Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for June 2022

Could this be lupus?

Please can anyone help?. For quite a few years now, every time I get ill, virus, sick bug, colds etc, a rash appears towards the end, it goes from my neck,...

Please can anyone help?. For quite a few years now, every time I get ill, virus,...

Lourum83

•2 years ago

9 Replies

Methotrexate

Hello all - I received a lupus diagnosis two years ago. I've tried various meds, including hydroxychloroquine, but experienced side effects which caused me to...

Hello all - I received a lupus diagnosis two years ago. I've tried various meds...

Ophelia1

•2 years ago

13 Replies

Purpura

Hope I have spelt it right ? Anyways, do any of you fellow lupus sufferers get purple/red spots on their lower legs after a lot of walking. I've had it a few...

Hope I have spelt it right ? Anyways, do any of you fellow lupus sufferers get ...

Montysmum1

•2 years ago

2 Replies

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WE NEED YOUR EXPERIENCES: Please check this list of neurological/mental health symptoms in lupus and let us know if anything is missing

Hi everyone, If you've been following the forum over the past few months, you'll know that Melanie Sloan is leading a LUPUS UK-funded research project...

Hi everyone, If you've been following the forum over the past few months, you'...

Paul_Howard

Partner•2 years ago

109 Replies

Facial paralysis

I’d like to know if anyone else has had issues with repeated facial palsy/paralysis? My lower face is affected, sometimes so bad that I cannot smile. It’s...

I’d like to know if anyone else has had issues with repeated facial palsy/paraly...

mainlyconfused

•2 years ago

12 Replies

Helpful ways to relieve stress!

Good morning, so I’ve read a lot on here last night. It’s such an informative and supported group. I can’t thank you all enough for helping answer my...

Good morning, so I’ve read a lot on here last night. It’s such an informative an...

Sarahb_70

•2 years ago

23 Replies

Pneumonia and Azathioprine/Prednisolone

I had managed just over 2 years since my last case of pneumonia after i swore by the 'onion trick', to treat resp infections. I've been having maybe a month...

I had managed just over 2 years since my last case of pneumonia after i swore by...

LottieLou96

•2 years ago

4 Replies

Butterfly rash

With the butterfly rash on the face, does it go away or fade once you start taking prednisone xx

With the butterfly rash on the face, does it go away or fade once you start taki...

Sarahb_70

•2 years ago

5 Replies

Covid-19, Vaccine response and Methotrexate

An interesting article in the BBC about trying to maximize any vaccination response to the Covid-19 for those of you on Methotrexate. It will be interesting to...

An interesting article in the BBC about trying to maximize any vaccination respo...

fabwheelie

•2 years ago

6 Replies

Cutaneous Lupus

Good morning, the Dr thinks I have cutaneous Lupus, my symptoms are butterfly rash on the face, Both the back on my hands are very red and my bottom lip is so...

Good morning, the Dr thinks I have cutaneous Lupus, my symptoms are butterfly ra...

Sarahb_70

•2 years ago

10 Replies

Do you lose your hair with Lupus?

Hi, I’m awaiting test results to see if I have Lupus. My Dr is very sure I do as have 95% symptoms and has started me on prednisone. 6 tablets for the first...

Hi, I’m awaiting test results to see if I have Lupus. My Dr is very sure I do as...

Sarahb_70

•2 years ago

42 Replies

Steroids impacting blood results?

Hi there, I’m new here and am currently on the merry-go-round of trying to find a diagnosis for long-term chronic health issues. (Chronic debilitating...

Hi there, I’m new here and am currently on the merry-go-round of trying to find...

slowtraveller

•2 years ago

9 Replies

Do you have EDS in addition to lupus ?

My wife has SLE but always had symptoms that were more connective tissue related. Her breathing problems, shoulder, knee and hip problems didnt quite fit the...

My wife has SLE but always had symptoms that were more connective tissue related...

jimbo1605

•2 years ago

2 Replies

cutie alert

Meet my new oldies. Angel is a 14 1/2 year old collie and Tillie is an 11 1/2 year old shih tzu. They came as a pair, lucky me.

Meet my new oldies. Angel is a 14 1/2 year old collie and Tillie is an 11 1/2 ye...

suzannah16

•2 years ago

22 Replies

Cutaneous Lupus

Hello everyone. After a skin biopsy I was diagnosed with cutaneous lupus erythematosus as well as sjogrens syndrome. I'm trying to obtain travel insurance...

Hello everyone. After a skin biopsy I was diagnosed with cutaneous lupus erythe...

Biddy47

•2 years ago

5 Replies

Does anyone have an informed opinion or reference on what Jonathan Otto reports in relation to autoimmune diseases, please?

Hello lovely people! I have received this information which is new to me and I do not know the background of the author. Apart from wanting to sell his...

Hello lovely people! I have received this information which is new to me and I ...

Naladog

•2 years ago

7 Replies

VOLUNTEERS NEEDED: A couple of people needed to test a survey about neurological and mental health involvement in lupus.

***We have had enough volunteers for this request. Thank you so much to everyone who offered to help.*** Hi everyone, Melanie Sloan has asked me to...

***We have had enough volunteers for this request. Thank you so much to everyone...

Paul_Howard

Partner•2 years ago

3 Replies

Am I going to lose my Wizard?🙀

Hello to all my fellow comrades fighting the good fight!🫶💪🏽🙏🏼🦓🦄🌟✨ I got a call from my neuro Wizard’s office last week saying they needed to reschedule...

Hello to all my fellow comrades fighting the good fight!🫶💪🏽🙏🏼🦓🦄🌟✨ I got ...

DRunnerchick

•2 years ago

18 Replies

(Very) swollen neck gland

Hi just looking for some advice please. Does anyone get swollen glands with lupus? My right gland just under my ear is up like a golf ball and is extremely...

Hi just looking for some advice please. Does anyone get swollen glands with lup...

Froggie70

•2 years ago

17 Replies

Help with a bad flare up

Hi all, I would like some opinions on what I'm currently going through. Apologies for not replying to my last post, I've been busy going back...

Hi all, I would like some opinions on what I'm currently going through. Apologi...

CPower

•2 years ago

11 Replies

Burning fingers

Hello, I am going through my menopause and was wondering whether it is normal to have burning fingers which turn bright red? Normally I get a hot flush after...

Hello, I am going through my menopause and was wondering whether it is normal to...

SamRigs

•2 years ago

10 Replies

Introducing LUPUS UK's New Trustees

We are delighted to welcome six new additions to our Board of Trustees! You can learn about them at https://www.lupusuk.org.uk/introducing-new-trustees/ You...

We are delighted to welcome six new additions to our Board of Trustees! You can ...

Paul_Howard

Partner•2 years ago

4 Replies

Dent in my lower eyelid/waterline

Hi I have had a little dent in the water line/lower lid of my eye for a few months now. No irritation or redness just a dent and there was no trauma to the...

Hi I have had a little dent in the water line/lower lid of my eye for a few mon...

Bobbydoodle

•2 years ago

6 Replies

HRT

I’m starting HRT , patches and one tablet every night . Just wanted to know if anyone with lupus on here is on HRT and how’s going ? Thank you Maria 🙂

I’m starting HRT , patches and one tablet every night . Just wanted to know if a...

Melaxx

•2 years ago

11 Replies

Has anyone had a similar journey?

Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and...

Hello everyone, My name is Mac and I’ve been struggling with various health com...

Tinylittlemac

•2 years ago

11 Replies

Getting a lupus diagnosis

Hi! I'm new here but would be grateful for any help! I have a lot of lupus symptoms including : Fatigue, pain in multiple joints, headaches, malar rash, other...

Hi! I'm new here but would be grateful for any help! I have a lot of lupus sympt...

aqt1

•2 years ago

17 Replies

Any advice on what tests to determine lupus?

Hello to you reading this. I have been on a long journey to find a diagnosis for what I was experiencing, hair thinning, skin thinning, stomach pain and...

Hello to you reading this. I have been on a long journey to find a diagnosis for...

Aura13

•2 years ago

10 Replies

The rash that got me diagnosed with SLE

Hi lovely Lupies, After chatting to Diane (EDD) about rashes recently I thought she and some of you might be interested to see the progression of a head to toe...

Hi lovely Lupies, After chatting to Diane (EDD) about rashes recently I thought ...

Spotty-ewe

•2 years ago

44 Replies

Lupus and Digestive issues

Hello everyone, I've been having a lot of digestive issues and wondered if anyone else had a similar experience or any advice? So this has been going on for...

Hello everyone, I've been having a lot of digestive issues and wondered if anyo...

Leenie0811

•2 years ago

20 Replies

Immunologist/Allergist Appointment

I had an appointment with the immunologist/allergist. As I had written earlier, I was extremely nervous and doubtful about the whole thing. He turned out to be...

I had an appointment with the immunologist/allergist. As I had written earlier, ...

Pumpkin2009

•2 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2022

Could this be lupus?

Methotrexate

Purpura

WE NEED YOUR EXPERIENCES: Please check this list of neurological/mental health symptoms in lupus and let us know if anything is missing

Facial paralysis

Helpful ways to relieve stress!

Pneumonia and Azathioprine/Prednisolone

Butterfly rash

Covid-19, Vaccine response and Methotrexate

Cutaneous Lupus

Do you lose your hair with Lupus?

Steroids impacting blood results?

Do you have EDS in addition to lupus ?

cutie alert

Cutaneous Lupus

Does anyone have an informed opinion or reference on what Jonathan Otto reports in relation to autoimmune diseases, please?

VOLUNTEERS NEEDED: A couple of people needed to test a survey about neurological and mental health involvement in lupus.

Am I going to lose my Wizard?🙀

(Very) swollen neck gland

Help with a bad flare up

Burning fingers

Introducing LUPUS UK's New Trustees

Dent in my lower eyelid/waterline

HRT

Has anyone had a similar journey?

Getting a lupus diagnosis

Any advice on what tests to determine lupus?

The rash that got me diagnosed with SLE

Lupus and Digestive issues

Immunologist/Allergist Appointment

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