Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,073 posts

All posts for September 2021

Anyone on Cholesterol Meds

Hi! I have an appointment with the cardiologist tomorrow. I have a history of A-Fib and PVCs and take meds for that. My cholesterol and triglycerides are high...

Hi! I have an appointment with the cardiologist tomorrow. I have a history of A-...

Pumpkin2009

•3 years ago

15 Replies

Fundraising for Lupus UK

Hi guys I’m fund raising for lupus U.K. awareness month by committing to walking / jogging or even running one mile each day through out October! This is not...

Hi guys I’m fund raising for lupus U.K. awareness month by committing to walking...

Tinkabell555

•3 years ago

7 Replies

How to approach GP for first time about diagnosis?

Hi, I first realised I might have lupus just before the pandemic broke, as such I have done nothing about it since but due to fatigue potentially affecting my...

Hi, I first realised I might have lupus just before the pandemic broke, as such...

POB1971

•3 years ago

9 Replies

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Supplements -so much information

Hi all I know that we need to take vitamin D as those of us who are light sensitive and stay out of the sun need this, however there is also lots of other...

Hi all I know that we need to take vitamin D as those of us who are light sensi...

Cowsaresweet

•3 years ago

9 Replies

Astrazeneca vs Pfizer for Lupus Patients

Does anyone know what is the preferred covid vaccine for SLE Lupus patients will less harsh side effects? My GP suggested Astrazeneca because he has 'heard' of...

Does anyone know what is the preferred covid vaccine for SLE Lupus patients will...

UKMoss

•3 years ago

16 Replies

Fundraising for Lupus UK. Andy completed his epic milestones in Minehead to mark the start of Lupus Awareness Month.

My partner Andy Watts completed the final section of this years epic walking challenge to mark #lupusawarenessmonth Andy is fundraising for Lupus UK / my...

My partner Andy Watts completed the final section of this years epic walking cha...

fabwheelie

•3 years ago

6 Replies

Aching legs

I’m new here. In May my skin specialists confirmed SCLE following a biopsy. I am having other tests querying SLE because I have other symptoms. One of them...

I’m new here. In May my skin specialists confirmed SCLE following a biopsy. I a...

Mozart52

•3 years ago

10 Replies

Skin Lupus hydroxychloroquine

My daughter, 18, diagnosed 3 years with JSLE, only affects skin on face. She was put straight on 200mg. Hydroxychloroquine. The strongest side effect we...

My daughter, 18, diagnosed 3 years with JSLE, only affects skin on face. She ...

Katouch02

•3 years ago

4 Replies

Who do you talk to?

Hey All, So my ranula turned into a plunging ranula (I think) but the GP has referred me for an expedited cancer check as the gland beneath is swollen too and...

Hey All, So my ranula turned into a plunging ranula (I think) but the GP has ref...

Insomniacette

•3 years ago

9 Replies

Surgery

I have surgery on my hand on Sunday ( tendons alignment) I’m so scared , I’m not sure I can go through with it. In July a girl from my town who had lupus went...

I have surgery on my hand on Sunday ( tendons alignment) I’m so scared , I’m not...

Melaxx

•3 years ago

16 Replies

A chuckle 😂

This really made me chuckle and we all need a chuckle

svfarmer

•3 years ago

22 Replies

One plant much joy

Two years ago I grew 30 cosmos from seed nurturing them like babies. They all flowered and died and not a single one seeded or so I thought…… but in the last...

Two years ago I grew 30 cosmos from seed nurturing them like babies. They all fl...

Hidden

•3 years ago

14 Replies

PTSD

Hi I hope your all doing well I just wanted to let you know that I’ve not been able to answer some of yous as been in hospital with this covid about four times...

Hi I hope your all doing well I just wanted to let you know that I’ve not been a...

Liz2468

•3 years ago

11 Replies

Great British bake off

I’m a novice baker having started last year when Covid caused redundancy, hence early retirement. Wrist pain is prohibitive and I can’t stand for long due to a...

I’m a novice baker having started last year when Covid caused redundancy, hence ...

Hidden

•3 years ago

21 Replies

Gi updates and others

Hi Everyone! I hope you’re all staying safe and well. It’s certainly been an interesting month to say the least and will glad to be moving into October....

Hi Everyone! I hope you’re all staying safe and well. It’s certainly been an i...

JennaShi

•3 years ago

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Abbreviations

Hi So I've received my letter the hospital writes up after a clinic appointment. Anyway it has in it that I'm RNP postive and SM positive. I've no idea what...

Hi So I've received my letter the hospital writes up after a clinic appointment....

Bull5160

•3 years ago

4 Replies

Caption Competition No 2 Result

Hello everyone This week's 'cutie pics' is dedicated to Spotty-ewe ,winner of Caption Competition No 2 with ' i thought we were making good progress until...

Hello everyone This week's 'cutie pics' is dedicated to Spotty-ewe ,winner of C...

misty14

•3 years ago

47 Replies

Benylsta?

Hi, does anybody have experience or knowledge of Benylsta? Did it make you feel better? Or did you experience side effects? I believe that it is more widely...

Hi, does anybody have experience or knowledge of Benylsta? Did it make you feel ...

Lily77

•3 years ago

9 Replies

Moderna booster?

Wondering if my us friends who got moderna are getting a third shot. My cardiologist suggested I should because I work in a school with unvaccinated children....

Wondering if my us friends who got moderna are getting a third shot. My cardiolo...

Roarah

•3 years ago

23 Replies

COLLAGEN POWDER

Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, with some success. Our local health food store was suggesting a collagen...

Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, wi...

wallock

•3 years ago

11 Replies

Lupus and operations

I am scheduled for a total hysterectomy for the end of October. I was wondering if an operation like this will cause my lupus to flare? I’ve just had my first...

I am scheduled for a total hysterectomy for the end of October. I was wondering ...

Willow7733

•3 years ago

45 Replies

Headache, dizzy, diet

Hi, all I have just begun a keto diet, and although I have had occasional carbs, I have been pretty strict. However, I have had the headache from hell, for the...

Hi, all I have just begun a keto diet, and although I have had occasional carbs,...

Ianflashdavies

•3 years ago

6 Replies

Still getting beautiful sunshine!

Hi lovely community! Still getting beautiful sunshine in Kent, although I’m mostly staying in the shade unless I have to go out, and enjoying it from afar....

Hi lovely community! Still getting beautiful sunshine in Kent, although I’m mos...

TeaandToast94

•3 years ago

7 Replies

LUPUS EUROPE Virtual Conference starts Friday 24th September - Last chance to apply for registration

The LUPUS EUROPE Convention 2021 starts tomorrow! Ten brilliant virtual sessions over three days on topics chosen by the community. There is still time to...

The LUPUS EUROPE Convention 2021 starts tomorrow! Ten brilliant virtual sessions...

Paul_Howard

Partner•3 years ago

Be the first to reply

Is there anyone with Subacute Lupus cutaneous

Newly diagnosed in May this year. Finding it difficult to manage sun. Any tips would be helpful.

Newly diagnosed in May this year. Finding it difficult to manage sun. Any tips w...

Mozart52

•3 years ago

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Lupus and COVID-19 Vaccination - UPDATED 23/09/2021 - Third doses, booster doses and flu vaccines

Hi everyone, We have published an update to our information and guidance about the COVID-19 vaccines. https://www.lupusuk.org.uk/covid19-vaccination/ This...

Hi everyone, We have published an update to our information and guidance about t...

Paul_Howard

Partner•3 years ago

4 Replies

Tendons straightening procedure

Hi I need to have an operation ( booked the 3 Oct ) on my hand to straighten the middle finger and little finger , my right hand , the damaged was caused by...

Hi I need to have an operation ( booked the 3 Oct ) on my hand to straighten the...

Melaxx

•3 years ago

10 Replies

Lupus + covid positive

Hi all. I have Lupus, I'm double jabbed and was diagnosed with covid on Tuesday. I feel awful. Have left messages for my rheumy but not heard back yet. Just...

Hi all. I have Lupus, I'm double jabbed and was diagnosed with covid on Tuesday....

Apricot100

•3 years ago

59 Replies

Had my covid booster today....

Hi All, I've had my covid booster today, I work as a nurse as well as being immunosuppressed with my meds for lupus and APS. Was bit worried having it as I...

Hi All, I've had my covid booster today, I work as a nurse as well as being imm...

Sara_A

•3 years ago

8 Replies

Mouth ulcers

Hi really struggling with mouth ulcers and soar nose it’s got to the point where I can’t swallow without it hurting really bad I have tried ingloo Bon gel even...

Hi really struggling with mouth ulcers and soar nose it’s got to the point where...

diane46

•3 years ago

21 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2021

Anyone on Cholesterol Meds

Fundraising for Lupus UK

How to approach GP for first time about diagnosis?

Supplements -so much information

Astrazeneca vs Pfizer for Lupus Patients

Fundraising for Lupus UK. Andy completed his epic milestones in Minehead to mark the start of Lupus Awareness Month.

Aching legs

Skin Lupus hydroxychloroquine

Who do you talk to?

Surgery

A chuckle 😂

One plant much joy

PTSD

Great British bake off

Gi updates and others

Abbreviations

Caption Competition No 2 Result

Benylsta?

Moderna booster?

COLLAGEN POWDER

Lupus and operations

Headache, dizzy, diet

Still getting beautiful sunshine!

LUPUS EUROPE Virtual Conference starts Friday 24th September - Last chance to apply for registration

Is there anyone with Subacute Lupus cutaneous

Lupus and COVID-19 Vaccination - UPDATED 23/09/2021 - Third doses, booster doses and flu vaccines

Tendons straightening procedure

Lupus + covid positive

Had my covid booster today....

Mouth ulcers

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