Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,695 members • 28,073 posts

All posts for September 2018

hi

im new to this forum

Naz2005

•6 years ago

7 Replies

WHY ME

Hi i have recently been diagnosed with LUPUS (SLE) so many visits to the doctors who said i was just a whinger & sat there in tears with no help over 1 year...

Hi i have recently been diagnosed with LUPUS (SLE) so many visits to the doctors...

Naz2005

•6 years ago

8 Replies

Lupus neutropenic & lupus

I have SLE which I have monthly infusions of bilimimab as steroids and hydroxychloroquine doesn't keep my lupus under control. My neutrophil count is always...

I have SLE which I have monthly infusions of bilimimab as steroids and hydroxych...

englishrose67

•6 years ago

2 Replies

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SLE annual cardiovascular risk assessment & Vitamin D3 😎

The BSR Guideline recommends an annual CVD assessment (https://academic.oup.com/rheumatology/article/57/1/e1/4318863#105890718) so three years after diagnosis,...

The BSR Guideline recommends an annual CVD assessment (https://academic.oup.com/...

eekt

•6 years ago

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Flu jab

Is it safe for us Lupus sufferers to have the flu jab? I have it every year, as even a cold goes straight to my chest and I got pneumonia again this year! So I...

Is it safe for us Lupus sufferers to have the flu jab? I have it every year, as ...

Jacqui296

•6 years ago

25 Replies

Lupus sle andparathyroid

I have beer attending aOsteoperosis and have just been advised that I now have Parathyroidand kidneys are operating at30perent the same week as I was told I...

I have beer attending aOsteoperosis and have just been advised that I now have P...

notoverthehill

•6 years ago

4 Replies

Anyone in Cornwall?

After 11 years of being officially diagnosed with SLE I've noticed some of my symptoms starting to flare up more often as I get older (yes I realise that...

After 11 years of being officially diagnosed with SLE I've noticed some of my sy...

Elysia_90

•6 years ago

14 Replies

Losing hope

Hi. I am 44 Years old. Since i was a child i have always been itchy, I would tear myself raw in order to stop the itch. In my teens i found that Piriton kept...

Hi. I am 44 Years old. Since i was a child i have always been itchy, I would tea...

DanDuan

•6 years ago

41 Replies

Gastric endoscopy

I have to have a gastric endoscopy done tomorrow, and I confess I’m terrified. Has anyone had this done? Can you tell me a little about what to expect during &...

I have to have a gastric endoscopy done tomorrow, and I confess I’m terrified. H...

LeopardGizmo

•6 years ago

14 Replies

Sueesue

Has anyone else had a weird message from her?

cathylou

•6 years ago

18 Replies

Kent based

It’s Lupus month on Monday. Does anyone in Kent know if there’s anything going on to support this in the county?

It’s Lupus month on Monday. Does anyone in Kent know if there’s anything going o...

Coffeetime

•6 years ago

5 Replies

Temperature going up and down

Hello there, my temperature is going up and down like a yo-yo for the last week . It usually happens at night around bedtime and spikes at 2am then I take...

Hello there, my temperature is going up and down like a yo-yo for the last week...

HANNAH_ROSE

•6 years ago

2 Replies

Misti31 about lupus flare up ...

Hi I have just joined this group ... I have had lupus for 25 years and am only now having my 1st real bad flare up... which is a bit unsettling. I have been to...

Hi I have just joined this group ... I have had lupus for 25 years and am only n...

Misti31

•6 years ago

7 Replies

Rheumatology appointment

Hi. I've been referred to Broadgreen Rheumatology department in light of my positive LA blood tests. Does anyone have any useful feedback from their app there?...

Hi. I've been referred to Broadgreen Rheumatology department in light of my posi...

Suecon

•6 years ago

2 Replies

Hydroxychloriquine and brain fog

Saw my neurologist on Tuesday, as I still don't tick all the boxes for lupus he has now diagnosed undifferentiated connective tissue disease and wants me to...

Saw my neurologist on Tuesday, as I still don't tick all the boxes for lupus he ...

Hidden

•6 years ago

9 Replies

'Referral Management Fees': how GP's pocket a bonus for NOT referring folks onwards

Hi! Wondering if anyone has any info on 'Referral Management Fees' - how GP's make money from not referring: I have very limited connectivity at the mo, and...

Hi! Wondering if anyone has any info on 'Referral Management Fees' - how GP's ma...

eekt

•6 years ago

26 Replies

Seeking someone with lupus in Merseyside for press interview

Hi, We've been contacted by a journalist from the Liverpool Echo who want to do a feature about lupus for Lupus Awareness Month in October. They are wanting to...

Hi, We've been contacted by a journalist from the Liverpool Echo who want to do ...

Paul_Howard

Partner•6 years ago

2 Replies

Skin cancer

I Have a sore on my right cheek and it's been there for a good while now,i just thought it might have been a pimple,i never really paid any mine to it.now it's...

I Have a sore on my right cheek and it's been there for a good while now,i just ...

tinamariemcpherson20

•6 years ago

22 Replies

Sore on my rite cheek

I have a sore on my right cheek and it's been there for months,i just thought it was a pimple and it never went away,i got ppl tellin me it could be skin...

I have a sore on my right cheek and it's been there for months,i just thought it...

tinamariemcpherson20

•6 years ago

5 Replies

Lupus rash or rosacea????

I have an appointment coming up with rheumatoid at the hospital due to high anti nuclear antibodies.. I already have hypothyroidism, hashimotos, oral lichen...

I have an appointment coming up with rheumatoid at the hospital due to high anti...

Lisas_tired

•6 years ago

41 Replies

Welfare Rights Officer has made me so relieved today

Since the Mandatory Reassessment on my reduction in PIP was unsuccessful I really haven't wanted to think about it, but had a look on gov.uk about Tribunals...

Since the Mandatory Reassessment on my reduction in PIP was unsuccessful I reall...

Lupiknits

•6 years ago

11 Replies

Prednisolone diary 14 - entre chien et loup

Another rheumy review reveals that all my blood markers are back within or near normal. This includes my CK, which has gone down from over 2,000 to 60, thanks...

Another rheumy review reveals that all my blood markers are back within or near ...

whisperit

•6 years ago

37 Replies

Lupus Centre London

Hi everyone, I have been fighting a battle with poor health for many years now as no one is prepared to commit themselves to a diagnosis. I feel I have been...

Hi everyone, I have been fighting a battle with poor health for many years now a...

2828

•6 years ago

12 Replies

Does anyone out there have any experience with Autoimmune inner ear disease (AIED)?

Hi all, I’ve had problems with my ears and hearing all my life. I’ve had an adenoidectomy, sinuses corterized, multiple grommets and t-tubes, Patulous...

Hi all, I’ve had problems with my ears and hearing all my life. I’ve had an aden...

Serser

•6 years ago

5 Replies

Getting bitten by mosquitoes! Do I need to be concerned?

So I've just come back from a lovely 10 day holiday in Barcelona and then Majorca, and it was so lovely and relaxing after my exams. Luckily it appears that I...

So I've just come back from a lovely 10 day holiday in Barcelona and then Majorc...

AmyJ3

•6 years ago

5 Replies

2018 blood tests

I can only add one photo, so this is a follow up picture to my 'First Rheumatologist appointment" post showing my 2015 ANA (almost exactly the same....

I can only add one photo, so this is a follow up picture to my 'First Rheumatolo...

patmackfin

•6 years ago

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Rituximab

Hi all I’m due my first round of IV Rituximab. Has anyone got any tips to keep me occupied during the 6 hour treatment and how did you cope with it, any side...

Hi all I’m due my first round of IV Rituximab. Has anyone got any tips to keep ...

Teaspoon13

•6 years ago

8 Replies

first Rheumatology appointment today

I can't find my original post to reply/add to but anyway.... I just got back from my first Rheumatology appointment.(I am ANA positive 1:640 for years on 2...

I can't find my original post to reply/add to but anyway.... I just got back fr...

patmackfin

•6 years ago

18 Replies

Flares and sunshine

If flares are related to sunshine. After our excellent Summer did you experience more or less flares in the Summer of 2018 than the Summer of 2017 (when...

If flares are related to sunshine. After our excellent Summer did you experienc...

Kevin53

•6 years ago

10 Replies

Hello there

Hi there, I'm new on here and never talk to anyone about Lupus or myself because I basically get fed up trying to explain what Lupus is and how it effects me....

Hi there, I'm new on here and never talk to anyone about Lupus or myself because...

Hidden

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2018

hi

WHY ME

Lupus neutropenic & lupus

SLE annual cardiovascular risk assessment & Vitamin D3 😎

Flu jab

Lupus sle andparathyroid

Anyone in Cornwall?

Losing hope

Gastric endoscopy

Sueesue

Kent based

Temperature going up and down

Misti31 about lupus flare up ...

Rheumatology appointment

Hydroxychloriquine and brain fog

'Referral Management Fees': how GP's pocket a bonus for NOT referring folks onwards

Seeking someone with lupus in Merseyside for press interview

Skin cancer

Sore on my rite cheek

Lupus rash or rosacea????

Welfare Rights Officer has made me so relieved today

Prednisolone diary 14 - entre chien et loup

Lupus Centre London

Does anyone out there have any experience with Autoimmune inner ear disease (AIED)?

Getting bitten by mosquitoes! Do I need to be concerned?

2018 blood tests

Rituximab

first Rheumatology appointment today

Flares and sunshine

Hello there

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