Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,715 members • 28,081 posts

All posts for April 2015

Why's my faces redder on the lupus meds?????

Find can't sit in sun no more etheir..feel xxxxx.....crap wake up being sick!!!.my face is worse !!!my life's gone ..went gp.who's lovely lucky..she said not...

Find can't sit in sun no more etheir..feel xxxxx.....crap wake up being sick!!!....

louiseamos

•9 years ago

12 Replies

UCTD and Lupus relationship.

Having had a clear diagnosis of UCTD, I feel very much in the dark as to what I can ask for and what to tell people. Even my GP doesn't know what this is...and...

Having had a clear diagnosis of UCTD, I feel very much in the dark as to what I ...

Musicteach

•9 years ago

18 Replies

Increase in Carbamaprine, waking up with hangover

Gp has increased my medication to 2 x 100mg at night instead of 1 x 100mg and I am waking up with a hangover, nearly a week in now is this normal. It is to...

Gp has increased my medication to 2 x 100mg at night instead of 1 x 100mg and I...

Gymbabe

•9 years ago

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Mouth ulcers!!

Does anyone have any advice on how to treat Mouth ulcers?😲 Tried difflam, bonjela and toothpaste! Had steroid injection 3 weeks ago but they keep appearing...

Does anyone have any advice on how to treat Mouth ulcers?😲 Tried difflam, bonj...

chandlermandy

•9 years ago

30 Replies

Sore swollen salivary glands, pain under the chin, painful bottom teeth

I have the above and as well as very hot and swollen cheeks, pain radiates into ears. This keeps coming and going and pain is getting worse. I have LSE and...

I have the above and as well as very hot and swollen cheeks, pain radiates into ...

Petrof

•9 years ago

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Steroid side effects

Hi I am hoping someone might shed some light on some troublesome side effects i am having. I have been on pred since new year, varying doses from 20mg down to...

Hi I am hoping someone might shed some light on some troublesome side effects i ...

tjperfick

•9 years ago

9 Replies

Hydroxychloroquine

I just started on Hydroxchloroquine 200mg twice a day. I have only been on it for two days but I feel worse, I was already having problems with fatigue and...

I just started on Hydroxchloroquine 200mg twice a day. I have only been on it fo...

Poohbear3053

•9 years ago

15 Replies

Just been diagnosed and overwhelmed

Hi, I've just been told I have lupus . Feeling very overwhelmed , I have seen the dermatologist who has taken a biopsy due to the rash I get, also I have...

Hi, I've just been told I have lupus . Feeling very overwhelmed , I have seen th...

SammJ6

•9 years ago

12 Replies

NO PIP

Well got my brown envelope to day with a big fat NO , I got 0pionts for everything so therefore not sick at all. I would like them to come and see me in the...

Well got my brown envelope to day with a big fat NO , I got 0pionts for everythi...

Limerick5

•9 years ago

12 Replies

Quinoric side effects?

Been taking quinoric for 6 weeks,had 2 heart arrythmia coming up on BP machine...never had this before...ever..is it the tablets?

Been taking quinoric for 6 weeks,had 2 heart arrythmia coming up on BP machine.....

Hidden

•9 years ago

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what meds can I go on

I have been on anti inflammatory meds for 25 yrs, they have finally made my liver fatty .had to come off them liver is getting better so its been caused my the...

I have been on anti inflammatory meds for 25 yrs, they have finally made my live...

ulllass

•9 years ago

3 Replies

Painful Red Lumps

Hello everyone I have been getting painful red lumps appearing on the sides of my fingers. I have never had them before and wonder what could be causing......

Hello everyone I have been getting painful red lumps appearing on the sides of m...

misty14

•9 years ago

13 Replies

Anti-dsDNA numbers

Can anyone tell me what their Anti-dsDNA numbers were at when diagnosed? I've had a positive ANA with two positive Anti-dsDNA until my last round of blood...

Can anyone tell me what their Anti-dsDNA numbers were at when diagnosed? I've ha...

CMP027

•9 years ago

8 Replies

Hydrocloxychlorahide

I have been taken 200mg of this a day for only 2 weeks,plus 5mg prednisolone,if I doubled up the hydrochloxychoraide,would it kick in more and help with...

I have been taken 200mg of this a day for only 2 weeks,plus 5mg prednisolone,if ...

Jeffscott69

•9 years ago

10 Replies

Constant sinus infections and loose toenails

Does anyone with connective tissue disease and lupus have constant sinus infections,iv had 4 ops to clear them,constantly on doxycycline antibiotic,prob to get...

Does anyone with connective tissue disease and lupus have constant sinus infecti...

Jeffscott69

•9 years ago

6 Replies

Ross

Last week you voiced difficulties you were having with the so called cure for Lupus. This referred to the Florida study on mice. It used a medication already...

Last week you voiced difficulties you were having with the so called cure for Lu...

Fighting

•9 years ago

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Got my referral to Leeds

My Gp said yes to referral to Leeds, yeah!! Any ideas how long it should take until I'm seen? I have a Dx of UDCTD at the mo but I think it's leading towards...

My Gp said yes to referral to Leeds, yeah!! Any ideas how long it should take un...

Gymbabe

•9 years ago

7 Replies

Northern Ireland Lupus Group AGM

Hi everyone, just wanted to let anyone living in Northern Ireland know that the support group is having their AGM on Thursday 7th May at 7.30pm in the...

Hi everyone, just wanted to let anyone living in Northern Ireland know that the ...

Bronagh2015

•9 years ago

3 Replies

Has anyone also got a diagnosis of POTS?

Hello All, I have recently been diagnosed with joint hypermobility syndrome with associated pots (postural orthostatic tachycardia syndrome). I would be...

Hello All, I have recently been diagnosed with joint hypermobility syndrome with...

Galaxy2

•9 years ago

6 Replies

Swallowing to much

Hi everyone. I don't know if anyone can help but ill try. twice this past week I have swallowing issues. I have sjorens so most of the time my mouth is dry,but...

Hi everyone. I don't know if anyone can help but ill try. twice this past week I...

Snowdragon

•9 years ago

7 Replies

Work

Hi folks wish me luck have a meeting with the boss tomorrow about dropping a day at work .I asked for a Friday due to the fatigue but they offered a Monday...

Hi folks wish me luck have a meeting with the boss tomorrow about dropping a day...

barbdockeray

•9 years ago

13 Replies

vit d

does anyone else have a problem with low vit d mine very low 0.65 have go back again only went last week. going round in circles.

does anyone else have a problem with low vit d mine very low 0.65 have go back ...

tracyxx

•9 years ago

9 Replies

Hi, I want to put in a claim for a blue badge for my car.

I have increasing problems with mobility due to breathlessness, rapid sometimes erratic heart rate on exercise, painful hip joints, fatigue, then clumsiness....

I have increasing problems with mobility due to breathlessness, rapid sometimes ...

MandaM

•9 years ago

18 Replies

Esa medical

I had my medical all went well it took four weeks for reply a letter and it said on support group after all the worry all that happened the girl said I will...

I had my medical all went well it took four weeks for reply a letter and it said...

spaghettie

•9 years ago

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burning knees?

hi! Has anyone ever woken up with burning knees?...No pain...just like heat inside my knees...

hi! Has anyone ever woken up with burning knees?...No pain...just like heat insi...

dgleds

•9 years ago

20 Replies

London marathon

Good luck to Paul tomorrow and everyone else who is running the marathon. I won't be there but will look out for a wolf on the telly!

Good luck to Paul tomorrow and everyone else who is running the marathon. I won'...

Chris21

•9 years ago

8 Replies

Sun Protective Clothing

Has anyone managed to find reasonably priced sun protective clothing? I'm particularly keen to find suitably protective gloves at less than £50 & a similarly...

Has anyone managed to find reasonably priced sun protective clothing? I'm partic...

MrsNewfy

•9 years ago

16 Replies

Rhupus anyone?

After posting here last week and having some truly remarkable support responses, I visited my rhumatologist. Right away she stated she had been considering my...

After posting here last week and having some truly remarkable support responses,...

candyellie

•9 years ago

6 Replies

Prednisolne

Hi I have lupus with fibrosis of the lungs. I've been on prednisolne for 3yrs now ,started on 30mg down to 9mg. However having had a lot of chest infection of...

Hi I have lupus with fibrosis of the lungs. I've been on prednisolne for 3yrs no...

DD22

•9 years ago

7 Replies

Hyrroxychloroquine.

Does hydroxychloroquine work and help the fatigue,?,also is it good to take 5mg of prednisolone every day,what effect will this do.?

Does hydroxychloroquine work and help the fatigue,?,also is it good to take 5mg ...

Jeffscott69

•9 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2015

Why's my faces redder on the lupus meds?????

UCTD and Lupus relationship.

Increase in Carbamaprine, waking up with hangover

Mouth ulcers!!

Sore swollen salivary glands, pain under the chin, painful bottom teeth

Steroid side effects

Hydroxychloroquine

Just been diagnosed and overwhelmed

NO PIP

Quinoric side effects?

what meds can I go on

Painful Red Lumps

Anti-dsDNA numbers

Hydrocloxychlorahide

Constant sinus infections and loose toenails

Ross

Got my referral to Leeds

Northern Ireland Lupus Group AGM

Has anyone also got a diagnosis of POTS?

Swallowing to much

Work

vit d

Hi, I want to put in a claim for a blue badge for my car.

Esa medical

burning knees?

London marathon

Sun Protective Clothing

Rhupus anyone?

Prednisolne

Hyrroxychloroquine.

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