Douny4 hours ago
Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 ...
1 Reply2 Likes
A variety of experiences, perspectives, and perhaps success with alternative treatments for Lupus
Jennwest4 hours ago
I was diagnosed with Lupus in October. My Kidney's are constantly attacked, headaches that just don't go away for sometimes days, bruises ou...
Extremely itchy small bumps
hilaryamandaa8 hours ago
A few days ago i noticed these very itchy small bumps on my chest and back. I just go home from travelling in south east asia (Cambodia and ...
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LupieGirl91721 hours ago
I'm a high school student, I frequently have depression from SLE and memory confusion. With this it is hard for me to focus on my work, whi...
3 Replies3 Likes
Hi everyone , Looking for support group for lupus , Sjögren’s or Arthritis 🌸
Mellisa1066a day ago
Hi everyone 🤗
Can anyone tell me if there is a support group for either lupus, sjogrens or Arthritis in either Andover, Salisbury or in bet...
Radio programme on the microbiome
whisperita day ago
BBC Radio 4 programme today, focusing on research on the gut microbiome, how it interacts with the brain and autonomic system. As usual, it'...
1 Reply7 Likes
Newly diagnosed with Auto immune rheumatic disease
Lin007a day ago
Hi All, Diagnosed 5 months ago, I have positive ANCA test and my symptoms mirror those of lupus. Signed off work for 4 months, am practicall...
12 Replies1 Like
Reaction to Naproxen
HeKea day ago
Has anyone had a crazy reaction to Naproxen. My poor husband said I put my head in my hands and groaned for about 30 seconds. I was then c...
Saying hello and would like your thoughts.
JimCWalkera day ago
Hello everyone, I've been diagnosed with SLE about 4 weeks ago. It's been quite a journey to get to this diagnosis.
I'm a nurse and live in t...
9 Replies2 Likes
I have sle lupus
Vanessaperez102214a day ago
I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain t...
Lupus Flare after 15 years of remission
Kay2006a day ago
Hi, so I was diagnosed with sle when I was 8, and its has now been about 22 years. Lupus first attacked my kidneys very early and I recieved...
Hair loss with hydroxychloroquine?
AmyG65002 days ago
Does anyone know how likely it is for hydroxychloroquine to cause hair loss?
I’ve struggled with hair loss before (telogen effluvium) but it ...
8 Replies1 Like
Any non-prescription meds for pain that anyone can suggest?
LupieGirl9172 days ago
With SLE, extreme pain is very common, and very irritating to not be able to focus on life with. I've tried Canabis oils and such but the pa...
10 Replies1 Like
Rapid decline in ability - do I go to my GP?
eescvc2 days ago
I've posted here quite a lot since my UCTD diagnosis. So thanks for all the support. Now I have another question.
I had my last rheumato...
Methotrexate + hair loss
Sin1233 days ago
Hi All, I’ve been on mthx. 15mg weekly for the past six weeks and really started to notice my hair thinning quite dramatically. Are there an...
Pain in silly places
kt113 days ago
I'm feeling rough, very tired. Does anyone experience pain in random places? I've got pain in my calves, under my shoulder blades and in m...
Lupus and Sun/Holiday
MsTMP3 days ago
Are there any tips for dealing with Lupus in the sun. My symptoms are generally mild. Mainly stiffness and joint pains and fatigue -...
emma32xx3 days ago
Feel so low right now have so much going on at the moment not sure how to cope how do others deal with feeling like this I'm litterally a...
11 Replies1 Like
One of those days, when my concentration is non existent and any noise is hurting my head and ears!!!! On top of an active 4 year old
Lisalou193 days ago
Just one of them days, where fatigue is so bad but unable to sleep!!!! I can’t focus and my little boy is simply playing with toys, the noi...
2 Replies4 Likes
copdber3 days ago
Good morning all
I'm in hospital since Friday on a 200mg steroid infusion every 6 hours try get my cough variant asthma under control if my ...
Hollydebs4 days ago
Due to all my issues last year and beginning of this year I was overdue for my Rheumatology appointment so getting my ducks in a row I made...
5 Replies1 Like
HeKe4 days ago
Does anyone ever feel like their insides are wobbling like jelly? My head is ok, but I'm wobbling internally from the neck down.
10 Replies3 Likes
What a month!!
CarolMcl4 days agoPOPULAR
Feeling extremely weak and low. Got a call about a month ago that i was to go in for a minor op, on the day of it I had a temp of 38.2 but t...
22 Replies1 Like
Lupus and papelladem
Piperic4 days ago
Could any one answer my question. Are papelladem and lupus linked. Since having a papelladem my health has got worse.problems with headach...
Overdoing it.....will I ever learn!!??!!!
Sara_A4 days agoPOPULAR
So yesterday I felt ok to do a little bit of gardening/weeding, nothing mega strenuous as I have to sit on the floor to do it anyway.
23 Replies13 Likes
Rash on hands
12derby5 days ago
I have lupus rash, ring finger is swollen looks infected last couple of days feel heat coming from it the whole hand is hurting like fibro p...
Methotrexate Injections 🙈
tweetyburd5 days ago
Hi everyone, I’m new here 👋 looking for some advice/words of wisdom regarding methotrexate injections 💉 I’ve been self administrating for ...
40 MILE CHALLENGE
JohnnyBgood5 days ago
In November it is 40 years since my brother died (aged 19) of Lupus. To mark his memory I have set up a just giving page for a series of run...
Anyone else with SLE have painful legs after waxing?
Joanna0985 days ago
I came off Methotrexate (under rheumatologist) a few months ago and thought I'd try waxing again.
Last night I did my lower legs and today, ...
Malar rash? Much needed guidance please
Staywildmoonchild5 days ago
Good afternoon everyone.
I will write a post once ive navigated tgis site fully explaining a bit more about myself. But at the moment im in ...
9 Replies1 Like
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