Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,323 posts

All posts for July 2024

Swimming

Does anyone find swimming a problem for your skin with lupus? Its a preferred exercise for mental well being, but concerned chlorine will aggregate rash on...

Does anyone find swimming a problem for your skin with lupus? Its a preferred ...

smeackles

•13 hours ago

6 Replies

Compression socks

I have lupus sle and am suffering with swollen ankles and legs, which is making it difficult for me to walk.Last week the community nurse came to my house to...

I have lupus sle and am suffering with swollen ankles and legs, which is making ...

JCZW

•1 day ago

4 Replies

Weird eye symptoms

Hi all, hope you’re all coping as well as you can. I’ve had some weird eye symptoms the last couple of weeks, seeing strange colours and patterns flash before...

Hi all, hope you’re all coping as well as you can. I’ve had some weird eye sympt...

MusicalFurbaby

•1 day ago

17 Replies

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feeling alone

Hello everyone. Very new to all this and feeling very lost and confused. Following initial diagnosis back in January of seronegative RA I have recently been...

Hello everyone. Very new to all this and feeling very lost and confused. Follow...

Tess1971

•2 days ago

10 Replies

Anxiety

Can anyone give any advice on support/methods/management of anxiety, feeling overwhelmed very very easily. My daughter was diagnosed last month with obvious...

Can anyone give any advice on support/methods/management of anxiety, feeling ove...

smeackles

•3 days ago

34 Replies

Rheumatology nurse appointment cancelled

I was supposed to get a phone call from rheumatology nurse today, but it was cancelled. It was to arrange a blood test for this years Alandronic infusion. I...

I was supposed to get a phone call from rheumatology nurse today, but it was can...

Cal66

•3 days ago

4 Replies

Reaction to the sun... again!

Today I have had another reaction to the sun 🌞 I've had one or two previously but today it's just really got to me and I got home from the school run and just...

Today I have had another reaction to the sun 🌞 I've had one or two previously b...

Sara_A

•4 days ago

13 Replies

Nausea and no appetite

My daughter recently diagnosed with Lupus was on 3 weeks of steroids along side hydroxychloroquine. Whilst on steroids started to feel better but symptoms...

My daughter recently diagnosed with Lupus was on 3 weeks of steroids along side ...

smeackles

•4 days ago

10 Replies

Starting methotrexate tips

Hi I posted last week about decision to stop Mycophenolate after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now...

Hi I posted last week about decision to stop Mycophenolate after 12 months and s...

Beau2016

•4 days ago

18 Replies

mouth and genital sores/ulcers ?

please , anyone know if any meds help with mouth 👄 sores and the occasional genital sores / ulcers? I’ve had Lupus for five years now and this is the first...

please , anyone know if any meds help with mouth 👄 sores and the occasional gen...

Littleandperfect

•5 days ago

9 Replies

Diagnosis

Hi 👋 I've just stumbled across this site and thought I would put myself out there in the hope that some of you kind Lupus people could help. I have all the...

Hi 👋 I've just stumbled across this site and thought I would put myself out the...

Beaubeau-0

•6 days ago

3 Replies

Any advice welcome

Hello. Does anyone have advice on the use of estriol cream for vaginal atrophy. Also whilst seeing the urologists they have advised that I should not worry...

Hello. Does anyone have advice on the use of estriol cream for vaginal atrophy. ...

littleeed

•6 days ago

11 Replies

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m photosensitive under overhead lights and unfortunately it’s...

Are any of you going to an Eye hospital for the yearly checks if taking hydroxyc...

lizp28

•6 days ago

16 Replies

10 year old with red patches on her face

Hi all,Just tying to figure out what we're dealing with here using your experience. My daughter, which is 10, started what looks to be a case of impetigo...

Hi all,Just tying to figure out what we're dealing with here using your experien...

euxy103

•6 days ago

4 Replies

Nighttime pulse oxygen

hey amazing people This is bit out there but I know someone in the forum normally comes up trumps 🙂. Last week I had an overnight watch from hospital to...

hey amazing people This is bit out there but I know someone in the forum norma...

Tiggywoos

•7 days ago

16 Replies

trying to get a diagnoses

Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep...

Hello, I was wondering if anyone can offer any advice or support. For years n...

Rubydax

•7 days ago

3 Replies

Biological Therapy - too soon?

Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb...

Hey All I hope everyone is well. This is my first time posting and I’m really ho...

EeBeee

•8 days ago

22 Replies

Sarcoidosis

Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕

Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoi...

whatsit

•8 days ago

Be the first to reply

Confused

Hey all again, sorry I seem to be non stop on here lately. Hope you guys are all as well a can be 💕 So if you have seen my previous posts you'll know these...

Hey all again, sorry I seem to be non stop on here lately. Hope you guys are all...

Haylz2109

•9 days ago

2 Replies

who also has fibromyalgia and then lupus?

I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.

I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it ...

Cazpurple

•9 days ago

9 Replies

Went to my doctor for bruises and now being accused of self harm

Hi sorry needed to vent somewhere and some advice on how to deal with this. So I have written to my rheumatology Dr via email regarding random bruising on my...

Hi sorry needed to vent somewhere and some advice on how to deal with this. So I...

Severancered9

•11 days ago

20 Replies

Potential Lupus diagnosis

Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian...

Hello, I have just joined this site and would be very grateful for any advice gi...

Perfumeflower57

•11 days ago

4 Replies

Another amazing research 💪🏼

🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up...

🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I re...

Naladog

•12 days ago

4 Replies

stopping mycophenolate starting azathropine - any experience/ tips?

hi I’ve been taking my 2g mycophenolate for 12 months and 3g for 4 months, Drs have decided today it’s not working and I need to stop and try azathropine...

hi I’ve been taking my 2g mycophenolate for 12 months and 3g for 4 months, Drs h...

Beau2016

•12 days ago

2 Replies

Advice on appointment

I've just been referred to bath rheumatology. This is a final attempt to gey a diagnoses after first trying in 2006. I've asked them to see if I have...

I've just been referred to bath rheumatology. This is a final attempt to gey a ...

catblue1865

•12 days ago

7 Replies

Lupus and mitral valve prolapse/regurgitation

Hello. I’ve been undergoing some cardiac tests over the past few months. In November I stopped taking propranolol after many years. I had taken it to prevent...

Hello. I’ve been undergoing some cardiac tests over the past few months. In Nove...

Justinealexx

•13 days ago

31 Replies

catching Covid worries

Hi Lupus people! I’m still petrified of catching Covid. I clean all my shopping when it arrives, I wash my hands a lot, I hardly have friends over and go out...

Hi Lupus people! I’m still petrified of catching Covid. I clean all my shopping...

LilyMistri2

•13 days ago

36 Replies

🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋

📚👩🏼‍🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus:...

📚👩🏼‍🔬Professor Yoontae Lee’s team identifies target protein regulating autoi...

Naladog

•14 days ago

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Lupus travel insurance

Hi Not sure if allowed to post... I'm due to take my 1st holiday abroad since being diagnosed later in the year and really worried about having proper travel...

Hi Not sure if allowed to post... I'm due to take my 1st holiday abroad since b...

MOOG144

•14 days ago

5 Replies

Travel Insurance Recommendations!

Hello everyone 🌸 I’ve just booked a family holiday to Spain. Any recommendations on the best travel insurance companies to use for my lupus health issues?...

Hello everyone 🌸 I’ve just booked a family holiday to Spain. Any recommendati...

Shann07

•14 days ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2024

Swimming

Compression socks

Weird eye symptoms

feeling alone

Anxiety

Rheumatology nurse appointment cancelled

Reaction to the sun... again!

Nausea and no appetite

Starting methotrexate tips

mouth and genital sores/ulcers ?

Diagnosis

Any advice welcome

Opthamology appointment re Hydroxychloroquine

10 year old with red patches on her face

Nighttime pulse oxygen

trying to get a diagnoses

Biological Therapy - too soon?

Sarcoidosis

Confused

who also has fibromyalgia and then lupus?

Went to my doctor for bruises and now being accused of self harm

Potential Lupus diagnosis

Another amazing research 💪🏼

stopping mycophenolate starting azathropine - any experience/ tips?

Advice on appointment

Lupus and mitral valve prolapse/regurgitation

catching Covid worries

🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋

Lupus travel insurance

Travel Insurance Recommendations!

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