Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2020

Protein in urine

If you have lupus does protein always show in urine?

b1981

•4 years ago

6 Replies

Anyone got a extra large roll of bubble wrap?

So last night I lost feeling in both feet. I fell crashing into the wash hand basin. I hit my shoulder on the metal shelf and caught my leg on the damned floor...

So last night I lost feeling in both feet. I fell crashing into the wash hand ba...

CecilyParsley

•4 years ago

34 Replies

Hidden disabilities sunflower wristband

I received my sunflower lanyard a couple of days ago. It's a bit 'in your face' for me and more likely to draw people closer to read what the card says and ask...

I received my sunflower lanyard a couple of days ago. It's a bit 'in your face' ...

Whippet_lady

•4 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Teachers with Lupus going back to classroom

Pooh Bear (the wife) loves her teaching job and has been working from home on remote lessons for five months now. She is now being asked to return to work with...

Pooh Bear (the wife) loves her teaching job and has been working from home on re...

jimbo1605

•4 years ago

11 Replies

Are there side effects on Mycophenolate?

I have been azothiaprine for nearly 10 years but my consultant has now decided to change my medication to mycophenalate and I am a little concerned about side...

I have been azothiaprine for nearly 10 years but my consultant has now decided t...

Maddymay65

•4 years ago

27 Replies

Beautiful Golden shower. I think

One of my roses, which have been so beautiful this year ❤️

Maddymay65

•4 years ago

9 Replies

Onion and garlic. Starting to feel sane!

I started to read a thread on this forum about food intolerance and have since looked at the Johns Hopkins site which mentions garlic as being a potential food...

I started to read a thread on this forum about food intolerance and have since l...

RosieA

•4 years ago

15 Replies

Leg burning/pain

Hi everyone, For the past few weeks my left leg has been giving me abit of trouble.. When I'm working I feel like my shin keeps heating up and gets numb but...

Hi everyone, For the past few weeks my left leg has been giving me abit of trou...

Stacy123456

•4 years ago

1 Reply

Sunflower hidden disability

Hi, I wonder if anyone knows how long does it takes to receive the sunflower badge from the lupus website, I ordered about 5 days ago and I haven’t received...

Hi, I wonder if anyone knows how long does it takes to receive the sunflower bad...

Melaxx

•4 years ago

10 Replies

Lupus & Coronavirus (COVID-19) update coming - pausing shielding

Shielding is being paused in England, Scotland and Northern Ireland from Saturday, 1st August 2020 (in Wales it will be 17th August). You may still be at risk...

Shielding is being paused in England, Scotland and Northern Ireland from Saturda...

Paul_Howard

Partner•4 years ago

11 Replies

Tingling Arms

Hi All I have been on Hydroxychloroquine for 5 months now and get mild headaches and nausea both of which I can deal with. My new symptom is tingling arms that...

Hi All I have been on Hydroxychloroquine for 5 months now and get mild headaches...

Montysmum1

•4 years ago

5 Replies

Well! I just don't know what I have.

Over the last few months I have been on the NRAS forum - chatting away as it was the site I was directed to. Diagnosed with inflammatory arthritis, with...

Over the last few months I have been on the NRAS forum - chatting away as it was...

RosieA

•4 years ago

10 Replies

Maddymay65

I would love to see a picture of your roses - here are some pictures to help you post a photo go onto the home page of lupus uk and in the right top hand...

I would love to see a picture of your roses - here are some pictures to help you...

svfarmer

•4 years ago

3 Replies

Help

I wrote on here a few weeks ago. Things are getting worse daily and no one seems to know what’s happening to me. It started about a month ago. I am going to...

I wrote on here a few weeks ago. Things are getting worse daily and no one seem...

reo747

•4 years ago

9 Replies

Thrombocytopenia

Has anybody had (itp) Thrombocytopenia? I was admitted to hospital as my blood platelets were severely low and finding bruising all over my body.Ive had x2...

Has anybody had (itp) Thrombocytopenia? I was admitted to hospital as my blood p...

ButterflyAsh

•4 years ago

3 Replies

Does anyone suffer from chronic throat infections?

Recently, have had a chronic throat infection for the past three months even after 2 weeks on antibiotics. Trying to make appointment with Ear,Nose,throat...

Recently, have had a chronic throat infection for the past three months even aft...

Nurse22

•4 years ago

14 Replies

For happytulip

My hibiscus 🌺 is flowering in the garden - thought I would share x

svfarmer

•4 years ago

12 Replies

Has anyone been increased on Azathioprine? Did it help?

Hi all, i have been on Azathioprine 100mg for about a year now and I have been told that it doesn’t seem to be suppressing my neutrophil count. They have been...

Hi all, i have been on Azathioprine 100mg for about a year now and I have been t...

Sandy1212

•4 years ago

3 Replies

Sign-up to our new, Quarterly Email Newsletter

Next month, we will be launching our first ever e-newsletter which will cover all things lupus and LUPUS UK. The e-newsletter will be sent to all members who...

Next month, we will be launching our first ever e-newsletter which will cover al...

Chanpreet_Walia

LUPUS UK•4 years ago

10 Replies

Thigh pain

Since May I have had constant lupus flares, nothing serious, joint pains, fever, fatigue all the usual. Now for over a week i have had pain in what I think...

Since May I have had constant lupus flares, nothing serious, joint pains, feve...

Cal66

•4 years ago

5 Replies

Butterfly rash treatment?

Hi all, anyone got any tips on how to ease my butterfly/malar rash? mine has been quite aggressive for the past few days x

Hi all, anyone got any tips on how to ease my butterfly/malar rash? mine has bee...

Ralby1

•4 years ago

2 Replies

Newly diagnosed - Struggling for answers

Hi all - I have very recently been diagnosed with Lupus following a journey last year of 2 miscarriages and a very late stage ectopic pregnancy which very...

Hi all - I have very recently been diagnosed with Lupus following a journey last...

Georgiemarie_91

•4 years ago

23 Replies

Vitamin D tablets

Hello all Quick question have been advised to take over the counter vit d tablets does anyone have any recommendations on brands? They need to be ok for...

Hello all Quick question have been advised to take over the counter vit d table...

HelenL75

•4 years ago

19 Replies

Lupus?

Hi Eeveryone, I’m new here, I’m 28 years old Russian girl who lives in London. In February I developed mild rush (redness) over cheeks but didn’t pay much...

Hi Eeveryone, I’m new here, I’m 28 years old Russian girl who lives in London. I...

MariBrandt

•4 years ago

4 Replies

When will I learn?

It’s ten years now since my lupus diagnosis and for the most part I ‘bob along’ with my symptoms. But from nowhere again, fatigue has floored me for two days....

It’s ten years now since my lupus diagnosis and for the most part I ‘bob along’ ...

Susieliz39

•4 years ago

13 Replies

LUPUS UK News & Views Magazine Summer 2020 - OUT NOW

The summer issue of our magazine has been posted to our members today. For a peek at what's included go to...

The summer issue of our magazine has been posted to our members today. For a pee...

Paul_Howard

Partner•4 years ago

Be the first to reply

Media Request - BBC Radio 5 Live - Coming out of Shielding

Hi everyone, We've been contacted by BBC Radio 5 Live who are looking to feature someone with lupus on their Breakfast shows (6am-9am) on Friday and Saturday...

Hi everyone, We've been contacted by BBC Radio 5 Live who are looking to feature...

Paul_Howard

Partner•4 years ago

Be the first to reply

Painful hands

I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have...

I have had Lupus SLE for 16 years. My main problems are skin related. At the mom...

littlemissp

•4 years ago

1 Reply

It’s Mira Monday 🐶

Good morning everybody hope you all like this picture of Mira in her bed - she is incredibly photogenic 😊 Have a good week people xx

Good morning everybody hope you all like this picture of Mira in her bed - she i...

svfarmer

•4 years ago

11 Replies

Lung function test

Hi all, this is my first post from rainy Newcastle. I’m going for my first lung function test today and I’m a bit worried I am feeling fine in myself but it’s...

Hi all, this is my first post from rainy Newcastle. I’m going for my first lung ...

Wolfie1972

•4 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2020

Protein in urine

Anyone got a extra large roll of bubble wrap?

Hidden disabilities sunflower wristband

Teachers with Lupus going back to classroom

Are there side effects on Mycophenolate?

Beautiful Golden shower. I think

Onion and garlic. Starting to feel sane!

Leg burning/pain

Sunflower hidden disability

Lupus & Coronavirus (COVID-19) update coming - pausing shielding

Tingling Arms

Well! I just don't know what I have.

Maddymay65

Help

Thrombocytopenia

Does anyone suffer from chronic throat infections?

For happytulip

Has anyone been increased on Azathioprine? Did it help?

Sign-up to our new, Quarterly Email Newsletter

Thigh pain

Butterfly rash treatment?

Newly diagnosed - Struggling for answers

Vitamin D tablets

Lupus?

When will I learn?

LUPUS UK News & Views Magazine Summer 2020 - OUT NOW

Media Request - BBC Radio 5 Live - Coming out of Shielding

Painful hands

It’s Mira Monday 🐶

Lung function test

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