Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,691 members • 28,072 posts

All posts for April 2017

Got ur luck....read on 😁

I was just lying in bed to take a nap... unfortunately, I have no luck at this point napping or night sleeping. I just said out loud GOD help me, (I have had...

I was just lying in bed to take a nap... unfortunately, I have no luck at this p...

victoriaserwinski

•7 years ago

4 Replies

Nodules on elbows

Greetings all! I have Sjorgrens and discoid lupus. RA test was negative, but I've developed what appears to be RA nodules. The one on right elbow has shrunk....

Greetings all! I have Sjorgrens and discoid lupus. RA test was negative, but I'...

magcass

•7 years ago

5 Replies

Ulcers on tongue only????

Does anyone else get this?!?!? It's driving me crazy.

Loopydroopy

•7 years ago

14 Replies

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Hampshire Information day 6th May

There are still places available for this very informative afternoon that will be held in Winchester Guildhall on Saturday 6th May. Free tickets are still...

There are still places available for this very informative afternoon that will b...

Kevin53

•7 years ago

3 Replies

pain in breast

I have pain on the upper side of left breast extending from outer side to ribs, also from the backside of neck sometimes.itching feeling on breast also fell...

I have pain on the upper side of left breast extending from outer side to ribs, ...

sam1314

•7 years ago

4 Replies

Flare

Hi Has anyone had a flare, but not shown on blood tests ?

loober

•7 years ago

23 Replies

Repeat mouth ulcers

I keep getting the worse mouth ulcers everrrrr my lupus consultants have tried everything they can't grasp why.. even antibiotics, oral gel for the dry mouth...

I keep getting the worse mouth ulcers everrrrr my lupus consultants have tried e...

avionne

•7 years ago

16 Replies

pAIN

Pain Pain Pain It seems that's all I ever feel. Sometimes I feel so exhausted for no apparent reason and I don't feel like doing anything but I know that's...

Pain Pain Pain It seems that's all I ever feel. Sometimes I feel so exhausted...

HARRYTHEFISH1

•7 years ago

1 Reply

Finally started tablet

Tonight I decided to finally start the hydroxy . It's only 1 tablet a day . I was really worried about my eye sight . The only thing that is 100 % correct for...

Tonight I decided to finally start the hydroxy . It's only 1 tablet a day . I w...

LouLamb

•7 years ago

19 Replies

10th Driving Lesson

Had my 10th driving lesson this morning. Just did the independent driving to start with. Did a turn in the road and reversing round a left corner. Just need...

Had my 10th driving lesson this morning. Just did the independent driving to sta...

LouLamb

•7 years ago

3 Replies

Mums B12 aged 85, injections stopped by doctor

Mum is 85, has Pernicious anemia, diagnosed 50+ years ago, positive intrinsic factor reult hence the injections every 12 weeks. The surgery stopped her...

Mum is 85, has Pernicious anemia, diagnosed 50+ years ago, positive intrinsic fa...

nannyjude

•7 years ago

7 Replies

SLE with Myosotis

I've got a copy of my letter from my Rheumy to my GP which confirms SLE and a weak positive for myosotis. Is it normal to have both? I'm worried as to how...

I've got a copy of my letter from my Rheumy to my GP which confirms SLE and a we...

MissFG

•7 years ago

16 Replies

Pain Pain Pain

It seems that's all I ever feel. Sometimes I feel so exhausted for no apparent reason and I don't feel like doing anything but I know that's not a choice I...

It seems that's all I ever feel. Sometimes I feel so exhausted for no apparent ...

goodwitch011070

•7 years ago

6 Replies

It's driving me crazy

Does anyone out there have lesions on there neck? Or have wire loop? I'm serious about it making it crazy I'm so ready to give up ? Now a blood clot in my eye...

Does anyone out there have lesions on there neck? Or have wire loop? I'm serious...

Lilrosie1

•7 years ago

7 Replies

Low mood 😔

So I have been reducing steroids as per my consultants request, I am also an azathioprine. The last few months my wbc has been low and I get told to stop Aza,...

So I have been reducing steroids as per my consultants request, I am also an aza...

imzi

•7 years ago

9 Replies

What to expect-discoid lupus-

Hi, My daughter has recently been diagnosed as having discoid lupus and has symptoms on her scalp. I have had an initial consultation with a local doctor and...

Hi, My daughter has recently been diagnosed as having discoid lupus and has symp...

Tommyw

•7 years ago

22 Replies

Nose sores

Hi I have had sores up my nose for 2 months , dr has prescribed cream which did nothing also a course of antibiotics which also did nothing . Is this lupus...

Hi I have had sores up my nose for 2 months , dr has prescribed cream which did ...

Crawford1961

•7 years ago

3 Replies

Any advise rheumatology won't see me

I've called rheumatology twice about the reaction I've had to hydroxychloroquine and they won't see me keep saying it's just a rash, I've called the doctors...

I've called rheumatology twice about the reaction I've had to hydroxychloroquine...

Jensherg11

•7 years ago

13 Replies

General info

Hi I havnt been diagnosed yet waiting to see a specialist to have a tongue biopsy My symptoms Hair thinning ,sore muscles,fatigue, constant coated white...

Hi I havnt been diagnosed yet waiting to see a specialist to have a tongue biops...

Hezza1971

•7 years ago

2 Replies

A good day ! 😜

Ok , so today I saw the gastro guy ... Had an endoscopy a while back , prior to the skin biopsy results .. Results .. Coeliac screen negative 👍.. Stomach...

Ok , so today I saw the gastro guy ... Had an endoscopy a while back , prior to ...

Cas23

•7 years ago

8 Replies

Thank you for supporting me after unsatisfactory appointment with allergy consultant recently

Hi, I want to say thank you everyone for support. I recently visited an allergy consultant. He was more interested in diagnosing symptoms as, 'all in my...

Hi, I want to say thank you everyone for support. I recently visited an allergy...

webar4780

•7 years ago

10 Replies

Heart bypass and valve replacement

I was in hospital yesterday for an angiogram. Last year during a routine ECG pre cataract surgery, it was evident that I had suffered a "silent" heart attack....

I was in hospital yesterday for an angiogram. Last year during a routine ECG pre...

maurice1

•7 years ago

5 Replies

Financial problem for people with Lupus?? You know the medications aren't cheap at all

I want to talk about the financial problem that maybe some of us are having right now. I'm 24 and I'm working in my own business, and the money is good, not a...

I want to talk about the financial problem that maybe some of us are having righ...

Babymilo

•7 years ago

11 Replies

Lupus heart

I have lupus for the last 11 years and had periciditus this last 2 weeks just been soo sick" anyone else experienced this

I have lupus for the last 11 years and had periciditus this last 2 weeks just be...

Zulks

•7 years ago

2 Replies

Tattoos

I had my first tattoo done yesterday. Thought I would post my viewpoint on this as there maybe someone out there wandering whether to go for it or not!...

I had my first tattoo done yesterday. Thought I would post my viewpoint on this...

Hollydebs

•7 years ago

6 Replies

Gastro issues

Hi I just came come from having a barium swallow, I have a hernia :( not sure what type yet as they want to take a closer look then write to my Gp with...

Hi I just came come from having a barium swallow, I have a hernia :( not sure wh...

Anyac81

•7 years ago

1 Reply

My mum has small cell lung cancer and is going to have radiotherapy and possibly brain radiotherapy. Anybody know any experience with this

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as...

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 ...

Kellymw

•7 years ago

11 Replies

Think it might be a bad wk or two

Had a really good run of prob 4 mth of very good health but been in sun shhhhh don't tel wife been wearing fecter 50 and a trilby but I've had 3 wk ends of...

Had a really good run of prob 4 mth of very good health but been in sun shhhhh d...

Ianrussell69

•7 years ago

2 Replies

Moving along slowly

Went to the hospital for the appointment about my teeth . The doctor said their do it under general (knock me out ) because I can't open my jaw wide enough ....

Went to the hospital for the appointment about my teeth . The doctor said their ...

LouLamb

•7 years ago

7 Replies

Recovery from surgery, your experience, tips and advice.

Hello. I am just about recovering from a year long flare up, finally seem to be getting somewhere which feels amazing!! I am due to have hip arthroscopy in 6...

Hello. I am just about recovering from a year long flare up, finally seem to be ...

Beau2016

•7 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2017

Got ur luck....read on 😁

Nodules on elbows

Ulcers on tongue only????

Hampshire Information day 6th May

pain in breast

Flare

Repeat mouth ulcers

pAIN

Finally started tablet

10th Driving Lesson

Mums B12 aged 85, injections stopped by doctor

SLE with Myosotis

Pain Pain Pain

It's driving me crazy

Low mood 😔

What to expect-discoid lupus-

Nose sores

Any advise rheumatology won't see me

General info

A good day ! 😜

Thank you for supporting me after unsatisfactory appointment with allergy consultant recently

Heart bypass and valve replacement

Financial problem for people with Lupus?? You know the medications aren't cheap at all

Lupus heart

Tattoos

Gastro issues

My mum has small cell lung cancer and is going to have radiotherapy and possibly brain radiotherapy. Anybody know any experience with this

Think it might be a bad wk or two

Moving along slowly

Recovery from surgery, your experience, tips and advice.

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