Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,725 members • 28,086 posts

All posts for November 2014

Leflunomide

Hi my rheumy has decided not to start methotrexate injections but to stay on 25mg weekly and add in 10mg daily of Leflunomide to see if it helps my symptoms....

Hi my rheumy has decided not to start methotrexate injections but to stay on 25m...

kate47

•9 years ago

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Lichen planus overlap SLE

Have recently seen my GP & dentist about a particularly nasty infected bit of gum that developed from one of my life long characteristic recurring areas of...

Have recently seen my GP & dentist about a particularly nasty infected bit of gu...

Barnclown

•9 years ago

2 Replies

Facial/Chin numbness

Hi all, I was diagnosed with Lupus 7 years ago. Apart from a few mild flares (pains in hands) I had nothing of real significance until 3 yrs ago. I suffered...

Hi all, I was diagnosed with Lupus 7 years ago. Apart from a few mild flares (p...

Aster1

•9 years ago

6 Replies

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Pregnant with lupus

Hi I found out three weeks ago I suffer from lupus and now I'm pregnant. The doctor at the hospital gave me hydroxchroquine..is it safe to have this drug...

Hi I found out three weeks ago I suffer from lupus and now I'm pregnant. The doc...

ramada

•9 years ago

24 Replies

i need ur advice

hello all i need ur advice. i just got a vulntary job at my hospital. it is once a week for 4hrs. thats very good for me cos i ve been off work for 3yrs. i was...

hello all i need ur advice. i just got a vulntary job at my hospital. it is once...

ijeasike

•9 years ago

5 Replies

Sharp pain in left rib cage

Well, this is a first. Scared the crap out of me. I was ready to go to the hospital if the pain did not subside. Granted this was after eating a very plentiful...

Well, this is a first. Scared the crap out of me. I was ready to go to the hospi...

Natura

•9 years ago

20 Replies

The Expert Patient's Programme

What is the Expert Patients Programme? The Expert Patients Programme (EPP) is a self-management programme designed for people living with chronic...

What is the Expert Patients Programme? The Expert Patients Programme (EPP) is a ...

Paul_Howard

Partner•9 years ago

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Post Op

Hi All, Had my skin graft on Wednesday and all appears to be going well with little pain from the graft or donor site.. I do think the surgery has brought on...

Hi All, Had my skin graft on Wednesday and all appears to be going well with li...

Debbiemay

•9 years ago

1 Reply

Not diagnosed with lupus, but awaiting blood results...

Hi there, I am new to the site and have been diagnosed with a few autoimmune disorders for about a year and a half ( RA, Raynauds, Sjogrens, fibro) I have just...

Hi there, I am new to the site and have been diagnosed with a few autoimmune dis...

sparkle247

•9 years ago

6 Replies

Could this be fibromyalgia

Hi, I am a 47 year old active female with longstanding SLE/UCTD causing mainly joint swelling, leucopenia & Raynauds. In the past year or so, I have developed...

Hi, I am a 47 year old active female with longstanding SLE/UCTD causing mainly j...

Fennella02

•9 years ago

2 Replies

SLE and sclerosis

My husband precious was diagnosed with Rheiters syndrome. It had been in remission since 2004 . Just this month he was diagnosed with SLE, sclerosis and...

My husband precious was diagnosed with Rheiters syndrome. It had been in remissi...

Predden2003

•9 years ago

2 Replies

Flare with cycle

Do any other women notice a lupus flare of symptoms associated with your menstrual cycle? My cycle is happening more often, possibly because I am...

Do any other women notice a lupus flare of symptoms associated with your menstru...

Roho1010

•9 years ago

8 Replies

Diagnosing auto-immune conditions

Week in and week out, sometimes even daily, this and other boards and blogs associated with auto-immune conditions feature posts from sufferers and their...

Week in and week out, sometimes even daily, this and other boards and blogs asso...

Hidden

•9 years ago

8 Replies

Waiting on Diagnosis

I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including...

I have recently been to Rheumatology after being referred by my GP following a ...

mctag44

•9 years ago

5 Replies

Painful knees and thigh muscles

Hi everyone I was diagnosed with lupus 3 years ago, but for the last year I've been suffering with really painful knees and thighs, lately this has been really...

Hi everyone I was diagnosed with lupus 3 years ago, but for the last year I've b...

Hidden

•9 years ago

6 Replies

Fatigue with Lupus.

I have recently mentioned at the doctors about my tiredness and if there is a possibility that it's linked with my Lupus. I've had tests done and nothing has...

I have recently mentioned at the doctors about my tiredness and if there is a po...

Jessicaa19

•9 years ago

10 Replies

Early Menopause

Hi all Just wondering how many of you have gone through or are going through an early menopause ?. As I am going through it myself I also would like to know...

Hi all Just wondering how many of you have gone through or are going through an ...

misty14

•9 years ago

15 Replies

Lupus mimic other medical condition.

Hi, I've had Lupus for over twenty years, I would like to ask two question. About 5 years ago my consultant thought my Lupus was mimicking Ataxia and now it's...

Hi, I've had Lupus for over twenty years, I would like to ask two question. Abou...

tenn

•9 years ago

6 Replies

I need an indoor hobby

Any ideas? I can't get out much coz am single mum. Get tired anyway so can't do too much. Anyone know of any good ideas for a hobby at home?? thinking of...

Any ideas? I can't get out much coz am single mum. Get tired anyway so can't do ...

Hidden

•9 years ago

16 Replies

Fibromyalgia

Hi everyone, iv been diagnosed with fibromyalgia in January this year, this is my first time writing on this site, but I am just fed up with the constant...

Hi everyone, iv been diagnosed with fibromyalgia in January this year, this is m...

Lesleyjay64

•9 years ago

3 Replies

Vitamin D

Hi all, I just wanted to share a wee success story for all of those photosensitive people out there, in case it helps anyone. I was very Vit D deficient 3...

Hi all, I just wanted to share a wee success story for all of those photosensit...

Lucy74

•9 years ago

15 Replies

Lupus & MS

Has anyone run into this before, cause I haven't...but gosh it fits with my experience (way before my version of lupus was recognised & systemically treated,...

Has anyone run into this before, cause I haven't...but gosh it fits with my expe...

Barnclown

•9 years ago

24 Replies

Lupas results??help please

Hi I have ankylosing spondylitis which is a autoimmune disease. Also fibromyalgia and rayneuds disease. I've been having signs of lupas which are headaches or...

Hi I have ankylosing spondylitis which is a autoimmune disease. Also fibromyalgi...

Katrinapidd

•9 years ago

3 Replies

Ear/nose/throat

Hi everyone, I have had to give up singing because of constant problems with mucus (yuk) in my throat. I have now developed tinnitus as well. my doctor...

Hi everyone, I have had to give up singing because of constant problems with muc...

mainlyconfused

•9 years ago

3 Replies

Do you feel you have your lupus under control? Would you like to share your story in Good Housekeeping Magazine?

Good Housekeeping magazine is looking for women in their 30s, 40s, 50s and 60s, for a feature called ‘How I learned to love my body’.They are particular...

Good Housekeeping magazine is looking for women in their 30s, 40s, 50s and 60s, ...

Paul_Howard

Partner•9 years ago

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Gluten and Lupus

Hi fellow Lupies I have recently looked at a study that has been going on in the States, where it seems that there seems to be a lot more interest in diet and...

Hi fellow Lupies I have recently looked at a study that has been going on in the...

madmagz

•9 years ago

15 Replies

Flu jab ??

Hi all really unsure if I should grt the flu jab or not.. A lot of ppl say they get very sick after it, but should I take the risk an just go 4 up it? Feel...

Hi all really unsure if I should grt the flu jab or not.. A lot of ppl say they ...

Ruth_lderry

•9 years ago

12 Replies

The Reith Lectures

Heroic brilliant Dr Atul Gawande is on BBC 4 radio right now giving his first Reith Lecture on why doctors fail Listen if you can...and catch his further 3...

Heroic brilliant Dr Atul Gawande is on BBC 4 radio right now giving his first Re...

Barnclown

•9 years ago

11 Replies

Amitriptyline for neuralgia

I've developed trigeminal neuralgia which is (literally) a real pain - not sure if its part of the lupus or just a coincidence but ... I'm on...

I've developed trigeminal neuralgia which is (literally) a real pain - not sure ...

Heatheric

•9 years ago

11 Replies

Best Light Bulbs for LUPUS?

Please, in a nutshell, what are the best light bulbs for very light sensitive LUPUS? and where can I buy them? Been wading through endless posts and am...

Please, in a nutshell, what are the best light bulbs for very light sensitive L...

Roromatic

•9 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2014

Leflunomide

Lichen planus overlap SLE

Facial/Chin numbness

Pregnant with lupus

i need ur advice

Sharp pain in left rib cage

The Expert Patient's Programme

Post Op

Not diagnosed with lupus, but awaiting blood results...

Could this be fibromyalgia

SLE and sclerosis

Flare with cycle

Diagnosing auto-immune conditions

Waiting on Diagnosis

Painful knees and thigh muscles

Fatigue with Lupus.

Early Menopause

Lupus mimic other medical condition.

I need an indoor hobby

Fibromyalgia

Vitamin D

Lupus & MS

Lupas results??help please

Ear/nose/throat

Do you feel you have your lupus under control? Would you like to share your story in Good Housekeeping Magazine?

Gluten and Lupus

Flu jab ??

The Reith Lectures

Amitriptyline for neuralgia

Best Light Bulbs for LUPUS?

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