Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,688 members • 28,071 posts

All posts for September 2017

Flare Post pred??

Hie Everyone I am just feeling down and seem to be having trouble with hot flushes at night , I have to sleep with a fan , anything I eat I end up feeling...

Hie Everyone I am just feeling down and seem to be having trouble with hot flus...

Prima2008

•7 years ago

4 Replies

GoTheExtraMile

Doing the above tomorrow and it is also Lupus Awareness month, I have totalled up I have raised £283 which is an improvement on last year. My challenge is to...

Doing the above tomorrow and it is also Lupus Awareness month, I have totalled u...

Johnnyb10

•7 years ago

5 Replies

Mycophnenalate

Hi all. Has anyone else struggled when starting this drug? I started 6 weeks ago and as soon as I hit maximum dose I started a stomach cramp that was 24/7 they...

Hi all. Has anyone else struggled when starting this drug? I started 6 weeks ago...

Neiluk75

•7 years ago

7 Replies

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Rash

I'm not sure whether this is lupus related. When I eat out I get a red rash over my face and neck, doesn't happen when I'm at home??

I'm not sure whether this is lupus related. When I eat out I get a red rash over...

Lancslass1962

•7 years ago

4 Replies

Cortisone

I've now been commenced on cortisone steroids due to my adrenal glands not functioning as they should, I forgot my afternoon dose and as a result I felt so...

I've now been commenced on cortisone steroids due to my adrenal glands not funct...

Jenn50

•7 years ago

2 Replies

At risk of diabetes

Hello everyone I went to my gp yesterday for my flu jab and after my jab the Healthcare assistant asked if i have been checked for my sugar level. I told her...

Hello everyone I went to my gp yesterday for my flu jab and after my jab the He...

ijeasike

•7 years ago

5 Replies

London lupus center appt

I saw Dr Kaul yesterday at the London Bridge Lupus Centre - He diagnosed me with Undifferented Connective tissue disease, which may or may not turn into Lupus,...

I saw Dr Kaul yesterday at the London Bridge Lupus Centre - He diagnosed me with...

Hidden

•7 years ago

18 Replies

Son update

My son has been bed bound for over a year after a steady decline in health over 4 years. He suffers from severe fatigue, brain fog, low mood and lots of...

My son has been bed bound for over a year after a steady decline in health over ...

jimbo1605

•7 years ago

4 Replies

Guys : Louise Coote : Prof Vyse

My wife has been referred to Prof Vyse at Guys. Grateful for any experiences and tips to get the best out of the consultation please.

My wife has been referred to Prof Vyse at Guys. Grateful for any experiences and...

jimbo1605

•7 years ago

2 Replies

pain in the tops of my feet and stiff hands.

My doctors aren't really any help ... and I have no formal diagnosis. But since the birth of my second child 6 years ago the pain in my feet and my stiff hands...

My doctors aren't really any help ... and I have no formal diagnosis. But since ...

Shancan

•7 years ago

9 Replies

28 day heart monitor result , confused !

Hi all , just got results back from 28 day heart monitor and don't really understand it can anyone help I know some of you have had these . It says max heart...

Hi all , just got results back from 28 day heart monitor and don't really unders...

Buffy14

•7 years ago

6 Replies

Car 🚘

I got a car 🙂

LouLamb

•7 years ago

31 Replies

Lupus life expectancy

Can you die from lupus? I am newly diagnosed so I feel so scared.

Tulipano

•7 years ago

12 Replies

Diagnosis and beyond

Hello all, I posted about a month ago and have since had my first rheumatology appointment. My rheumy was very thorough and she diagnosed probable SLE, severe...

Hello all, I posted about a month ago and have since had my first rheumatology a...

flap7

•7 years ago

4 Replies

Don't Give Up

Just joined this site. I was diagnosed with lupus in 2008 after been ill on and off for years. At the time I was diagnosed was ill for 4 months. My consultant...

Just joined this site. I was diagnosed with lupus in 2008 after been ill on and ...

Johnnyb10

•7 years ago

5 Replies

Diagnosed yesterday

Hi everyone. I saw my Rheumatologist for the third time yesterday and I was so scared. I always do this thing were I tell everyone I am fine to go to the...

Hi everyone. I saw my Rheumatologist for the third time yesterday and I was so s...

MoyaP

•7 years ago

12 Replies

Whats a girl to do?

So I have been told I have leukopenia and this really sucks. To walk around daily with low immunity and white count,. anyone else in this boat with me?

So I have been told I have leukopenia and this really sucks. To walk around dail...

jennyall12

•7 years ago

4 Replies

NEWBIE

Hi newbie here, I haven't got a diagnosis as of yet as I am being bounced from department to department :/ But I am feeling incredibly tired, isolated and of...

Hi newbie here, I haven't got a diagnosis as of yet as I am being bounced from d...

BULLBUSBUTT

•7 years ago

4 Replies

Feeling lonely

I Am feeling so down and lonely. I wish my husband would prioritise me before his job. He keeps saying to me that he can't take too many days off to take me...

I Am feeling so down and lonely. I wish my husband would prioritise me before h...

Tulipano

•7 years ago

15 Replies

Rheumatology at Worcester Hospital

Best wishes to all my fellow lupies! I’m a long time reader, 1st time poster. After another stressful appt with a specialist yesterday, that has left me...

Best wishes to all my fellow lupies! I’m a long time reader, 1st time poster. A...

sarahalice

•7 years ago

4 Replies

Turmeric

Does it help inflammation and joint pain? I started taking turmeric supplements this week. I take 2,000 mg a day. Not noticing any relief, should I increase my...

Does it help inflammation and joint pain? I started taking turmeric supplements ...

Hidden

•7 years ago

2 Replies

Blood Type

Curious as to whether there is any commonality of blood type and lupus (or autoimminue disorders in general). My blood type is O negative.

Curious as to whether there is any commonality of blood type and lupus (or autoi...

NeseVee

•7 years ago

16 Replies

Reynauds is of the Devil

Hi Lupies. I currently have SLE and my Nephritis has gone into remission. 👊🏽👊🏽 I was diagnosed with Reynauds disease when I noticed these red splotches on...

Hi Lupies. I currently have SLE and my Nephritis has gone into remission. 👊🏽👊...

Hidden

•7 years ago

2 Replies

What next

I'm now getting seriously fed up chest infection after infection for months last time I seen my chest Dr was may he treated me with antibiotics no sooner I'd...

I'm now getting seriously fed up chest infection after infection for months las...

Dion3844o1

•7 years ago

2 Replies

Seizure

Hi everyone I'm 47 and was diagnosed with Antiphospholipid at the age of 27 then Lupus at the age of 30..im on warfarin and Hydroxychloroquine...and in July I...

Hi everyone I'm 47 and was diagnosed with Antiphospholipid at the age of 27 then...

Rack

•7 years ago

5 Replies

Quinoric

Hi all. I have been Taking hydroxychloroquine for about 2 weeks. first two days I couldn't get warm and so tired. I have persevered for as long as I can but I...

Hi all. I have been Taking hydroxychloroquine for about 2 weeks. first two days ...

Mandypandy1969

•7 years ago

13 Replies

Even with Lupus, the world is still your oyster.

Hello all you beautiful people I'm new here and would like to share a little story. I'm a male with SLE, and lots of other conditions. So many that when I walk...

Hello all you beautiful people I'm new here and would like to share a little sto...

HODL

•7 years ago

5 Replies

Help & Guidance Please

We live in the UK, and my wife has recent been diagnosed with Lupus at our local hospital. I must admit my wife and I are find the whole experience very...

We live in the UK, and my wife has recent been diagnosed with Lupus at our local...

JonathanMasters

•7 years ago

4 Replies

Thrush😝

I have oral thrush again , through not just as bad as before . The gp has given me nystan which I started on Monday , yesterday I noticed that i had s pinpoint...

I have oral thrush again , through not just as bad as before . The gp has given ...

weathervane

•7 years ago

20 Replies

Flu Jab?

Has anyone had the flu jab at their Rheumy clinic at hospital? I'm seeing my Lupus nurse tomorrow but can't get the egg free jab at my GP's. Just wondered if...

Has anyone had the flu jab at their Rheumy clinic at hospital? I'm seeing my Lup...

MissFG

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Flare Post pred??

GoTheExtraMile

Mycophnenalate

Rash

Cortisone

At risk of diabetes

London lupus center appt

Son update

Guys : Louise Coote : Prof Vyse

pain in the tops of my feet and stiff hands.

28 day heart monitor result , confused !

Car 🚘

Lupus life expectancy

Diagnosis and beyond

Don't Give Up

Diagnosed yesterday

Whats a girl to do?

NEWBIE

Feeling lonely

Rheumatology at Worcester Hospital

Turmeric

Blood Type

Reynauds is of the Devil

What next

Seizure

Quinoric

Even with Lupus, the world is still your oyster.

Help & Guidance Please

Thrush😝

Flu Jab?

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