smveit2 hours ago
Hello, my name is Stephen and I was diagnosed with lupus 5 years ago (I am 38 now) I think I had it for longer, but I couldn't find doctors ...
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Trying something new
growingnuttier3 hours ago
It's been quite a while since I was here. I've been concentrating on getting fit and going back to work. Not been an easy journey. But as...
CatScarborough854 hours ago
I have had a rash for about 7 months now, started on my forearms and then went widespread with it being on abdomenand legs. Each time...
Alison-Brown5 hours ago
Does anybody get a sore throat after talking? I was catching up with an old school friend when I noticed that my throat as getting...
Systemic lupus and laser eye surgery.
Imogen1236 hours ago
Hi, just wondering if anyone had experience of laser eye surgery. I have Systemic lupus and have eye gel for dry eyes twice a day. If anyone...
Emman847 hours ago
Hi all again!
I have another question, I have a large amount of scarring on the top of my back. Is anyone aware of any procedures that can r...
Menapause and ANA
Hidden8 hours ago
I am 54 years old and was diagnosed with lupus was I was 38.After I got my symptoms under control my level remained at 160. Up until last y...
Update On My Dad
Tiras11 hours ago
Dad has been released from the hospital, but, the doctors told us that he has 6 months or less t...
3 Replies3 Likes
Vahid136111 hours ago
Hello guys I'm wondering how do you cover rashes on your face and hands I'm personally using a bit foundation sometimes maybe there is bette...
Healthwatch need your input. Has your council kept you waiting for assessment for aides?
Footygirl11 hours ago
Interesting reading on the disability rights newsletter. Some people nationwide being kept waiting up to a year to be assessed for aides nee...
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Another post about Methotrexate
Hidden12 hours ago
I have an appointment tomorrow at the hospital with the rheumatology nurse with the aim that I start taking Methotrexate are there any quest...
1 Reply1 Like
Hidden13 hours ago
I was put on Methotrexate about 4-5 months ago and the side effects came on slowly. It is now making me feel completely drained, the fatigue...
8 Replies2 Likes
Swollen tongue ?
tremarel14 hours ago
Morning lupie friends . Anyone had swollen tongue? Last two days my toungue has been so swollen & stiff to move. Just booked to see gp this ...
It never ends....
strawberrylips15 hours ago
Anyone affected by dizzyness, I've had it on and off for years, feels like I'm walking on a ship today..
Your experiences would be welcomed
12 Replies1 Like
Lupus rash questión
Mystikraynea day ago
This hurts badly. Worst one yet.... what if anything can i do?
7 Replies1 Like
Pregnancy and getting pregnant
Leanne21bulla day ago
Just wondering what happens now with getting pregnant and what happens during pregnancy with lupus and mixed Connective tissue disease... Me...
3 Replies1 Like
No time or energy to argue with people I shouldn't feel bad but I do why? I deleted my sister-in-law on Facebook
Julietsmombless2015a day ago
Okay I know the headline of that sounds really bad I have been planning a wedding for the past year now I had asked my sister-in-law to be a...
Took A Tumble
Hiddena day ago
Last night my knee gave way as I was turning. It knocked me completely off balance and, this time, I hit the deck. Thankfully I was at home ...
6 Replies1 Like
Red skin and fatigue from sitting in shade .......
MagsaTrinia day ago
Popped out for lunch with hubby.... I had on factor 50 and was sat under umbrella for half an hour.......... Became very fatigued, could har...
8 Replies1 Like
Life is too short enjoy it 😜
Vahid1361a day ago
Hi my name is Vahid from Iran .living in london for 10 years I'm suffering a lupus for 20 years and I would like to meet a new people who ha...
6 Replies5 Likes
Hippykara day ago
My immunoglobulins were checked recently and they all came back as normal/at the low end of the scale. Does this mean that I don't have lup...
ESA disaster.. Please help..
Silvermysta day ago
I have not been on here for a while but was hoping for a little advice from those of you that have been through the process of appeali...
mrleroyjacksonjr2 days ago
I was diagnosed almost 3 weeks ago. I think I may have been misdiagnosed for the past 5 years. I have been told I have gout beca...
10 Replies3 Likes
New on SLE I need to know more
Riahko1232 days ago
NEW ON SLE AND I NEED HELP
Thought this wording was spot on xxx
mum-two2 days ago
These words are so true for all of us.It's hard being strong and putting on a brave face everyday,but that's just what we all do carry on re...
7 Replies18 Likes
seanto2 days ago
just like the title states does anyone else get nauseas because of the heat. I first started having it towards the end of last year when I w...
LouLamb2 days ago
Me and my cousin have decided we will go to America together hopefully in our twenties . She's only 9 months younger than me anyway.
I just w...
Advice please: Prepping for Gyn onc colposcopy
Hidden2 days agoPOPULAR
Hello all...just now a letter arrived with a date in colposcopy clinic. am not new to colposcopies, having had 1 per year since 2011 (due t...
35 Replies2 Likes
Rash - photosensitivity? + really angry!!
stacieann19892 days ago
Hey guys, I posted about a month back about a rash I got on my thigh, the picture above is what is extended to through the night. I'm wonder...
Doctor-speak: help, please...
Hidden3 days agoPOPULAR
Yesterday yet another P&C envelope in the post
So....when a consultant starts a report letter with:
"I reviewed this pleasant lady in clinic ...
49 Replies4 Likes
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