Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,073 posts

All posts for August 2021

Bruises

Hi All, Does anyone suffer with random bruises on arms and legs? I've been recently diagnosed with Lupus sle and RA currently on 200mg hydroxychloroquine

Hi All, Does anyone suffer with random bruises on arms and legs? I've been rece...

Zeberdee1

•3 years ago

26 Replies

Malar rash self help

I have what I think is a malar rash. My GP also thinks it is a malar rash but has run out of ideas on how to treat it and so has referred me to dermatology...

I have what I think is a malar rash. My GP also thinks it is a malar rash but ha...

crazyk

•3 years ago

8 Replies

I'm suffering really badly with vertigo can anyone give me any tips to deal with it .

Vertigo

JCZW

•3 years ago

7 Replies

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SCLE and fibromyalgia? Paying for private rheumatologist?

I have subacute cutaneous lupus (take max dose of hydroxy). Have been unwell again for a few days. Swollen rash around eyes, extreme fatigue muscle pain....

I have subacute cutaneous lupus (take max dose of hydroxy). Have been unwell ag...

Raven_claw

•3 years ago

6 Replies

Sweats

Hello I’m just reaching out to see if anyone else has been having the same symptoms as myself. First off - I am 50 years old and believe I am peri...

Hello I’m just reaching out to see if anyone else has been having the same sympt...

SamRigs

•3 years ago

16 Replies

Travel insurance

Hi, does anyone know of a travel insurance company that will cover Lupus. We are heading to Greece? Thanks in anticipation.

Hi, does anyone know of a travel insurance company that will cover Lupus. We are...

Rushgreen

•3 years ago

17 Replies

Cloudy beach days

💓

JennaShi

•3 years ago

8 Replies

Early morning thoughts and worries

Was fine all day, went fishing off the pier and as it got chilly my Raynauds started acting up and short periods of vertigo. I was frustrated with A and let...

Was fine all day, went fishing off the pier and as it got chilly my Raynauds sta...

JennaShi

•3 years ago

11 Replies

It’s Monthly Mira Monday 🐶

Hi Folks, hope everyone is enjoying the Bank Holiday. This pic of Mira shows just how much she likes a cuddle and has so aided my recovery along with her mum...

Hi Folks, hope everyone is enjoying the Bank Holiday. This pic of Mira shows jus...

svfarmer

•3 years ago

54 Replies

Marginal keratitis

Hello I have had marginal keratitis 4 times since November 2020, each time I have gone to Moorfields A&E, they have been great, prescribed antibiotic &...

Hello I have had marginal keratitis 4 times since November 2020, each time I ha...

Laurajoy

•3 years ago

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Lichen Sclerosis flare

I felt feverish and headachey yesterday and stiff all over with the characteristic sore throat that heralds a flare of Stills (JRA) and this morning woke to a...

I felt feverish and headachey yesterday and stiff all over with the characterist...

Hidden

•3 years ago

4 Replies

Side effects from plaquenil generics

Hi everyone , I’ve been on plaquenil for 12 years . Plaquenil has been very good to me thank goodness . When I first started taking it I was put on the...

Hi everyone , I’ve been on plaquenil for 12 years . Plaquenil has been very goo...

Jances13

•3 years ago

6 Replies

Covid

Hi guys Some advice. Both my boys aged 20 and 17 have covid. 20 year old on day 6 ,17 just on day 2. I'm ok did another pcr waiting for result back. Question...

Hi guys Some advice. Both my boys aged 20 and 17 have covid. 20 year old on day ...

Bull5160

•3 years ago

5 Replies

Does this sound like a lupus flare?

Hello, Community. I recognise that my question may seem absurd, on this forum but my diagnosis of lupus, made in 2011 or so, was on the basis of blood tests...

Hello, Community. I recognise that my question may seem absurd, on this forum bu...

skylark15

•3 years ago

20 Replies

Back for Bank Holiday

Hello everyone Sorry to miss last week due to tech problems. I hope you'll agree 'cutie pics 'is back with a bang with this little one!. Meet 'Miss Tiggy ', a...

Hello everyone Sorry to miss last week due to tech problems. I hope you'll agree...

misty14

•3 years ago

70 Replies

Investing in a good Hoover

Hi all, I hope everyone is okay and doing well. For a while, I have wanted to buy hoover which will help with tidying up. At the moment I am using a dustpan...

Hi all, I hope everyone is okay and doing well. For a while, I have wanted to ...

SLE-Warrior

•3 years ago

53 Replies

Prednisone

Hi everyone any diet advise on how to lose weight on prednisone ( I’m on a low dose atm 5 mg ) I’m really struggling I’ve been on steroids a long time and I...

Hi everyone any diet advise on how to lose weight on prednisone ( I’m on a low d...

Melaxx

•3 years ago

18 Replies

And another one

I enjoy sharing pictures with you all soooooo much here’s another of the sun creating lovely shadows,

I enjoy sharing pictures with you all soooooo much here’s another of the sun cr...

Hidden

•3 years ago

1 Reply

Newbie lupus sufferer

I’ve had lupus for over 30 years but have only just discovered this forum. It’s very comforting to know that I can learn and ask questions about this ailment....

I’ve had lupus for over 30 years but have only just discovered this forum. It’s ...

Oshachota

•3 years ago

2 Replies

Lupus related nodular prurigo

Does anyone with Lupus suffer from nodular prurigo? I’m climbing the walls with the pain and itching. Haven’t been able to see my consultant for over 2 years...

Does anyone with Lupus suffer from nodular prurigo? I’m climbing the walls with ...

Oshachota

•3 years ago

4 Replies

Posting picture because I CAN!

Juicy red apples on my tree ready for eating and looking so pretty too. Hope you like them x

Juicy red apples on my tree ready for eating and looking so pretty too. Hope you...

Hidden

•3 years ago

26 Replies

Does anyone fear the heatwaves?

It’s in the news again that the UK is going to have another heat wave (it’s been 21 degrees today where I live) All of my colleagues and family are super...

It’s in the news again that the UK is going to have another heat wave (it’s been...

SadGirlRaceClub

•3 years ago

7 Replies

Now I’ve done it, rheum appointment tonight!

Hi everyone, hope we’re all well. My daughter had her birthday on Friday so we had a few days out to celebrate (queue massive pain from the heat outside, the...

Hi everyone, hope we’re all well. My daughter had her birthday on Friday so we h...

TeaandToast94

•3 years ago

13 Replies

I'm new in this site and i need help...

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until i finally able to get a proper diagnosis and...

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely tra...

nanaglitter

•3 years ago

6 Replies

Gym Difficulties

Hey All So I have started going to the gym and trying to build muscle. Ever since I had the blood result that suggests muscle wastage I've been trying to do...

Hey All So I have started going to the gym and trying to build muscle. Ever sinc...

Insomniacette

•3 years ago

16 Replies

Agh, back to back posts! Will ad an update to this one after I get my CT results

Hey everyone, Got the authorization issue sorted out. Talked to the supervisor at the imaging facility and it turns out I got a newbie and she, in her words,...

Hey everyone, Got the authorization issue sorted out. Talked to the supervisor ...

JennaShi

•3 years ago

6 Replies

My first rheumatologist appointment today

Hi everyone! So I had my first rheumatologist appointment today and I was absolutely terrified, I don’t know why but I was. I went in expecting no answers but...

Hi everyone! So I had my first rheumatologist appointment today and I was absol...

ClodaghK

•3 years ago

22 Replies

Digestive disturbances

I have been a member of the PMRGCAUK group for a few years now. I recently posted the following message there and was advised that I might find people with...

I have been a member of the PMRGCAUK group for a few years now. I recently poste...

Odosmum

•3 years ago

19 Replies

Recently diagnosed

Hi I'm very much new to this. Not sure where to start 😁 I have been diagnosed with SLE but still going through more tests and have upcoming appointments with...

Hi I'm very much new to this. Not sure where to start 😁 I have been diagnosed w...

Simplyme37

•3 years ago

11 Replies

Does any one know about mast cells and lupus or MCAS?

I accidentally came upon this and am wondering it you can have a problem with mast cells and lupus and rheumatologists and GPs may not think to explore it. I...

I accidentally came upon this and am wondering it you can have a problem with ma...

Pumpkin2009

•3 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2021

Bruises

Malar rash self help

I'm suffering really badly with vertigo can anyone give me any tips to deal with it .

SCLE and fibromyalgia? Paying for private rheumatologist?

Sweats

Travel insurance

Cloudy beach days

Early morning thoughts and worries

It’s Monthly Mira Monday 🐶

Marginal keratitis

Lichen Sclerosis flare

Side effects from plaquenil generics

Covid

Does this sound like a lupus flare?

Back for Bank Holiday

Investing in a good Hoover

Prednisone

And another one

Newbie lupus sufferer

Lupus related nodular prurigo

Posting picture because I CAN!

Does anyone fear the heatwaves?

Now I’ve done it, rheum appointment tonight!

I'm new in this site and i need help...

Gym Difficulties

Agh, back to back posts! Will ad an update to this one after I get my CT results

My first rheumatologist appointment today

Digestive disturbances

Recently diagnosed

Does any one know about mast cells and lupus or MCAS?

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