Lupus Medications

I was diagnosed with a severe form of SLE Lupus with cerebral involvement in August 2013. After 6 months of Cyclo by IV every two weeks I have been on Mycopehenolate Mofetil 500mg 4 tabs a day for the past year. I also take Plaquinel once daily. Was on Predisone until 3 weeks ago and was gradually weaned off. So far all is good, immune system seems stable, blood work okay. Will be checking in with Rheumatoligist in May 2015 again. No adverse effects so far. Some nausea and diarreha but manageable.

I have a question for lupies out there. What kind of followup tests do you have. I was having ultrasounds every 6 months until June 2014. Mostly on abdomen and right leg (massive clot in it was the trigger for the diagnosis)

Just hoping for no flares of this disease. Cold weather and temps continue to bother me.

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  • Hi there,iv been diagosned with SLE 3 months ago and I'm on hyrodxochlorquine 200mg a day..I'm 3months pregnant.

    I had flu and my doctors gave me flu jab..my lupus flared up after the flu jab and i went in A&E. They did blood test which showed i had clots in my lungs..later they did two xays and I was all clear...

    Now I'm on asprin 75mg a day..

  • Hi there,iv been diagosned with SLE 3 months ago and I'm on hyrodxochlorquine 200mg a day..I'm 3months pregnant.

    I had flu and my doctors gave me flu jab..my lupus flared up after the flu jab and i went in A&E. They did blood test which showed i had clots in my lungs..later they did two xays and I was all clear...

    Now I'm on asprin 75mg a day..

  • I take blood test and see my rheumatologist every 3 months to check on red and white blood counts, liver, ANA, Sjogren and for who takes plaquinel which I am, also have my eyes exam by ophthalmologist once a year until after 5 years taking plaquinel the exam would be every 6 months. . .

  • Thanks so far I am doing that. Blood test every 3 months. Rheumatologist every 6 months and eye test every 6 months.

  • I forgot, also test for kidneys every 3-6 months making sure they are function right. I'm better with cooler weather than humidity and hot Summer. My Rheumatologist app is on Wednesday after all my blood works & urine test last week.

  • Taking Blood test in every 3 months and eyes test in every 6 months .

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