Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,695 members • 28,073 posts

All posts for March 2018

Foot spa & pedicure led to burning red skin on feet!!!!!! Never suffered from this before

Just wondered if anyone else has suffered from anything like this!!!!! I’ve had many pedicures in my time with no problem. What ever is wrong with me has...

Just wondered if anyone else has suffered from anything like this!!!!! I’ve had...

Lisalou19

•6 years ago

3 Replies

Help and support needed! Struggling.

Hello, I was diagnosed with lupus and sjogrens around 9 years ago (aged 18). Since that time I have seen countless specialists, had my diagnosis changed...

Hello, I was diagnosed with lupus and sjogrens around 9 years ago (aged 18). Sin...

Jessie_2014

•6 years ago

10 Replies

Taking mycophenolate mofetil abroad

Hi everyone my son Fin is going to Spain in a week. Does anyone know if there is any issue with taking MMF a) on a plane and b) into Spain? None of my...

Hi everyone my son Fin is going to Spain in a week. Does anyone know if there ...

Deegraham

•6 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Any horse riders out there???

I'd love to link up with any horse riders who suffer from Lupus. I'm having some minor problems and it would be good to share experiences and solutions....

I'd love to link up with any horse riders who suffer from Lupus. I'm having som...

HeKe

•6 years ago

11 Replies

New lupus clinic room- Leeds

Hello everyone! What a wonderful news, last week it was the official launch of the new dedicated lupus clinic room at Chapel Allerton Hospital. In Chapel...

Hello everyone! What a wonderful news, last week it was the official launch of t...

Dalilatm

•6 years ago

1 Reply

How are you beating it?

Hi, I am 30 and a new mum. I was diagnosed with Lupus after the birth of my first child 1 year ago. Like most people I almost certainly had it for many years...

Hi, I am 30 and a new mum. I was diagnosed with Lupus after the birth of my firs...

LaylaLin

•6 years ago

5 Replies

Rituximab

Hi I've been on steroids and other lupus medication for 3 years now but no change in my active lupus and when doctor try to reduce steroids I end up with bad...

Hi I've been on steroids and other lupus medication for 3 years now but no chang...

Charl1503

•6 years ago

19 Replies

I’ve over done it! 😣

I’ve over done it at work. I got home today and felt the pain and tiredness all over me. I fell asleep for an hour and a half and I’ve woken up more tired and...

I’ve over done it at work. I got home today and felt the pain and tiredness all ...

lisa___s

•6 years ago

10 Replies

Drug Induced Lupus?

Has anybody been diagnosed with this? I have had Sero positive RA for nearly 20 years, & have suddenly broken out in pinky red blotches all over my torso. They...

Has anybody been diagnosed with this? I have had Sero positive RA for nearly 20 ...

AgedCrone

•6 years ago

7 Replies

Prednisolone diary 9 - a cautionary tale

I began daily prednisolone (20mg) nearly 2 years ago, when I was first diagnosed. It probably helped eliminate the severe lung inflammation that was my major...

I began daily prednisolone (20mg) nearly 2 years ago, when I was first diagnosed...

whisperit

•6 years ago

24 Replies

MRI result ok....but why such bad pain??!!

I’ve had probs with my sacroiliac joints and previously been diagnosed a few yrs back with sacroilitis and narrowing and sclerosis of joint. Recently had mri...

I’ve had probs with my sacroiliac joints and previously been diagnosed a few yrs...

Sara_A

•6 years ago

8 Replies

How regular are your blood tests?

I would like to know from everybody as to how you keep a check on your SLE. Sometimes like in my case, i dont have any symptoms but my anti-dsdna suggest SLE...

I would like to know from everybody as to how you keep a check on your SLE. Some...

iffa28

•6 years ago

7 Replies

ELEVATED LEVELS...NOW WHAT

When you have elevated inflammation levels, what do doctors usually do from there to determine what exactly is causing inflammation? are their tests that show...

When you have elevated inflammation levels, what do doctors usually do from ther...

Winniesue

•6 years ago

11 Replies

Proton Pump Inhibitors

Hi I just joined this site because I was looking up the connection between PPI's and Lupus. I took Omezprazole for 14 years, every doctor I saw...

Hi I just joined this site because I was looking up the connection between PPI...

lilredhen

•6 years ago

2 Replies

Anyone else's Lupus muscle and joint aches worse during your period?

My leg muscles and arms feel that much heavier and ache FAR more during this time. My knees have always been painful during periods but now with lupus, it is...

My leg muscles and arms feel that much heavier and ache FAR more during this tim...

Joanna098

•6 years ago

23 Replies

Looking to help SLE patients with my personal experience with the disease!

Hi everybody! I am a 27 year old girl from Pakistan. Like many of us here, i was diagnosed at the tender age of 16. I have had my ups and downs with the...

Hi everybody! I am a 27 year old girl from Pakistan. Like many of us here, i was...

iffa28

•6 years ago

7 Replies

Problem with password

Admin....I need password reset help please. My app stoped working so I deleted it and it’s now making me sign back in. Thanks for the help.

Admin....I need password reset help please. My app stoped working so I deleted i...

Loopydroopy

•6 years ago

3 Replies

Hidden Illnesses

Thanks to Paul at Lupus UK for highlighting the following. Also Bridget for her wonderful day in the life. Invisible conditions: Don't say that to us!...

Thanks to Paul at Lupus UK for highlighting the following. Also Bridget for her ...

Kevin53

•6 years ago

1 Reply

Hypogammaglobulinaemia?

Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Another name for old...

Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a...

nancarolyn

•6 years ago

34 Replies

Lupus Sle

What is the best alternative to methotrexate for lupus sle

080160

•6 years ago

11 Replies

Hi everyone took ages to get this far reading all your stories.Ive fibro menieres disease chronic sinisinus dont know if I have lupus

IM FALLING APART I WANT MY DR TO SUGGEST LUPUS TESTING .I HAVE BUTTERFLY RASH DR SAID IT WAS RISECEA DEFO NOT AS SUN KILLS IT EVERY SYMPTOM OF LUPUS BLOODS...

IM FALLING APART I WANT MY DR TO SUGGEST LUPUS TESTING .I HAVE BUTTERFLY RASH DR...

lovableme

•6 years ago

7 Replies

Hi Everyone, I am having a terrible time with “restless legs”. Does anyone have any hints, I am already on Gabapentin and Amitriptyline

RESTLESS LEGS

kmuirhead

•6 years ago

10 Replies

Crp level for infant

I have my baby born just 2days ago and it has crp level at 6.1. Wat dose this signify

I have my baby born just 2days ago and it has crp level at 6.1. Wat dose this si...

Sunilmc

•6 years ago

4 Replies

Another piece, another question (neg. ebv PCR)

This week's episode of "As the Stomach Turns" finds us with one question answered- no, I don't have 'mono' or a reactivation of Epstein Barr Virus. The...

This week's episode of "As the Stomach Turns" finds us with one question answere...

DRunnerchick

•6 years ago

1 Reply

Has anyone found Tai Chi beneficial for Lupus joint and muscle pains?

I am thinking about trying a Tai Chi course but would love to hear if it has helped anyone else's aches and pains first. I am based near Bury St Edmunds...

I am thinking about trying a Tai Chi course but would love to hear if it has hel...

Joanna098

•6 years ago

12 Replies

Does anyone find electric blankets help with leg aches?

My calf muscles/knees ache most of the time and as I feel I have spent so much already on supports/pillows etc, I'd love to know if anyone finds they help with...

My calf muscles/knees ache most of the time and as I feel I have spent so much a...

Joanna098

•6 years ago

18 Replies

Migraines

Any ideas what could help me with my migraines? I’ve tried everything and although I can function my migraine recently has lasted over 4 weeks and is not...

Any ideas what could help me with my migraines? I’ve tried everything and altho...

MissFG

•6 years ago

6 Replies

Lupus + Contraceptive Pill (Endometriosis)

Hi, Does anyone with lupus take the pill? I found out that I may have endometriosis and they said because of the hydroxychlorquine and the fact they found i...

Hi, Does anyone with lupus take the pill? I found out that I may have endometri...

MsTMP

•6 years ago

4 Replies

Synacthen test result. Furious again!

Just rung up to chase the result of my synacthen test. The nurse had told me that she would ring next day if there was any problem, so after two weeks, I've...

Just rung up to chase the result of my synacthen test. The nurse had told me tha...

whisperit

•6 years ago

48 Replies

Workplace adjustments

I work as a designer in an office. My work is currently 70% computer based and 30% photography. The photography element tends to be very physical. Setting up...

I work as a designer in an office. My work is currently 70% computer based and 3...

eescvc

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2018

Foot spa & pedicure led to burning red skin on feet!!!!!! Never suffered from this before

Help and support needed! Struggling.

Taking mycophenolate mofetil abroad

Any horse riders out there???

New lupus clinic room- Leeds

How are you beating it?

Rituximab

I’ve over done it! 😣

Drug Induced Lupus?

Prednisolone diary 9 - a cautionary tale

MRI result ok....but why such bad pain??!!

How regular are your blood tests?

ELEVATED LEVELS...NOW WHAT

Proton Pump Inhibitors

Anyone else's Lupus muscle and joint aches worse during your period?

Looking to help SLE patients with my personal experience with the disease!

Problem with password

Hidden Illnesses

Hypogammaglobulinaemia?

Lupus Sle

Hi everyone took ages to get this far reading all your stories.Ive fibro menieres disease chronic sinisinus dont know if I have lupus

Hi Everyone, I am having a terrible time with “restless legs”. Does anyone have any hints, I am already on Gabapentin and Amitriptyline

Crp level for infant

Another piece, another question (neg. ebv PCR)

Has anyone found Tai Chi beneficial for Lupus joint and muscle pains?

Does anyone find electric blankets help with leg aches?

Migraines

Lupus + Contraceptive Pill (Endometriosis)

Synacthen test result. Furious again!

Workplace adjustments

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