Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,073 posts

All posts for October 2018

London hospital

My Gp surgery called today , to tell me my referral for London hospital was in. I have to book the appointment online myself, earlist is beginning of December....

My Gp surgery called today , to tell me my referral for London hospital was in. ...

LouLamb

•5 years ago

17 Replies

one of those days. arrggghhhhhh

got back from having my flu jab [i'm sure I have a temperature already and been sneezing] got a phone call from GP surgery to say carry on with the iron...

got back from having my flu jab [i'm sure I have a temperature already and been ...

suzannah16

•5 years ago

6 Replies

Update on my petition - 2064 signatures but we need more!

Here's the update I posted on my petition. If any of you haven't signed it yet, please do. "I thought it was time I provided an update on the progress of our...

Here's the update I posted on my petition. If any of you haven't signed it yet, ...

Wendy39

•5 years ago

10 Replies

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Seeking an Asian Lupus Patient in Befordshire, Hertfordshire or Buckinghamshire for a radio interview this Sunday.

Hi everyone, I've been contacted by BBC Radio Three Counties (Beds, Herts & Bucks) who want to do a story about lupus on Yasmeen Khan's show this Sunday (4th...

Hi everyone, I've been contacted by BBC Radio Three Counties (Beds, Herts & Buck...

Paul_Howard

Partner•5 years ago

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I need advice regarding benefits....

Hi, I really need some advice please. Currently I am on Employment Support Allowance and I'm in the Support Group and my benefit is up for review next...

Hi, I really need some advice please. Currently I am on Employment Support Allo...

georgie63

•5 years ago

10 Replies

Gastroparesis question

Has anyone had normal gastroscope but still has gastroparesis? I have all the symptoms for gastroparesis and suffer constantly. Had gastroscope under general...

Has anyone had normal gastroscope but still has gastroparesis? I have all the sy...

flowflow

•5 years ago

1 Reply

IF ONLY THERE WAS A CHOICE ???

😭😭😭

Naz2005

•5 years ago

4 Replies

EVERYDAY

😥😥😥

Naz2005

•5 years ago

Be the first to reply

ANYBODY ELSE FEEL THE SAME

😥😥😥

Naz2005

•5 years ago

2 Replies

SO TRUE 😥😥😥

😥😥😥

Naz2005

•5 years ago

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CAN ANYBODY HELP ME ???

😳😳😳

Naz2005

•5 years ago

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CONFUSED

My GP said if i told people i also have fibromyalgia they would laugh at me whats funny 😭😭😭

My GP said if i told people i also have fibromyalgia they would laugh at me what...

Naz2005

•5 years ago

1 Reply

???

😭😭😭

Naz2005

•5 years ago

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Feeling like death warmed up (selfie from today attached 🤥)...anyone find a flare causes insomnia? Happy All Hallows everyone!

Decreasing sunshine means more rash, worse brain fog and less sleep for me...I'm now into a few weeks of sleeplessness 🤪 😵...I was wondering if anyone had...

Decreasing sunshine means more rash, worse brain fog and less sleep for me...I'm...

eekt

•5 years ago

61 Replies

I’m sooooo depressed, help!!

I’m sooo depressed is unbelievable, I can’t stop crying, I don’t want to be around my kids and especially my partner, I’m always snapping, I be happy for a...

I’m sooo depressed is unbelievable, I can’t stop crying, I don’t want to be arou...

Tash1987

•5 years ago

14 Replies

PIP face to face next week

I have my face to face PIP assessment next week. Any advice? I have Lupus and a number of other issues. Many thanks to you.

I have my face to face PIP assessment next week. Any advice? I have Lupus and a ...

LilyMistri2

•5 years ago

7 Replies

Always ill in school holidays with 2 young children!!

Why is it I am always ill during the school holidays?!! My kids are 6y and 2y. I was off sick from work for 2 months (only work 2 short days) all thru the...

Why is it I am always ill during the school holidays?!! My kids are 6y and 2y. ...

Sara_A

•5 years ago

7 Replies

Intense arthritic pain on one side only ):

Hi everyone! I wanted to ask if anyone has found anything that might help with horrible arthritic pain. I am on Hydroxichloroquine, Azathioprine, Aspirin and...

Hi everyone! I wanted to ask if anyone has found anything that might help with h...

MerB90

•5 years ago

1 Reply

blood test results

just got my results back. hg gone up but platelets gone down. Is it better to have high haemoglobin and low platelets or low hg and high platelets?

just got my results back. hg gone up but platelets gone down. Is it better to ha...

suzannah16

•5 years ago

10 Replies

Annoyed

Well annoyed is an understatement. I’m fuming at the moment. I went to my gp last night as my consultant appointment isn’t until November. I am in pain...

Well annoyed is an understatement. I’m fuming at the moment. I went to my gp la...

LouLamb

•5 years ago

8 Replies

Muscle waste

Hi can anyone tell me which if any of these wonderful diseases affect muscle waste I’m UCTD Raynaud hypothyroid , this year my muscles have become soft , no...

Hi can anyone tell me which if any of these wonderful diseases affect muscle was...

whatsit

•5 years ago

5 Replies

Dandelion root tea

Hi, I just purchased dandelion root tea. Has anyone tried it? Is it safe to take with lupus meds like prednisone , Imuran and plaquanil. Thanks.

Hi, I just purchased dandelion root tea. Has anyone tried it? Is it safe to tak...

Sameera1213

•5 years ago

16 Replies

Return of the flair!

Hi everyone! I haven't posted on here for about 6 months I think because I had two full blood counts (ANA etc) which came back negative and one GP stating my...

Hi everyone! I haven't posted on here for about 6 months I think because I had t...

mumsyme

•5 years ago

8 Replies

LUPUS UK Christmas Cards & Gifts

Hi everyone, I just wanted to remind you all that our new range of Christmas cards and gifts are now available to order from our online shop at...

Hi everyone, I just wanted to remind you all that our new range of Christmas car...

Paul_Howard

Partner•5 years ago

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Prednisolone diary 15 - the wolf returns?

The one good thing about going up to 25mg of methyl prednisolone for myositis was the disappearance of the nausea and headaches that had been an everyday...

The one good thing about going up to 25mg of methyl prednisolone for myositis wa...

whisperit

•5 years ago

31 Replies

Us TATTs, as docs call us: 'Tired all the time', a common yet nebulous symptom, can be difficult to manage, with numerous differentials...

From a GP learning site that you have to register with to access, so I've copied in a chunk below....SO if your GP says your fatigue is all in your head, you...

From a GP learning site that you have to register with to access, so I've copied...

eekt

•5 years ago

1 Reply

If you use Amazon

Amazon will make a donation to Lupus UK. To support this charitable organisation, always shop using Amazon Smile. smile.amazon.co.uk. Many thanks. Best wishes...

Amazon will make a donation to Lupus UK. To support this charitable organisation...

Kevin53

•5 years ago

10 Replies

ECG Results

Hi All Just wondering if anyone here has Sinus Arrhythmia with low T waves and what your treatment was? Thanks D

Hi All Just wondering if anyone here has Sinus Arrhythmia with low T waves and ...

Besticanbe73

•5 years ago

4 Replies

GPs have invalidated my travel insurance - now need drs abroad! Anyone know ways around it?

Hello, wondered if anyone has had anything similar or has any advice. Went to GPs day due to fly on holiday to Middle East as felt I had a UTI and should get...

Hello, wondered if anyone has had anything similar or has any advice. Went to GP...

Melba1

•5 years ago

28 Replies

Investigating POTS

Greetings to all! I recently became aware of this condition and it was suggested to me by a specialist (my Neurosurgeon) that I be evaluated for POTS. A little...

Greetings to all! I recently became aware of this condition and it was suggested...

nwfrugalista

•5 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2018

London hospital

one of those days. arrggghhhhhh

Update on my petition - 2064 signatures but we need more!

Seeking an Asian Lupus Patient in Befordshire, Hertfordshire or Buckinghamshire for a radio interview this Sunday.

I need advice regarding benefits....

Gastroparesis question

IF ONLY THERE WAS A CHOICE ???

EVERYDAY

ANYBODY ELSE FEEL THE SAME

SO TRUE 😥😥😥

CAN ANYBODY HELP ME ???

CONFUSED

???

Feeling like death warmed up (selfie from today attached 🤥)...anyone find a flare causes insomnia? Happy All Hallows everyone!

I’m sooooo depressed, help!!

PIP face to face next week

Always ill in school holidays with 2 young children!!

Intense arthritic pain on one side only ):

blood test results

Annoyed

Muscle waste

Dandelion root tea

Return of the flair!

LUPUS UK Christmas Cards & Gifts

Prednisolone diary 15 - the wolf returns?

Us TATTs, as docs call us: 'Tired all the time', a common yet nebulous symptom, can be difficult to manage, with numerous differentials...

If you use Amazon

ECG Results

GPs have invalidated my travel insurance - now need drs abroad! Anyone know ways around it?

Investigating POTS

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