I was diagnosed with a severe form of SLE Lupus with cerebral involvement in August 2013. After 6 months of Cyclo by IV every two weeks I have been on Mycopehenolate Mofetil 500mg 4 tabs a day for the past year. I also take Plaquinel once daily. Was on Predisone until 3 weeks ago and was gradually weaned off. So far all is good, immune system seems stable, blood work okay. Will be checking in with Rheumatoligist in May 2015 again. No adverse effects so far. Some nausea and diarreha but manageable.
I have a question for lupies out there. What kind of followup tests do you have. I was having ultrasounds every 6 months until June 2014. Mostly on abdomen and right leg (massive clot in it was the trigger for the diagnosis)
Just hoping for no flares of this disease. Cold weather and temps continue to bother me.