Azathioprine! Hints and tips!
Kelihunt414 hours ago
Hi everyone! I'm about to be put on azathioprine after being diagnosed with lupus (7+ years). I have resisted so far but failed to keep my ...
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kiwe4 hours ago
For the past 10 years I was told I had SLE Lupus. Then end of last year after a blood test I was now told I had Rheumatoid arthritis . anyb...
Persistent dry cough - clear chest X-ray
Wendy397 hours ago
I've had a persistent dry cough since the start of July approx.
I went to my GP around 20th July and she said my chest was clea...
New to the forum and wonder if I can pick your brains...
Lula7610 hours ago
Hi there! I'm not going to go into a whole history of ailments as I'm sure you've all heard it all before. However, there are a couple of th...
Ouch My Lips 👄
LauraMk3011 hours ago
Good morning my lovelies,
I haven't posted a picture yet of my lip blister & the poor condition. It's quite embarrassing, but I wanted to sh...
Waiting for ANA results
MariaK7112 hours ago
I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues whic...
Feet on fire
Nickyt7914 hours ago
Hi has anybody else ever experienced sore feet that are swollen and feel like they are burning? My feet are so sore and my skin is peeling t...
alisoncrowthera day ago
Hi I'm new to this site I live in Halifax and just wondering if anyone in Halifax has been diagnosed with lupus and also needs to talk abou...
16 Replies1 Like
Prima2008a day ago
Thank you for letting me join this group
Iam 36 year old female I was diagnosed with Mtcd in Nov 2016 after a long battle with fatigue , joi...
6 Replies4 Likes
Mandypandy1969a day ago
Hi all, I have been on hydroxy for two days. Yesterday and today I have been frozen. Hot water bottle in bed last night and in the day today...
Upper resp infection
jennyall12a day ago
I was sick a few weeks with post nasal drip / tired and then Boom got really sick last Friday - chills etc. It was horrible. I got some anti...
Back and shoulder pain.
Adaha day ago
Has anyone ever gone through what am going through at the moment? Was diagnosed of SLE in July this year. Been on hydroxylcholoroquinne an...
Heartburn and chest pain that just won't go away
Ryanmac84a day ago
Hi all me again .Let me again thank you all for all the support on this forum since I joined the past couple of months .
As the title says I ...
Mandypandy19692 days ago
hiya. I had an inner ear infection which causes vertigo when I was in my early 20's. I was off work a long time. I am wondering if past illn...
Lupus v Thyroid cancer
Sylviamoore422 days ago
Hi there, I am a 50 year old male recently diagnosed with nephrotic lupus SLE. I have nephrotic syndrome which is only settling down from Fe...
Pepysmum2 days ago
There is no community for sarcoidosis or CTD , and as I now have confirmation I do not have Lupus, I am saying goodby to you all. Thank you ...
9 Replies4 Likes
Rach4592 days ago
HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today...
Information about newly diagnosed tests
Tulipano2 days ago
Saw my consultant today. I am newly diagnosed and my esr was highly raised and my ana was negative. She does think I have lupus because of ...
29th driving lesson
LouLamb2 days ago
Picked up from work . Was a relief as I was so tried I don't think I could have walked to the bus stop home .
I just did driving no manoeuvr...
17 Replies4 Likes
LauraMk302 days ago
I've been in bed for a few days, I literally have no energy & feel wiped out.
I spoke to my GP today about my reoccurring blood blister...
12 Replies1 Like
Appeal process again
LouLamb3 days agoPOPULAR
I got my letter on Thursday saying that PIP turned down my mandatory reconsideration . The comments they wrote made me so angry . When I get...
22 Replies2 Likes
Red small pin sized spots on side of tongue that burns
AnnieKhat3 days ago
The soft palate in my mouth have become yellowish and i notice small red pin sized dots on the sides ( not tip) of my tongue. I have frequen...
Diagnosis dilemma what's in a name?
Pepysmum3 days ago
Well today I had my long awaited appointment with a professor at the University College Hospital London. Despite my ANA being raised and ot...
Shaddix293 days ago
I dont have a diagnosis yet but its suspected that I have lupus (first appointment with the hospital in just over a week).. but my question ...
MoyaP3 days ago
I finally see my Rheumatologist on 27th (I've been counting down the days like a child looking forward to Christmas!). I hope that I will ha...
10 Replies3 Likes
Mandypandy19694 days ago
hi. I am just wondering if anyone has woken up to wetness after a night sleep. this is twice it has happened now. embarrassing and worrying....
No concrete diagnosis yet
Dressagequeen4 days ago
I new on here and I am in the process of possibly being diagnosed with lupus. When I was 15 I had a major spinal fusion and ...
6 Replies3 Likes
Tipsy_gypsy4 days ago
I have this rash or itch on my left side. It covers my whole left side and it's around where my bra sits. I dont know what it is. My boyfrie...
Kimbobaggins814 days ago
Does anyone here feel so overwhelmed by everything that is happening that you may not necessarily want to kill yourself (don't want to hurt ...
13 Replies10 Likes
A bad week
Joanne14274 days ago
So this week has been a real tough week for me, tried not to get myself stress out with the lack of sleep and the pain I have been getting.
5 Replies1 Like
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