Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,072 posts

All posts for May 2014

I am on Warfarin since March. I used to take a lot of vitamins before the warfarin. I hear people talking about the value of Co Q 10.

What supplements are safe to take with Warfarin without affecting our INR (have APS).

What supplements are safe to take with Warfarin without affecting our INR (have ...

loretta1106

•10 years ago

4 Replies

Hello, I have my first Rituxumab infusion in two weeks, will it be ok to go to a family wedding the next week - its 600 miles from home?

I have never posted before but was diagnosed with lupus just a year ago and MCGN secondary to SLE. My kidneys are working at around 19% down from 28% when...

I have never posted before but was diagnosed with lupus just a year ago and MCGN...

cloudym

•10 years ago

3 Replies

How do you find a private Doctor to diagnose you with Lupus or get a 2nd opinion

My 21 year old daughter has been ill for years and has seen a specialist who said she has hypermobility, this does not account for all her other symptoms. And...

My 21 year old daughter has been ill for years and has seen a specialist who sai...

Hidden

•10 years ago

30 Replies

Want to take advantage of all our features? Just log in!

Recently diagnosed looking for some advice please

Hoping someone on here can give me some guidance. I’m 26 and have recently been diagnosed with Lupus, my Rheumatologist has not yet put me on any medication...

Hoping someone on here can give me some guidance. I’m 26 and have recently been...

LoveHopeFaith

•10 years ago

7 Replies

Rituximab questions...

I had the first infusion yesterday & would be interested to hear other peoples experiences. The rheumy said it can take up to 3 months to feel the benefit, is...

I had the first infusion yesterday & would be interested to hear other peoples e...

roobarb

•10 years ago

8 Replies

Has anyone had any kidney problems since being diagnosed with Lupus?

Hello all, I'm freaking out a little since having my diagnoses confirmed. This whole lupus thing is driving me a little insane. Im getting really paranoid...

Hello all, I'm freaking out a little since having my diagnoses confirmed. This w...

kirstyleigh

•10 years ago

21 Replies

Does anyone else suffer alot with colds and chest infections.i have lupus raynards and sorgens .

I had a cold virus two months ago which resulted in me cracking a bone under my rib cage with coughing .then got chest infection .which turned into shingles ....

I had a cold virus two months ago which resulted in me cracking a bone under my ...

barbdockeray

•10 years ago

4 Replies

Hydroxychloroquine and fatigue

Hey everyone, im on 200mg hydroxy and wondered if it was increased would it help with fatigue, also on mycophenalate lyrica mepacrine palexia sertraline vit d...

Hey everyone, im on 200mg hydroxy and wondered if it was increased would it help...

biddy75

•10 years ago

Be the first to reply

Does this mean anything for my daughter?

Can anyone help with these results please. my 13 yr old daughter has low iron, low blood pressure and many symptoms of lupus Inc facial rash which Drs ignore....

Can anyone help with these results please. my 13 yr old daughter has low iron, l...

roubyroo

•10 years ago

14 Replies

What does speckled and 1.40 I'm still waiting for more results off my ana doctor has referred me to a rheumatologist.

Went to see my doctor today and he got a shock off the way my malar rash was could you guys give me some advice on my AnA results they say it's speckled and...

Went to see my doctor today and he got a shock off the way my malar rash was cou...

reeneroo

•10 years ago

1 Reply

Toothpaste makes me cough/gag. Does anyone else have this? If so how have you managed it.

I do get acid reflux and it may all be related to that as it been something that has become more noticeable over time. When I brush my teeth its often followed...

I do get acid reflux and it may all be related to that as it been something that...

overnighthearingloss

•10 years ago

17 Replies

Wheelchair

Are any of you using a wheelchair because of the Lupus my OT referred me for one as I have trouble walking and falling all the time

Are any of you using a wheelchair because of the Lupus my OT referred me for one...

ebril

•10 years ago

10 Replies

Has anyone been diagnosed with shrinking lung syndrome? Need info on treatments etc. want to understand it more. Recently diagnosed.

Leanonme68

•10 years ago

4 Replies

is lupus and lupus anticoaglant the same

i was told 5 yrs ago i have lupus anticoaglant and was fast tract on warfarin for life due to having clot in right subclavain artery i dont take anything for...

i was told 5 yrs ago i have lupus anticoaglant and was fast tract on warfarin fo...

valley23055

•10 years ago

8 Replies

Rheumatologist

Can any one recommended a rheumatologist in north east as not happy with mine as he don't seem have any interest about how much pain I'm in

Can any one recommended a rheumatologist in north east as not happy with mine as...

debby197

•10 years ago

7 Replies

Has anyone lost their baby at 21 weeks gestation because of lupus? Any advice anyone could give me would be greatly appreciated.

I hate to ask this question, but at the beginning of this year i was happily pregnant, i had my 20 week scan and found out we were having a little boy. But the...

I hate to ask this question, but at the beginning of this year i was happily pre...

kirstyleigh

•10 years ago

14 Replies

I have been on Hydroxychloriquine for more than 6 months now. How long does it take to reduce the fatigue?

I haven't been diagnosed with lupus as yet but was put on Hydroxychloriquine specifically for severe joint pain. I have been on them for around 6-7 months and...

I haven't been diagnosed with lupus as yet but was put on Hydroxychloriquine spe...

Whatamess2

•10 years ago

10 Replies

Calf cramping at night

I know we have discussed this before about increasing potassium because of calf cramping, but I have some issues with my kidneys where I have read that...

I know we have discussed this before about increasing potassium because of calf ...

Natura

•10 years ago

14 Replies

I started getting a rash I went to the doctor and he gave me eumovate steroid cream I've woken up with the rash 100 times worse.

It's on my armpit upper arm and chest. It's burning and itching and causing a lot of pain

It's on my armpit upper arm and chest. It's burning and itching and causing a lo...

London-baby27

•10 years ago

5 Replies

My Ana is 1:640 all other auto immune and skin biopsys are negative so do I have lupus or not.

The rash appears on my legs and arms and is extremely itchy.

Mildred55

•10 years ago

14 Replies

My original prescription from the rheumatologist was Hydroxychloroquine, my repeat from the pharmacist is quinoric.

The rheumatologist started me on prednisolone and hydroxychloroquine which after a few days of tummy issues I settled well on the hydroxychloroquine. Collected...

The rheumatologist started me on prednisolone and hydroxychloroquine which after...

Pennypug

•10 years ago

13 Replies

Sweating

Does anyone have excessive sweating at night because of lupus,

biddy75

•10 years ago

22 Replies

Right arm and right breast tingling and ribs tingling

I'm 16 years old male btw, So it all started like 5 months ago when my spine started to make click noises like almost everytime i breath in and it still...

I'm 16 years old male btw, So it all started like 5 months ago when my spine sta...

Yendi

•10 years ago

3 Replies

lupus and looking like you have aged quickly?

OK.. Have any of you older ladies, new to lupus etc...Do you think your looks have aged faster all of a sudden ,since diagnoses? I swear I look in the mirror...

OK.. Have any of you older ladies, new to lupus etc...Do you think your looks ha...

dgleds

•10 years ago

36 Replies

in agony

I knwo I probably overdone htings today but it was too nice to be indoors doing chores so spent time in the garden -tidying up and replanting stuff.that was...

I knwo I probably overdone htings today but it was too nice to be indoors doing ...

anbuma

•10 years ago

6 Replies

Is this fatigue or am a lazy like my partner says?

Hi guys like a said in a previous question that I'm getting tested for lupus.. when a read about lupus and find that people mention fatigue I'm not sure if...

Hi guys like a said in a previous question that I'm getting tested for lupus.. w...

reeneroo

•10 years ago

22 Replies

Trying not to get upset

Doing yoga this morning....could only do 20 mins. I use to be able to do the entire 45mins. I couldn't lie down on my stomach because of the balloon feeling...

Doing yoga this morning....could only do 20 mins. I use to be able to do the ent...

Natura

•10 years ago

4 Replies

Sunshine

Hi all I have worked and got pleasure from being in the sun,now if I am in the sun I dehydrate and feel rough.anybody any ideas? Thanks. alan

Hi all I have worked and got pleasure from being in the sun,now if I am in the s...

Alan55

•10 years ago

11 Replies

Primary Sjogren's Syndrome

Is there anybody on meds for it, eg Plaquenil? Or any recommendations for a particular med? I'm off to see my GP later in the week because I'm fed up of the...

Is there anybody on meds for it, eg Plaquenil? Or any recommendations for a par...

sazzyb

•10 years ago

8 Replies

Does anyone suffer with constant sore throats especially when your neck is exposed in the early evening? Is this a lupus thing?

On the rare occasion if I'm out in the day/evening for instance say between 6pm - 9pm I can guarantee that I will wake up with a sore throat like razor blades....

On the rare occasion if I'm out in the day/evening for instance say between 6pm ...

kitkat74

•10 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2014

I am on Warfarin since March. I used to take a lot of vitamins before the warfarin. I hear people talking about the value of Co Q 10.

Hello, I have my first Rituxumab infusion in two weeks, will it be ok to go to a family wedding the next week - its 600 miles from home?

How do you find a private Doctor to diagnose you with Lupus or get a 2nd opinion

Recently diagnosed looking for some advice please

Rituximab questions...

Has anyone had any kidney problems since being diagnosed with Lupus?

Does anyone else suffer alot with colds and chest infections.i have lupus raynards and sorgens .

Hydroxychloroquine and fatigue

Does this mean anything for my daughter?

What does speckled and 1.40 I'm still waiting for more results off my ana doctor has referred me to a rheumatologist.

Toothpaste makes me cough/gag. Does anyone else have this? If so how have you managed it.

Wheelchair

Has anyone been diagnosed with shrinking lung syndrome? Need info on treatments etc. want to understand it more. Recently diagnosed.

is lupus and lupus anticoaglant the same

Rheumatologist

Has anyone lost their baby at 21 weeks gestation because of lupus? Any advice anyone could give me would be greatly appreciated.

I have been on Hydroxychloriquine for more than 6 months now. How long does it take to reduce the fatigue?

Calf cramping at night

I started getting a rash I went to the doctor and he gave me eumovate steroid cream I've woken up with the rash 100 times worse.

My Ana is 1:640 all other auto immune and skin biopsys are negative so do I have lupus or not.

My original prescription from the rheumatologist was Hydroxychloroquine, my repeat from the pharmacist is quinoric.

Sweating

Right arm and right breast tingling and ribs tingling

lupus and looking like you have aged quickly?

in agony

Is this fatigue or am a lazy like my partner says?

Trying not to get upset

Sunshine

Primary Sjogren's Syndrome

Does anyone suffer with constant sore throats especially when your neck is exposed in the early evening? Is this a lupus thing?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive