Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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Advice on appointment delays please?

Hi all, hope you're well 😊 I was recently diagnosed with Sjogren's Syndrome in February this year. At this appointment I was put on a 4 month trial of...

Hi all, hope you're well 😊 I was recently diagnosed with Sjogren's Syndrome in ...

Helzipop

•5 months ago

4 Replies

hydroxychloroquine?

hi been told by my rheumatologist I need to start taking hydroxychloroquine and wear SPF50 daily. I haven’t officially been diagnosed with lupus but I assuming...

hi been told by my rheumatologist I need to start taking hydroxychloroquine and ...

Severancered9

•7 months ago

22 Replies

⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London

Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu...

Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. How...

Gm131987

•9 months ago

3 Replies

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Newly Diagnosed

Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and...

Hello, I’m new to this forum and was only diagnosed with SLE in late December. I...

ChloeScotland

•9 months ago

12 Replies

Lupus specialist Gloucestershire, or Somerset, Oxfordshire

Hi, new here, newly diagnosed with renal involvement. I live in Gloucestershire....any recommendations for the best specialists in my area? Would be willing to...

Hi, new here, newly diagnosed with renal involvement. I live in Gloucestershire....

Severn770

•10 months ago

3 Replies

Various questions, sorry 🥹

I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively...

I hope you’re all doing as well as you can be 💜 this is going to be a long post...

JLAR01

•10 months ago

14 Replies

Frustration, pain feeling dismissed

Good morning everyone,This is probably just going to be an essay on how I am feeling and any advice would be grateful. After approximately 3 years of symptoms,...

Good morning everyone,This is probably just going to be an essay on how I am fee...

lollipop98

•1 year ago

16 Replies

dizziness and lupus

hey all, I hope you’re all as well as you possibly can be. I feel so bad moaning when I know I could be a lot worse but I was recently diagnosed with Tumid...

hey all, I hope you’re all as well as you possibly can be. I feel so bad moani...

JLAR01

•1 year ago

12 Replies

Newly diagnosed and a little overwhelmed.

Hello :) New to the group so hello :) I'm 33 and have been recently diagnosed with rheumatoid arthritis and lupus. I was only diagnosed with the additional...

Hello :) New to the group so hello :) I'm 33 and have been recently diagnosed w...

Sunshine634

•1 year ago

27 Replies

First RH appointment tomorrow

I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could...

I am absolutely beside myself at the moment. After being seriously unwell for 3 ...

Alicexo

•2 years ago

12 Replies

Any tips

hello thank you for letting me join It’s been quite a long time getting diagnosed, because I have other problems as well, it’s taken about nine months and lots...

hello thank you for letting me join It’s been quite a long time getting diagnose...

Breavheart

•2 years ago

3 Replies

Newly diagnosed with Lupus and aching again now - what next?

Hi all, First post on here…a bit daunting, but I hope I can get some advice 😊 I was diagnosed with Lupus SLE at the end of June and since taking...

Hi all, First post on here…a bit daunting, but I hope I can get some advice 😊 ...

Liliepepette

•2 years ago

15 Replies

Malar rash skincare

Hello! Please forgive me for being here as I don't have a diagnosis for lupus yet but am suffering with (confirmed) malar rash. I have had a lip biopsy and...

Hello! Please forgive me for being here as I don't have a diagnosis for lupus ye...

AcheyAnnie

•2 years ago

10 Replies

Newly diagnosed lupus and exams

hey there, I have under a week ago been diagnosed with lupus and I just have questions because I have exams coming up but lupus affects my ability to do exams...

hey there, I have under a week ago been diagnosed with lupus and I just have que...

Yellowsun111

•2 years ago

4 Replies

Pain relief for pleurisy in Lupus

I have recently been diagnosed with Lupus although I've had it for many years. The pain in my lungs is unbearable and keeps me awake at night. I've been given...

I have recently been diagnosed with Lupus although I've had it for many years. T...

janelarambla

•3 years ago

5 Replies

Ear pain???

Does anyone get any ear pain?? Should I be concerned? The last week I had really intense jaw pain and with it came ear pain but once the jaw pain reduced...

Does anyone get any ear pain?? Should I be concerned? The last week I had reall...

ZA31

•3 years ago

11 Replies

I'm new in this site and i need help...

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until i finally able to get a proper diagnosis and...

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely tra...

nanaglitter

•3 years ago

6 Replies

Lupus in the brain

Hi my mum was diagnosed with lupus at the end of may. She is now on her second hospital admission. She can’t walk, lift her arms, is incontinent, aggressive,...

Hi my mum was diagnosed with lupus at the end of may. She is now on her second h...

Debdoh

•3 years ago

70 Replies

What to ask immunologist

Hello all - I'm new to the lupus section of health unlocked. I'm a 58 year old female. In 2016 I started to experience oral pain, numbness and tingling in...

Hello all - I'm new to the lupus section of health unlocked. I'm a 58 year old ...

Ophelia1

•3 years ago

8 Replies

Lupus & Epidermolysis bullosa acquisita (EBA)

I have not posted in a while, had a lot of things medical going on. Just a question, has anyone else with Lupus been diagnosed with Epidermolysis bullosa...

I have not posted in a while, had a lot of things medical going on. Just a quest...

Tiras

•3 years ago

3 Replies

Newbie, saying hello and seeking advice.

Hydroxychloroquine newbie. Hi all, I'm Cordie and I'm new here. I was hoping for some info regarding the above. They tell me I have SLE and have prescribed...

Hydroxychloroquine newbie. Hi all, I'm Cordie and I'm new here. I was hoping ...

Cordie1

•4 years ago

46 Replies

Related lupus SLE

I have been diagnosed with lupus SLE recently. I’m just wondering if anyone have a problem in swallowing food. It feels like food stuck in my throat all the...

I have been diagnosed with lupus SLE recently. I’m just wondering if anyone have...

Green85

•4 years ago

8 Replies

It’s all new to me!

I was diagnosed with Lupus in August 2020 after many years of various conditions. I am currently taking 5mg of soluble Prednisolone and 200mg of...

I was diagnosed with Lupus in August 2020 after many years of various conditions...

JCZW

•4 years ago

8 Replies

What is light ... my quest for knowledge.

Following my recent MCTD/Lupus diagnosis I've been on a quest to understand photosensitivity and photophobia (two separate medical conditions and not the same...

Following my recent MCTD/Lupus diagnosis I've been on a quest to understand phot...

FabledPilgrim

•4 years ago

1 Reply

Changing Light Bulbs

I wonder if I could ask all you photophobic / photosensitive people about your experiences swapping out light bulbs around your home to ease your symptoms ......

I wonder if I could ask all you photophobic / photosensitive people about your e...

FabledPilgrim

•4 years ago

4 Replies

I am new here having finally been diagnosed with Crohn’s Colitis having previously told it was Ulcerated Colitis

A belated Merry Christmas everyone. I have finally had it confirmed that I have Crohn’s Colitis but am struggling with a very bad flare up which, so far, has...

A belated Merry Christmas everyone. I have finally had it confirmed that I have...

gmm55

•4 years ago

14 Replies

Pleurisy question

I have just been diagnosed with pleurisy I have had 2 courses of different antibiotics but I'm still in pain and feeling sick and cold sweats, I assume they...

I have just been diagnosed with pleurisy I have had 2 courses of different antib...

Niki2605

•4 years ago

8 Replies

MRI interpretation help

Hi again, I had a Shoulder MRI in 2017 that showed a mild rotator cuff tear and some calcifications. My Rheumatologist sent me for another(Aug 2020 attached)...

Hi again, I had a Shoulder MRI in 2017 that showed a mild rotator cuff tear and...

patmackfin

•4 years ago

Be the first to reply

End of a long road, and the beginning of another..

I first wrote on this Lupus page 2 years ago, searching and confused, trying to figure things out on my own, having already been diagnosed with Pernicious...

I first wrote on this Lupus page 2 years ago, searching and confused, trying to ...

patmackfin

•4 years ago

3 Replies

Needing advice on hydroxycholiquine

I’m in a quandary... diagnosed with lupus sle in May the year. Had a lot symptoms with joint pain in my wrists and GI issues awaiting polops biopsy results....

I’m in a quandary... diagnosed with lupus sle in May the year. Had a lot symptom...

TillyO

•4 years ago

8 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Newly Diagnosed posts

Advice on appointment delays please?

hydroxychloroquine?

⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London

Newly Diagnosed

Lupus specialist Gloucestershire, or Somerset, Oxfordshire

Various questions, sorry 🥹

Frustration, pain feeling dismissed

dizziness and lupus

Newly diagnosed and a little overwhelmed.

First RH appointment tomorrow

Any tips

Newly diagnosed with Lupus and aching again now - what next?

Malar rash skincare

Newly diagnosed lupus and exams

Pain relief for pleurisy in Lupus

Ear pain???

I'm new in this site and i need help...

Lupus in the brain

What to ask immunologist

Lupus & Epidermolysis bullosa acquisita (EBA)

Newbie, saying hello and seeking advice.

Related lupus SLE

It’s all new to me!

What is light ... my quest for knowledge.

Changing Light Bulbs

I am new here having finally been diagnosed with Crohn’s Colitis having previously told it was Ulcerated Colitis

Pleurisy question

MRI interpretation help

End of a long road, and the beginning of another..

Needing advice on hydroxycholiquine

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