Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for March 2016

Budesonide

Hello i am being prescribed this new med for as have swelling on the liver that needs bringing down. I have lupus/sjorgens. Is anyone else on this med who can...

Hello i am being prescribed this new med for as have swelling on the liver that ...

luppylou76

•8 years ago

7 Replies

March's Blog Topic - Exercising with Lupus

We have just published our article for this month on the LUPUS UK Blog at http://www.lupusuk.org.uk/lupus-and-exercise/ Thank you so much to everybody who...

We have just published our article for this month on the LUPUS UK Blog at http:...

Paul_Howard

Partner•8 years ago

1 Reply

Support Group

Hi guys, Last week I got a letter from DWP saying that from a certain date I will no longer get ESA. Fine, just great! I thought. Now today I have received a...

Hi guys, Last week I got a letter from DWP saying that from a certain date I wil...

Alison-Brown

•8 years ago

4 Replies

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Urology

Hi everyone, I have an appointment in a couple of weeks with a urologist because for the past two years I keep getting re-occurring urinary tract infections....

Hi everyone, I have an appointment in a couple of weeks with a urologist because...

jacqueline121

•8 years ago

9 Replies

Aps?

Had my blood tests done for lupus... But something called aps has come back which is some sort of blood clot disorder? Is this a common thing to have with...

Had my blood tests done for lupus... But something called aps has come back whic...

Hidden

•8 years ago

2 Replies

Is this kind of leg pain normal?

Hello All. This is my first time writing in, although I have been reading the posts for some time now. It has helped knowing that there are others who are...

Hello All. This is my first time writing in, although I have been reading the po...

anniew1004

•8 years ago

6 Replies

Lupus is the tendons??I only learned this from a comment my DR never told me,

I thought I was insane when I would try to explain to my family how it feels like your tendons are being pulled tighter and tighter.But thats exactly how it...

I thought I was insane when I would try to explain to my family how it feels lik...

Julietsmombless2015

•8 years ago

10 Replies

Waiting on bloods

Hi. I'm not sure what to write so I will start from the beginning. Over a year ago I started to feel off. Dizzy aches fatigue and just like I couldn't get rid...

Hi. I'm not sure what to write so I will start from the beginning. Over a year a...

mullane_s86

•8 years ago

5 Replies

Love 🌷🌷🌷

Hello, I'm fairly new to the group. My name is Gena, I am 41 years old. I'm a single mother of 2 boys, well 2 adult young men I should say now lol. Ryan 23,...

Hello, I'm fairly new to the group. My name is Gena, I am 41 years old. I'm a si...

Genabena

•8 years ago

3 Replies

New & Frustrated

Good morning all :) Writing from the US. Forgive me in advance as I am extremely long winded. I've been reading different posts trying, hoping, to relate. And...

Good morning all :) Writing from the US. Forgive me in advance as I am extremely...

cassielynn71

•8 years ago

21 Replies

high wbc

Just wondered if anyone can advise. My wbc count, neutrophils and lympocites are quite high on my monitoring readings, but I have got no signs of an......

Just wondered if anyone can advise. My wbc count, neutrophils and lympocites are...

tjperfick

•8 years ago

5 Replies

Lupus or RA what's the difference?The doctor cannot tell which I have.

Well I dont know about all of these different diagnoses and they all seem to be about the same symptoms.All I can say is it's confusing and I was borderline 1...

Well I dont know about all of these different diagnoses and they all seem to be ...

Julietsmombless2015

•8 years ago

20 Replies

I felt good for 1 day yay WTH was that a smack in the face.I thought it was in remission for a day SMH

This is honestly the worse ever .I would've rather not felt good for a day or 2. I got a kidney infection and then it just came back with a vengeance of hell...

This is honestly the worse ever .I would've rather not felt good for a day or 2....

Julietsmombless2015

•8 years ago

3 Replies

Please help

God I am going mad, the bottoms of my feet are burning so bad when walking I can not stand it a minute longer I want to chop them of. Has anyone else got...

God I am going mad, the bottoms of my feet are burning so bad when walking I ca...

julie1234

•8 years ago

12 Replies

Sjorgens

Hi everyone. I've had Lupus for about 35 years and have now developed Sjorgens. Anyone else out there with very sore gritty eyes. Ointments and drops seam...

Hi everyone. I've had Lupus for about 35 years and have now developed Sjorgens....

KeepRinging

•8 years ago

12 Replies

The Lupus Encyclopedia

Look what the Easter Bunny brought me! Last week during a discussion here about lupus, sweating & the autonomic system, George posted a great excerpt from...

Look what the Easter Bunny brought me! Last week during a discussion here about...

Barnclown

•8 years ago

14 Replies

Body sore to the touch

I just got out hospital today and now my whole body is sore when touched ex specially th back of next and top of shoulders

I just got out hospital today and now my whole body is sore when touched ex spec...

Penrob

•8 years ago

2 Replies

Raynaurds and the summer

I have lupus and raynaurds. I was just wondering how raynaurds is affect when in the summer. For example if i were to wear shorts would take make my feet...

I have lupus and raynaurds. I was just wondering how raynaurds is affect when in...

LouLamb

•8 years ago

12 Replies

HYDROXY WILL WORK?

In my 6th month of taking hydroxy, which my rheumy said will be helping by now. Ermm .... still waiting. The pain in my left hip has now spread across the base...

In my 6th month of taking hydroxy, which my rheumy said will be helping by now. ...

Lupyknit

•8 years ago

11 Replies

Prednisolone.......

Hi all, I've had discoid lupus (DLE) for 9 years now and recently the butterfly rash as become dry and crusty, I've located a makeup to cover (thank God)...

Hi all, I've had discoid lupus (DLE) for 9 years now and recently the butterfly ...

Silverlady51

•8 years ago

9 Replies

The funny side of lupus #15

Is when........... After an awful trip to the supermarket, once again dealing with peoples attitude, arrogance and ignorance, you decide that becoming a...

Is when........... After an awful trip to the supermarket, once again dealing wi...

amandalilley

•8 years ago

2 Replies

Tips for the Summer

Wondering if anyone had any tips on how to manage their lupus in the sun. I went to south end yesterday, i didn't think i was that bad in the heat. I was...

Wondering if anyone had any tips on how to manage their lupus in the sun. I went...

LouLamb

•8 years ago

19 Replies

ouch my knee and thumb...

Hi! guys.. I was last on here in January, after seeing the Rhumey and he says my lupus isn't very active, and don't come back unless Gp says so...I always...

Hi! guys.. I was last on here in January, after seeing the Rhumey and he says my...

dgleds

•8 years ago

11 Replies

reached a road block

so over the past few weeks my health has been all over the place. I have had days or moments where I have felt fine and other points where I have felt so...

so over the past few weeks my health has been all over the place. I have had day...

seanto

•8 years ago

13 Replies

So confused

My GP is not providing any help but keeps writing pain killer meds prescription. I have rashes that gets bright red when exposed to even 5 mins of sunlight....

My GP is not providing any help but keeps writing pain killer meds prescription....

Ratana21

•8 years ago

15 Replies

mycophenolate Side effects ?

Hi everyone just an update from my last post- went to see consultant today and he prescribed me mycophenolate to take alongside my other medication. I have to...

Hi everyone just an update from my last post- went to see consultant today and h...

Charlottelauren

•8 years ago

4 Replies

Anti depressants

Anyone with lupus that is currently taking anti depressants! My GP said they would recommend talk therapy. But i need something to that will work.

Anyone with lupus that is currently taking anti depressants! My GP said they wou...

jade88

•8 years ago

3 Replies

Happy Easter

LUPUS UK National Office will be closed until March 29th 2016. If you need anything in the meantime, we have a wide range of information available at...

LUPUS UK National Office will be closed until March 29th 2016. If you need anyt...

Paul_Howard

Partner•8 years ago

5 Replies

botox

Has anyone had botox at the urology clinic for incontinence and was it successful? I have been offered it, but told to think about it, as I might need to...

Has anyone had botox at the urology clinic for incontinence and was it successfu...

robinson9

•8 years ago

7 Replies

Hating lupus is not the answer but sometimes it helps........

What more does lupus want..... Changed diet Exercised Gave up smoking - 5 years ago Gave up the hash - 5 years ago Have never drank Dont party Watch what meds...

What more does lupus want..... Changed diet Exercised Gave up smoking - 5 years ...

amandalilley

•8 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2016

Budesonide

March's Blog Topic - Exercising with Lupus

Support Group

Urology

Aps?

Is this kind of leg pain normal?

Lupus is the tendons??I only learned this from a comment my DR never told me,

Waiting on bloods

Love 🌷🌷🌷

New & Frustrated

high wbc

Lupus or RA what's the difference?The doctor cannot tell which I have.

I felt good for 1 day yay WTH was that a smack in the face.I thought it was in remission for a day SMH

Please help

Sjorgens

The Lupus Encyclopedia

Body sore to the touch

Raynaurds and the summer

HYDROXY WILL WORK?

Prednisolone.......

The funny side of lupus #15

Tips for the Summer

ouch my knee and thumb...

reached a road block

So confused

mycophenolate Side effects ?

Anti depressants

Happy Easter

botox

Hating lupus is not the answer but sometimes it helps........

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