Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,687 members • 28,070 posts

All posts for March 2015

PIP Tribunal after being awarded and within 2 months having it taken away!

Hi, I have just submitted forms to go to tribunal to appeal my PIP decision. I applied in June (ish) time last year, had a medical (Capita) in October last...

Hi, I have just submitted forms to go to tribunal to appeal my PIP decision. I a...

Annalouk

•9 years ago

10 Replies

Lupus and TLC

Instead of fretting over my sle,decided while my mobility was good, it was about time I gave myself some T L C. I have always been the giver. So took myself to...

Instead of fretting over my sle,decided while my mobility was good, it was about...

sleek

•9 years ago

5 Replies

March's Blog - Gareth's experiences of being a male with lupus

For March and April we have invited men with lupus to share their experiences for our blog. This month's article comes from Gareth who was diagnosed very...

For March and April we have invited men with lupus to share their experiences fo...

Paul_Howard

Partner•9 years ago

4 Replies

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Pip

Pip!!! Got a decision within 8 days from having the assessment no problems at all with any of it!!

Pip!!! Got a decision within 8 days from having the assessment no problems at al...

Kellamitch

•9 years ago

8 Replies

Delivered a baby girl

Hi all..an year ago I have posted my worry about getting pregnant and how tge disease will have its effect...lupus group gave me good support regarding...

Hi all..an year ago I have posted my worry about getting pregnant and how tge di...

Manju-Manu

•9 years ago

29 Replies

Breakdown

Well, I had a breakdown! Ugh! Trying to be strong by myself with no support from family. My husband deals with it by running away and spending time with his...

Well, I had a breakdown! Ugh! Trying to be strong by myself with no support from...

Natura

•9 years ago

25 Replies

Tried and tried to lose weight

Keytone Slim XT Hi. I have been struggling for a couple of years too loose weight. I used to be very active in sport until about 5 years ago and had issues...

Keytone Slim XT Hi. I have been struggling for a couple of years too loose weig...

Tassiewoo

•9 years ago

38 Replies

Feeling down

I'm going from DLA to PIP dreading assessment !!! I'm assuming I have to go to as everyone had to!!! We shouldn't have to go through the worry/anxiousness...

I'm going from DLA to PIP dreading assessment !!! I'm assuming I have to go t...

Loraine14

•9 years ago

12 Replies

Has anyone of Black or Minority Ethnicity applied for wig help via the NHS within the last 5 years?

Apologies, it's a long post. My SLE caused my hair loss back in 2002. I was very devastated at the time as I loved having my hair braided and the versatility...

Apologies, it's a long post. My SLE caused my hair loss back in 2002. I was ve...

charm81

•9 years ago

3 Replies

Uncertain what is causing my problems. Could it be lupus?

Any advice? adeangeloadeangelo 5 hours ago 0 Replies I have been having a lot of memory issues especially names and faces, coming up with the right word,...

Any advice? adeangeloadeangelo 5 hours ago 0 Replies I have been having a lot o...

silverbeatl

•9 years ago

27 Replies

Kidneys

The past few year i have been suffering with what it seemed recurring uti's. The doctors have checked my wee samples and have always mentioned protein but did...

The past few year i have been suffering with what it seemed recurring uti's. The...

Deehealth

•9 years ago

8 Replies

Has anyone seen Professor Cope at Guys Hospital? Is he as good as D'Cruz??

I was referred about four weeks ago and my appointment is next week. I wanted to see PRof D'Cruz but have been assigned to PRof A Cope in rheumatology. Can...

I was referred about four weeks ago and my appointment is next week. I wanted to...

Annalouk

•9 years ago

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New to Lupus.......travel advice

Hi Guys. I have been diagnosed today with SLE after discovering DVT in my right leg last week. In five weeks time (30th April) I'm due to begin a 5 month...

Hi Guys. I have been diagnosed today with SLE after discovering DVT in my right ...

Char0209

•9 years ago

1 Reply

Seeing neurologist later and desperate for advice please

Hi there,this is my first post since registering and I'm really nervous but desperate........ Long story short, if possible, I go to see nuerologist later and...

Hi there,this is my first post since registering and I'm really nervous but desp...

hmg101190

•9 years ago

3 Replies

Pain Onces again

Hay there iv bin dignosed with lupus 3,years ago. On Friday night I feel ill could feel slight pain in my rib cage area, week end the pain increased by Monday...

Hay there iv bin dignosed with lupus 3,years ago. On Friday night I feel ill cou...

Mainshah

•9 years ago

4 Replies

Joining the dots. Hospital multi disciplinary meeting?

Hi I am a 46 year old male . 2 years ago I had a nasty infection following minor surgery, since then I have not been right. I have had fatigue , joint pain,...

Hi I am a 46 year old male . 2 years ago I had a nasty infection following min...

butch54

•9 years ago

5 Replies

Is this Lupus

6 months ago I got diagnosed for fibromyalgelia and 8 months ago I had a ana blood test that came back normal today's symptoms are pain all over my body witch...

6 months ago I got diagnosed for fibromyalgelia and 8 months ago I had a ana blo...

sparkleblue

•9 years ago

5 Replies

Brain involvement?

Brain involvement Can anyone enlighten me about this? I have been very concerned about my slow retrieval of facts/names. Sometimes I start a statement only to...

Brain involvement Can anyone enlighten me about this? I have been very concerned...

Footygirl

•9 years ago

7 Replies

Admitted it

Yesterday i saw my consultant at guys where i broke down for 2hours and cried till she cried with me. She told me i have been in denial about my illness i have...

Yesterday i saw my consultant at guys where i broke down for 2hours and cried ti...

avionne

•9 years ago

31 Replies

Any Lupus groups in West London?

Hello all, I hope you are all doing as well as you can today. I was looking through the Lupus UK booklet that I recently received this week and noticed there...

Hello all, I hope you are all doing as well as you can today. I was looking thr...

Lil-Miss

•9 years ago

3 Replies

GP told me he is changing my pain meds (Pregablin, carbamazepine & amitriptylene) due to costs

My GP told me today that he was changing my Pregablin from 150 mg 3 times a day to 225 mg twice a day. Also changing carbamazepine from 200 mg 3 times a day to...

My GP told me today that he was changing my Pregablin from 150 mg 3 times a day ...

Lorska

•9 years ago

4 Replies

Diagnosing Lupus

I lost a sister to lupus 40 years ago. Since then i have been diagnosed as coeliac and my two sisters are wheat intolerant. How can i have a test to find if I...

I lost a sister to lupus 40 years ago. Since then i have been diagnosed as coeli...

Asmarino

•9 years ago

2 Replies

Mycophenolate withdrawal

Hi all, I've been taken of Mycophenolate 500mg twice daily for a short while due to white blood cells been raised & having a throat infection. My question is,...

Hi all, I've been taken of Mycophenolate 500mg twice daily for a short while due...

smudge1980

•9 years ago

3 Replies

Sores and Ulcers

SLE\\ DLE I suffer from mouth ulcers but for the past 6 month the same time I get the ulcers I am getting circular sores on my scrotum. :( They are...

SLE\\ DLE I suffer from mouth ulcers but for the past 6 month the same time I ...

SouthShields

•9 years ago

9 Replies

Flare??

I need advise!! I think I am in a flare, I have got flu like symptoms, no energy, sleeping when I can, joints on my hand are sore n swollen, dry eyes, so I...

I need advise!! I think I am in a flare, I have got flu like symptoms, no energy...

irishgirl13

•9 years ago

12 Replies

Newly diagnosed

Hi all I have just got back from my consultant appointment and it now seems i have been diagnosed with either Lupus or Sjögren’s syndrome consultant said its...

Hi all I have just got back from my consultant appointment and it now seems i ha...

Dobermanndale

•9 years ago

12 Replies

New on this post

Hello everyone,saw this on spring edition of Lupus UK.I have Lupus/Sjogrens Syndrome overlap and I am 72,nice to know there is something like this to...

Hello everyone,saw this on spring edition of Lupus UK.I have Lupus/Sjogrens Synd...

Hidden

•9 years ago

10 Replies

Lupus nightmare!

Hi I'm Stephanie. I'm 25 and got diagnosed with SLE 3 years. My rheumatologist is useless and refuses to help me. Unfortunately lupus has affected my brain and...

Hi I'm Stephanie. I'm 25 and got diagnosed with SLE 3 years. My rheumatologist i...

Stephii89

•9 years ago

11 Replies

Another go at Methotrexate

Hi guys I got diagnosed with Lupus last October and since have been on Methotrexate tablets which I had awful nausea with so my doctors changed my tablets to...

Hi guys I got diagnosed with Lupus last October and since have been on Methotrex...

Cooper_13

•9 years ago

6 Replies

Can a claim anything...

Hello there, I have got few things wrong with me I have B12 deficiency, depression and CFS I can't work and not getting no help. Can anbody on here give me any...

Hello there, I have got few things wrong with me I have B12 deficiency, depressi...

DRW123

•9 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2015

PIP Tribunal after being awarded and within 2 months having it taken away!

Lupus and TLC

March's Blog - Gareth's experiences of being a male with lupus

Pip

Delivered a baby girl

Breakdown

Tried and tried to lose weight

Feeling down

Has anyone of Black or Minority Ethnicity applied for wig help via the NHS within the last 5 years?

Uncertain what is causing my problems. Could it be lupus?

Kidneys

Has anyone seen Professor Cope at Guys Hospital? Is he as good as D'Cruz??

New to Lupus.......travel advice

Seeing neurologist later and desperate for advice please

Pain Onces again

Joining the dots. Hospital multi disciplinary meeting?

Is this Lupus

Brain involvement?

Admitted it

Any Lupus groups in West London?

GP told me he is changing my pain meds (Pregablin, carbamazepine & amitriptylene) due to costs

Diagnosing Lupus

Mycophenolate withdrawal

Sores and Ulcers

Flare??

Newly diagnosed

New on this post

Lupus nightmare!

Another go at Methotrexate

Can a claim anything...

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