible Lupus/MCTD/vasculitis.
Minnskimoo3 days ago
I would appreciate some input regarding my questionable (still between rheumatologist/dermatologist) diagnosis of Lupus/ MCT...
12 Replies5 Likes
Reviewing for Pharmacy Licensure exam
Kay_elyn3 days ago
Hi, i am currently having my review for my upcoming licensure exam. I have been diagnosed with SLE when i was still 18, and i survived my de...
Mental health and the Immune system
Georgie-girl3 days ago
I don't know if any of you saw this on the TV last night, but apparently, scientists have proven what we autoimmunees have been saying for y...
8 Replies7 Likes
pammy13 days ago
hi can anyone tell me if they have trouble maintaining their zinc levels even with taking zinc supplements and if so is this one of the prob...
2 Replies1 Like
puffyface3 days ago
I am wandering around my house at a snails pace today. Don't know what to do and would love some advice if anyone has time. Am in so much pa...
12 Replies1 Like
Acute back pain
pascalelupus4 days ago
Hope u all ok. Here in Mauritius winter is already there. I'm suffering from acute upper back pain, can't see it but my daughte...
Mother of a child that died from Lupus
Amy_Mahler4 days ago
I am just entering this site. My daughter died on October 16, 2016 from complications associated from Lupus.
I am trying to live day by day ...
14 Replies4 Likes
Finally out of hospital
LSurtees4 days ago
Firstly, thank you for all your kind words and thoughts. I haven't been on for a while and just being discharged from hospital after 4...
4 Replies3 Likes
From DLA awarded indefinitely to 8 points in total on new PIP assement
Butterflies-234 days ago
I didn't appear in pain or fatigued. How do you look tired ? I looked well ain't that the case with LUPUS.
Apparently I communicated adequat...
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