Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for March 2017

Kenalog injection

Helll fello lupies 😬 Got a kenalog 80mg injection yesterday in my behind for several joint pain , was interested if anyone else has received this injection xx...

Helll fello lupies 😬 Got a kenalog 80mg injection yesterday in my behind for se...

Lindy32

•7 years ago

3 Replies

Easter

Finally off now for 2 weeks and a day . Back to work on the 18th April . The children today finished at 2pm but because my lunch is 1:15-2 I got to leave at...

Finally off now for 2 weeks and a day . Back to work on the 18th April . The ch...

LouLamb

•7 years ago

2 Replies

Boarderline positive on ANA test. 1:40... does this mean I have lupus?? My doc said he is 100% I don't.

I can't help but wonder if that positive is going to turn into something... the only symptoms I have are hair shed and some fatigue... I'm confused. I read...

I can't help but wonder if that positive is going to turn into something... the ...

Hidden

•7 years ago

21 Replies

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How long does predisolone insomnia last

I have been off steroid from 4 month still I am facing insomnia. startrd with high dose but tapered slowly..Prior to diagnosis I use to have nice 8 hours of...

I have been off steroid from 4 month still I am facing insomnia. startrd with hi...

Avantidave1988

•7 years ago

2 Replies

Quick update.

Just waiting to be discharged from hospital after recent second heart attack , so thought a quick update was in order. Had an angiogram yesterday and it has...

Just waiting to be discharged from hospital after recent second heart attack , s...

KarenC

•7 years ago

4 Replies

Pericarditis

Hi all I seem to be having a huge flare at the minute been in hospital with GI issues ct scan showed enlarged spleen and now I have pericarditis. I am so...

Hi all I seem to be having a huge flare at the minute been in hospital with GI i...

Nicky79

•7 years ago

9 Replies

Mystery Trees and Moving - How to Control the Flares?

UsHaus move progresses! Henz are getting rehomed this week (I'm going to miss them - and their eggs!), I am boxing up stuff in the house and realising half the...

UsHaus move progresses! Henz are getting rehomed this week (I'm going to miss th...

Silvergilt

•7 years ago

8 Replies

Mouth sores and jaw pain

Morning all! My daughter is 19 and is undiagnosed at mo although gp thinks its lupus were awaiting a referral to a new rheumatologist In the mean time she is...

Morning all! My daughter is 19 and is undiagnosed at mo although gp thinks its ...

Lucida951

•7 years ago

2 Replies

Painful muscles

When you take baths, do your muscles hurt bad when you have lupus? And when you don't take a bath

When you take baths, do your muscles hurt bad when you have lupus? And when you ...

jensen_lynne

•7 years ago

4 Replies

Raised PSA levels with SLE ?

Is anyone aware of any connection of moderately raised PSA levels in individuals with SLE ?

Is anyone aware of any connection of moderately raised PSA levels in individuals...

jamesroybuck

•7 years ago

1 Reply

great read about the experience of pain

A dear friend sent me this article from a woman who suffer autoimmune issues and writes for the New Yorker. Some of the things, especially about what it's like...

A dear friend sent me this article from a woman who suffer autoimmune issues and...

katidid

•7 years ago

6 Replies

ANA gone??

latest blood work came back and my ANA tested negative? this has never happened. the other markers are still there, as are the same ol' symptoms, but this one...

latest blood work came back and my ANA tested negative? this has never happened....

katidid

•7 years ago

47 Replies

Lupus help

I have a 17 year old daughter who is currently suffering from severe fatigue, low mood aching joints mouth ulcers and headaches she has just been diagnosed...

I have a 17 year old daughter who is currently suffering from severe fatigue, lo...

L_curtis

•7 years ago

12 Replies

Lupus

Does anyone experience some shakiness, is it a symptom of lupus? In your arms when your in bed and your laying on your stomach and you're arms are holding you...

Does anyone experience some shakiness, is it a symptom of lupus? In your arms wh...

jensen_lynne

•7 years ago

5 Replies

Symptom help????

I wonder if any of you kind souls can help me. I have today been struggling with abdominal pains that go up to my chest. I e not experienced this before. I...

I wonder if any of you kind souls can help me. I have today been struggling wit...

dotty2203

•7 years ago

11 Replies

does anyone with SLE not affected by the sun

hi all, does anyone have SLE that does not get affected, or if you do what sort of symptoms do you normally get? i have had to cancel a holiday in the...

hi all, does anyone have SLE that does not get affected, or if you do what sort...

MsTMP

•7 years ago

33 Replies

Lupus flares

How long can flares last?

jensen_lynne

•7 years ago

1 Reply

Lupus rash appear and disappear

Can lupus rash appear and disappear?

jensen_lynne

•7 years ago

3 Replies

Outcome of Expedited Appointment

A very brisk young lady saw me. Unfortunately there was a long wait, so son had to get back to wotk before I was seen. I was asked why I had made the...

A very brisk young lady saw me. Unfortunately there was a long wait, so son had ...

Lupiknits

•7 years ago

23 Replies

bulging veins on hands

i am new here. I just want to know what to do with bulging veins on hand

jessgie

•7 years ago

1 Reply

Lupus rash?

Get rashes like this - most often on my hands, but at times else wear, mostly when stressed or worried about something, or when I'm hot; but sometimes they...

Get rashes like this - most often on my hands, but at times else wear, mostly wh...

bengali

•7 years ago

1 Reply

Burns wraps as 'socks' for Erythromelalgia?

Not going to work for me - at times even the thin strap on strappy thongs is enough to start a flare even on a cold day (mine seems pressure related, too, not...

Not going to work for me - at times even the thin strap on strappy thongs is eno...

bengali

•7 years ago

16 Replies

Lupus cuts appear

Why do cuts appear when you have lupus? I have cuts appear, could it be from lupus?

Why do cuts appear when you have lupus? I have cuts appear, could it be from lu...

jensen_lynne

•7 years ago

3 Replies

I have my 2nd appointment tomorrow with my GP with specialist interest in skin, first time since all this kurfuffle with officers at HB

Tomorrow I have my second appointment with the GP with specialist interest in skin. He took over my care when my Knight left in September 2016. First...

Tomorrow I have my second appointment with the GP with specialist interest in sk...

Wendy39

•7 years ago

35 Replies

Help for SLE

Hi! My name is Denisa and I am from Slovakia. I am a young student of Medical laboratory scientist and I am interested in disease of SLE. Now I'm going to work...

Hi! My name is Denisa and I am from Slovakia. I am a young student of Medical la...

Denisa

•7 years ago

9 Replies

6th Driving Lesson

Had my a lesson today at 7:15am. I drove myself to work. So much easier and nicer than getting 2 buses. I did some parallel parking and then bay parking at...

Had my a lesson today at 7:15am. I drove myself to work. So much easier and nice...

LouLamb

•7 years ago

8 Replies

Bad lupus fatigue

Are there times when you don't want to get get out of bed but you have to force yourself to get out of bed?

Are there times when you don't want to get get out of bed but you have to force ...

jensen_lynne

•7 years ago

10 Replies

Feed up.being no one 2 my kids

Hi .ant bin on ear 4 bit.ive bin filling well.no burning brain.taking vitamins as helped.but there's last couple days I ant felt to good.after 9yrs not seeing...

Hi .ant bin on ear 4 bit.ive bin filling well.no burning brain.taking vitamins a...

Candyfield

•7 years ago

2 Replies

azathioprine and sickness

In an attempt to get him off steroids my husband has been prescribed azathioprine and was sick several times, so advised not to take it for a couple of days...

In an attempt to get him off steroids my husband has been prescribed azathioprin...

trishp

•7 years ago

11 Replies

UK Strategy for Rare Diseases Implemented

Philip Dunne MP, Minister of State for Health has announced that NHS England will develop an implementation plan for the commitments outlined in the UK...

Philip Dunne MP, Minister of State for Health has announced that NHS England wil...

Paul_Howard

Partner•7 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2017

Kenalog injection

Easter

Boarderline positive on ANA test. 1:40... does this mean I have lupus?? My doc said he is 100% I don't.

How long does predisolone insomnia last

Quick update.

Pericarditis

Mystery Trees and Moving - How to Control the Flares?

Mouth sores and jaw pain

Painful muscles

Raised PSA levels with SLE ?

great read about the experience of pain

ANA gone??

Lupus help

Lupus

Symptom help????

does anyone with SLE not affected by the sun

Lupus flares

Lupus rash appear and disappear

Outcome of Expedited Appointment

bulging veins on hands

Lupus rash?

Burns wraps as 'socks' for Erythromelalgia?

Lupus cuts appear

I have my 2nd appointment tomorrow with my GP with specialist interest in skin, first time since all this kurfuffle with officers at HB

Help for SLE

6th Driving Lesson

Bad lupus fatigue

Feed up.being no one 2 my kids

azathioprine and sickness

UK Strategy for Rare Diseases Implemented

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