Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2015

What is the best time of the day for a lupus blood test?

Hi Lupies, I have blood test every 3 months, my glucose up and down. In July 2014, Rhreumy said to stop drinking and my glucose was down to normal. This time,...

Hi Lupies, I have blood test every 3 months, my glucose up and down. In July 20...

kimc

•9 years ago

8 Replies

Fibromyalgia? and more tests

Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were...

Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has lef...

achydunlin

•9 years ago

17 Replies

Treatment for ulcers

Hi I had rituximab which has not worked unfortunately. My consultant is suggesting I try aavaa which is a combination of asprin, antibiotics, flolan and...

Hi I had rituximab which has not worked unfortunately. My consultant is suggesti...

dzagotskillz

•9 years ago

9 Replies

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How long have people been on depomedrol?

I've had three shots since last July. Is it a long term form of treatment for those with persistent joint pains?

I've had three shots since last July. Is it a long term form of treatment for th...

Diagnosed2012

•9 years ago

4 Replies

How long did hydroxychloroquine take to work for you?

I have been on it for only 9weeks so far with no noticeable improvement in joint and muscle pains but my Rheumatologist said I may as well stop taking it. Is...

I have been on it for only 9weeks so far with no noticeable improvement in joint...

Annalouk

•9 years ago

10 Replies

Low C4? High dose steroids and Azathioprine - help!

Hi guys. Can anyone give me any more information on low C4 levels? Mine have apparently been steadily dropping and are now 0.08. The Rheumatologist has put...

Hi guys. Can anyone give me any more information on low C4 levels? Mine have a...

Tinksie

•9 years ago

3 Replies

Burning pain

Burning pain in feet leg and hand any tip pls

Lyme

•9 years ago

1 Reply

Rashes

Hi I have been suffering with rashes and itchy skin for almost 2 years now. I take antihistamines and sometimes need them twice daily. I have been referred to...

Hi I have been suffering with rashes and itchy skin for almost 2 years now. I ta...

leezals

•9 years ago

2 Replies

Rash on neck

Hi All, I have SLE Lupus (amongst other things) and don't have the facial rash but do have a red rash all over my neck which stings, it has been there years....

Hi All, I have SLE Lupus (amongst other things) and don't have the facial rash b...

Iona467

•9 years ago

13 Replies

Tremmors

Well here I am another 4 months on been to see Neurologists- Cardiologists-Rheumatology and still no further went to see Rheumy just before Christmas said its...

Well here I am another 4 months on been to see Neurologists- Cardiologists-Rheum...

Hodgson57

•9 years ago

6 Replies

TUMID LUPUS

I am 62 yr old female and 18 months ago I was diagnosed with SLE/AS overlap, and Lupus Nephritis. As well as Malaria rash I had a strange ugly rash on my...

I am 62 yr old female and 18 months ago I was diagnosed with SLE/AS overlap, an...

maurice1

•9 years ago

9 Replies

Stopped taking all meds

Hi, I am after some advice. I was diagnosed with sle January 2012 after years of joint pain, rash and fatigue. I was prescribed hydroxychloroquine 400mg daily....

Hi, I am after some advice. I was diagnosed with sle January 2012 after years of...

Mandymerritt

•9 years ago

15 Replies

Friends...off hydroxychloroquine, what do you think?

Ive been on it for a year and half...first high dose, then a lower dose (my doing ,but notified rhumey)..He pulled me off it the other day (hes a bit of a...

Ive been on it for a year and half...first high dose, then a lower dose (my doin...

dgleds

•9 years ago

30 Replies

Is anyone diagnosed with lupus when going through menopause?

Hello lupies, I'm 56 years old woman and diagnosed with lupus 2 years ago. It was really confused at first with fatigue, hot and cold for 6 months until rash...

Hello lupies, I'm 56 years old woman and diagnosed with lupus 2 years ago. It w...

kimc

•9 years ago

27 Replies

Has anyone had swollen neck I have lupus and emphysema and Hughes.nearly died Feb last year breathing bad all year am on nebuliser 4hourly

Now have swollen neck and major breathing problems no one seems to no what's caused it any suggestions

Now have swollen neck and major breathing problems no one seems to no what's cau...

dawnbeaven

•9 years ago

5 Replies

Fed up

My mouth ulcers are so painful.. joints are getting stiff again lately all i do is cry when i'm on my own..

My mouth ulcers are so painful.. joints are getting stiff again lately all i do ...

avionne

•9 years ago

14 Replies

Lupus? Any Advice??

I have a couple of questions about this. I had 2 positive ANA tests and 2 negative. The drs all mentioned lupus. It started when i couldnt use either of my...

I have a couple of questions about this. I had 2 positive ANA tests and 2 negati...

gemini2tru

•9 years ago

8 Replies

leukocytes

does anyone know if leukocytes CA 15 is infection, or a lupus thing...Its out of range on my health records i can access...I was taken off hydroxychloroquine...

does anyone know if leukocytes CA 15 is infection, or a lupus thing...Its out of...

dgleds

•9 years ago

15 Replies

Blisters on lips

Hi over the last few months blisters have started to appear on my lips. I know it is definitely not a cold sore. Does anyone else suffer?? Also I wake every...

Hi over the last few months blisters have started to appear on my lips. I know i...

Geordie-chick

•9 years ago

2 Replies

Pamidronate infusion

Hi all pls i am having a pamidronate infusion on thursday bcos of the pain on my kness. I have low bone density or smthing. So many medical jagon that i cant...

Hi all pls i am having a pamidronate infusion on thursday bcos of the pain on m...

ijeasike

•9 years ago

9 Replies

Blue badge assessment experiences

I've got an assessment coming up, and I wondered what people's recent experiences were, and what to expect. When I rang them to confirm the appointment, the...

I've got an assessment coming up, and I wondered what people's recent experience...

Diagnosed2012

•9 years ago

13 Replies

Has anyone with lupus very tender swollen lymph nodes under arms.

Have Sjogrens diagnosed and maybe Lupus and am awaiting my next Depot Medrol injection in early Feb. Am on very low dose Prednisalone , can't take more as it...

Have Sjogrens diagnosed and maybe Lupus and am awaiting my next Depot Medrol inj...

cuttysark

•9 years ago

10 Replies

unbelievable trip to the Rhumey

Well...Ive been on plaquinel for about 1.5 years, because the rhumey insisted i have lupus....Im also hypothyroid...I tapered the plaquinil to a low dose, with...

Well...Ive been on plaquinel for about 1.5 years, because the rhumey insisted i ...

dgleds

•9 years ago

11 Replies

Hi fellow sufferers .

Quick qhestion has anybody else felt like they have mild flu symptond but it doesnt get any worse just feel very fatiged and come out in brusies (again ) . My...

Quick qhestion has anybody else felt like they have mild flu symptond but it do...

barbdockeray

•9 years ago

7 Replies

sle/bipolar

Hi, I wonder if anyone can help me. I have bipolar and sle and have been told the steroids can cause me to have a manic episode, I've been stable with bipolar...

Hi, I wonder if anyone can help me. I have bipolar and sle and have been told th...

Jammy13

•9 years ago

12 Replies

Bad headaches

Hi all, just a query if what I am experiencing is another symptom to add to my others and wondering if the same happens to any of you. I have posted previously...

Hi all, just a query if what I am experiencing is another symptom to add to my o...

kazhodluckymilo17

•9 years ago

10 Replies

Loss of sense of smell

I suddenly realised about 18 months ago that I have lost some of my sense of smell. This started with bleach and cat pee (!!) but has gradually got worse...

I suddenly realised about 18 months ago that I have lost some of my sense of sme...

ShellyB1

•9 years ago

9 Replies

Rheumy appointment today

Hi everyone , I saw a different Rheumy today, she was terrible, she just was not interested, that's the impression I got . I told her and showed her a list of...

Hi everyone , I saw a different Rheumy today, she was terrible, she just was no...

Powerhouse

•9 years ago

7 Replies

Specialist!

Is there anyone that feels like your not getting through to your doctors? I keep telling them how bad i feel and its like there not listening to me?

Is there anyone that feels like your not getting through to your doctors? I keep...

LillyAlfie

•9 years ago

16 Replies

Does anyone with Lupus/SLE/APS get this type of facial rash/blistering?

Hi there, I get this every few weeks, varying severity. My face just starts leaking in patches and then it sort of.. blisters. When it heals it leaks the scab...

Hi there, I get this every few weeks, varying severity. My face just starts lea...

medsoph

•9 years ago

46 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2015

What is the best time of the day for a lupus blood test?

Fibromyalgia? and more tests

Treatment for ulcers

How long have people been on depomedrol?

How long did hydroxychloroquine take to work for you?

Low C4? High dose steroids and Azathioprine - help!

Burning pain

Rashes

Rash on neck

Tremmors

TUMID LUPUS

Stopped taking all meds

Friends...off hydroxychloroquine, what do you think?

Is anyone diagnosed with lupus when going through menopause?

Has anyone had swollen neck I have lupus and emphysema and Hughes.nearly died Feb last year breathing bad all year am on nebuliser 4hourly

Fed up

Lupus? Any Advice??

leukocytes

Blisters on lips

Pamidronate infusion

Blue badge assessment experiences

Has anyone with lupus very tender swollen lymph nodes under arms.

unbelievable trip to the Rhumey

Hi fellow sufferers .

sle/bipolar

Bad headaches

Loss of sense of smell

Rheumy appointment today

Specialist!

Does anyone with Lupus/SLE/APS get this type of facial rash/blistering?

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