Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,688 members • 28,071 posts

All posts for May 2016

Sharp pain behind my right breast

I have a sharp pain on top of my right breast and behind the breast travelling under my arm, , it sometimes travels to my back, I got an ecg done over a year...

I have a sharp pain on top of my right breast and behind the breast travelling u...

dee28

•8 years ago

4 Replies

May's Topic of the Month - Going on Holiday with Lupus

We have just published our article for this month on the LUPUS UK Blog at http://www.lupusuk.org.uk/going-on-holiday-with-lupus/ Thank you so much to everybody...

We have just published our article for this month on the LUPUS UK Blog at http:/...

Paul_Howard

Partner•8 years ago

1 Reply

Bruise from a Cannula

I'm not a fan of needles anyway but I dislike cannulas even more! I was in hospital last Monday with breathing problems and had a cannula in and as you can see...

I'm not a fan of needles anyway but I dislike cannulas even more! I was in hospi...

Dan30cr

•8 years ago

10 Replies

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Need to lose weight for my big day 👰!

Hi everybody ! This is my first post. My lupus fell asleep 7 months ago after leaving me with 0 white cells and a massive pulmonary embolism that almost killed...

Hi everybody ! This is my first post. My lupus fell asleep 7 months ago after le...

eriLu

•8 years ago

13 Replies

I am a 30 year old female lupus is killing me softly I can't be a mom or wife I'm giving up

Stress pain and lupus is taking over my life my doctor s all suck and I'm in pain so much pain

Stress pain and lupus is taking over my life my doctor s all suck and I'm in pai...

Saralupuslife

•8 years ago

21 Replies

Confused and looking for advice

Good morning! I am new on here and finding it a wonderful resource. Just been referred to rheumy for first time and looking for advice and tips to help my...

Good morning! I am new on here and finding it a wonderful resource. Just been re...

Saintsmad

•8 years ago

23 Replies

My mother and I

Hello! My name is Aurora. I am on this site for my mom and myself. I have had many health complications in the past, and now only have occasional symptoms that...

Hello! My name is Aurora. I am on this site for my mom and myself. I have had ma...

DizzyDawn

•8 years ago

3 Replies

Rash

This itchy red rash appeared after just half hour in sun watching my sons cricket match . I took photo to show rheumatologist, if I ever get referred, still...

This itchy red rash appeared after just half hour in sun watching my sons cricke...

Hidden

•8 years ago

8 Replies

Is it common to be taking 400mg hydroxychloroquine without a diagnosis of SLE, and will it affect diagnostic tests?

Hello everyone, I think my title says it all really - I've been taking 400mg hydroxychloroquine for about three years, I have multiple auto immune diseases but...

Hello everyone, I think my title says it all really - I've been taking 400mg hyd...

anniesensi

•8 years ago

10 Replies

Post surgery

Hello all! Hope we are enjoying the sunshine. My last post I talked about my swollen ankles. I had a core decompression of both knees & ankles on the 19th of...

Hello all! Hope we are enjoying the sunshine. My last post I talked about my swo...

ijeasike

•8 years ago

4 Replies

Thanks

Thanks everyone for all your posts on here,it's helped me a lot over the last few years. At last have a diagnoses ,which I knew all along , but was very hard...

Thanks everyone for all your posts on here,it's helped me a lot over the last fe...

chaimee

•8 years ago

2 Replies

Home assessment forPIP. HAD ONE?

Hi guys. As you know I am due a home assessment for PIP. Has anyone had one? What does it entail? Do they look around the house? Do you have to dress, prep a...

Hi guys. As you know I am due a home assessment for PIP. Has anyone had one? Wha...

Footygirl

•8 years ago

8 Replies

Could I actually have Lyme Diease?

OK so the media is covering a few stories on this diease and their was one that really caught my eye today. A girl with lupus who was bitten by a tick could...

OK so the media is covering a few stories on this diease and their was one that ...

Hidden

•8 years ago

8 Replies

help needed

Hi My blood test for lupus came back negative but they are still thinking it may be that is that possible? I have hair loss low platelets count is 66 unsure...

Hi My blood test for lupus came back negative but they are still thinking it m...

kaya12

•8 years ago

8 Replies

Can Antibody / ds DNA/ ENA/ Lupus anticoagulant tests change from negative to positive over time?

Hi there, After seeing a rheumatologist for a follow up appointment on Monday where I was given a diagnosis of a mild form of Lupus, today I have received a...

Hi there, After seeing a rheumatologist for a follow up appointment on Monday wh...

ExtremeDuvetDaze

•8 years ago

27 Replies

Happy Times

Just another photo of my Grandaughter's chickens. Tiras "The Bareroot Gardener"

Just another photo of my Grandaughter's chickens. Tiras "The Bareroot Gardener"...

Tiras

•8 years ago

2 Replies

Happy Times

Well not only am I gardening now but, my Grandaughter who lives with Laura and I, is in "chick chain" 4-H program. For those of you who don't know what 4-H is,...

Well not only am I gardening now but, my Grandaughter who lives with Laura and I...

Tiras

•8 years ago

6 Replies

POTS update

Hiya. A quick update. I've been poorly since last December. I spent Xmas in hospital after having what I call a "funny" episode - something that felt like...

Hiya. A quick update. I've been poorly since last December. I spent Xmas in hos...

Purpletop

•8 years ago

21 Replies

Allodynia

Anybody suffer from allodynia - pain from stimuli which aren't usually painful such as light touch? I answered a post on this a couple of weeks ago and I have...

Anybody suffer from allodynia - pain from stimuli which aren't usually painful s...

educk

•8 years ago

7 Replies

Signed of work again!

Yesterday I went to see my gp and unfortunately I was signed of work again! As I suffer with electric shocks from my finger/thumb to my chest, the past few...

Yesterday I went to see my gp and unfortunately I was signed of work again! As I...

Hidden

•8 years ago

6 Replies

Hydroxy Works. I'm Chuffed!

I hope I'm safe in saying this ......but after 7 months on hydroxy, I'm feeling better than I have in nearly three years. I had been counting the days til the...

I hope I'm safe in saying this ......but after 7 months on hydroxy, I'm feeling ...

Lupiknits

•8 years ago

10 Replies

First bite pain

Hello again, I don't know whether to post his here or go over to the sjogrens forum... As part of my ongoing research I am continually frustrated by the lack...

Hello again, I don't know whether to post his here or go over to the sjogrens fo...

1985mum

•8 years ago

6 Replies

Filled in PIP form last week assessment next week. Record?

Yes. Thats quick. Bit un nerving but I shall be as I am and will follow Benefits and Work advice. Will let you know how it goes! Love to all ⚽️

Yes. Thats quick. Bit un nerving but I shall be as I am and will follow Benefits...

Footygirl

•8 years ago

13 Replies

Lupus or not ???

Biopsy and Bloods were done to investigate hair loss. Dermatologist explained the ANA came back positive at 1/320 but the ENA and ANCA rheumatoid factor was...

Biopsy and Bloods were done to investigate hair loss. Dermatologist explained th...

angbed

•8 years ago

3 Replies

This is for Coco

Here is a photo of me fishing today. And yes as usual I am barefoot. Got 70+ sunscreen on maybe it was enough? Thanks Coco for everything.

Here is a photo of me fishing today. And yes as usual I am barefoot. Got 70+ s...

Tiras

•8 years ago

4 Replies

Fishing

Had another good day, got the boat out and went fishing. Use 70+ sunscreen I just hope that was enough. Bright sunny day 84 degrees Fahrenheit today. This...

Had another good day, got the boat out and went fishing. Use 70+ sunscreen I jus...

Tiras

•8 years ago

3 Replies

Sun sensitivity???

Just a quick question I hope someone can help me with. I'm diagnosed with UCTD, possible emerging lupus as I'm positive for dsDNA of "reasonable titre" but...

Just a quick question I hope someone can help me with. I'm diagnosed with UCTD, ...

Toastie-69

•8 years ago

6 Replies

Latest on skin rash

Latest skin rash, been put on 30mg prednisolone and 400mg quinoric. I'm pretty much confused with hydroxyquine, it seems to change like the weather different...

Latest skin rash, been put on 30mg prednisolone and 400mg quinoric. I'm pretty m...

molly19

•8 years ago

6 Replies

Activated charcoal

Has anyone ever used activated charcoal for aiding digestion or lower cholesterol? If so does it work? I met someone who mentioned that that is what they take...

Has anyone ever used activated charcoal for aiding digestion or lower cholestero...

Pipido36

•8 years ago

6 Replies

Saying hi!

I'm new to this site, I'm looking to chat with other folks and to hear their experience of lupus. I've had my first treatment of Rituximab in Dec and I'm...

I'm new to this site, I'm looking to chat with other folks and to hear their ex...

Squeeker

•8 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2016

Sharp pain behind my right breast

May's Topic of the Month - Going on Holiday with Lupus

Bruise from a Cannula

Need to lose weight for my big day 👰!

I am a 30 year old female lupus is killing me softly I can't be a mom or wife I'm giving up

Confused and looking for advice

My mother and I

Rash

Is it common to be taking 400mg hydroxychloroquine without a diagnosis of SLE, and will it affect diagnostic tests?

Post surgery

Thanks

Home assessment forPIP. HAD ONE?

Could I actually have Lyme Diease?

help needed

Can Antibody / ds DNA/ ENA/ Lupus anticoagulant tests change from negative to positive over time?

Happy Times

Happy Times

POTS update

Allodynia

Signed of work again!

Hydroxy Works. I'm Chuffed!

First bite pain

Filled in PIP form last week assessment next week. Record?

Lupus or not ???

This is for Coco

Fishing

Sun sensitivity???

Latest on skin rash

Activated charcoal

Saying hi!

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