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LUPUS UK

31,695 members • 28,073 posts

All posts for February 2016

Northern Ireland Lupus Group

We are having a meeting this Thursday 3rd March at 8.00pm in Whiteabbey Methodist Church Hall on the Shore Rd. A Rheumatology Nurse will be giving a talk and...

We are having a meeting this Thursday 3rd March at 8.00pm in Whiteabbey Methodis...

Bronagh2015

•8 years ago

1 Reply

The funny side of lupus #8

Is when, after the dropping of yet another kettle, ( i think i got up to about 8 or 9), because, even if you fill it for 1 cup, its still too heavy, you...

Is when, after the dropping of yet another kettle, ( i think i got up to about 8...

amandalilley

•8 years ago

3 Replies

February's Topic of the Month - Coping with Brain Fog

We have just published our article for this month on the LUPUS UK Blog at http://www.lupusuk.org.uk/coping-with-brain-fog/ Thank you so much to everybody who...

We have just published our article for this month on the LUPUS UK Blog at http:...

Paul_Howard

Partner•8 years ago

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Constipation Isn't Funny

My goal of writing this post is expressing to readers why you shouldn't use the word "constipation" as a joke, and to enlighten the public about the horrors of...

My goal of writing this post is expressing to readers why you shouldn't use the ...

candy176

•8 years ago

11 Replies

Sicca/Sjogrens

Hi all, just wanted to know what the difference is between Sicca/Sjogrens as I have been diagnosed with Sicca Syndrome. I have had SLE for 43 years including...

Hi all, just wanted to know what the difference is between Sicca/Sjogrens as I h...

ladylupin

•8 years ago

10 Replies

The funny side of lupus #7

I am a closet geek! I have been for many years and have only just revealed this in the passed 2 years to friends and family. My comics, toys, signed art etc...

I am a closet geek! I have been for many years and have only just revealed this...

amandalilley

•8 years ago

3 Replies

Diagnosis confirmed

Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested for SLE? As he'd read my notes, I said no although my sister has had lupus...

Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested...

ikandee

•8 years ago

4 Replies

The darker side of lupus #4

For me....... not being a morning person anymore..... why, I can here you ask.... My Lupus is a slow riser.... I used to be up at 5am, walk the dog, sort the...

For me....... not being a morning person anymore..... why, I can here you ask......

amandalilley

•8 years ago

20 Replies

The funny side of lupys #6 (with a bit of the darker side of me, no apology attached)

About a year ago, I had to admit to myself that my pimped wheelchair would be required more use than i wanted. So, putting my pride to one side, taking the...

About a year ago, I had to admit to myself that my pimped wheelchair would be re...

amandalilley

•8 years ago

16 Replies

Do I have lupus?

Hello, I'm new to the community and hoping someone can advise me on whether they think my symptoms sound like lupus and if I should book a private...

Hello, I'm new to the community and hoping someone can advise me on whether the...

Cleg

•8 years ago

15 Replies

Hi, looking for a rheumy please

Hello, I have aps and lupus like symptoms, my local rheumy isn't tremendous. Lol Anyway, I've been recommended a professor Bruce, at Manchester Royal infirmary...

Hello, I have aps and lupus like symptoms, my local rheumy isn't tremendous. Lol...

Ally7

•8 years ago

4 Replies

Is any of this familiar?

Hi everyone, I posted a few weeks ago about the symptoms I'd been having over the last year or so. This week has been a bad week and I just wanted to see if my...

Hi everyone, I posted a few weeks ago about the symptoms I'd been having over th...

friars126

•8 years ago

2 Replies

Hi, I am new here and wondering what sorts of syndromes you all had before being diagnosed with Lupus?

Over the last 35 years I have been diagnosed with interstitial cystitis, chronic migraine, IBS, heart murmur, depression and anxiety, osteoarthritis, GERD,...

Over the last 35 years I have been diagnosed with interstitial cystitis, chronic...

coralcee

•8 years ago

3 Replies

Crap time and need info on methotrexate??

Iv written everything I need to say in this picture please read xx

LillyAlfie

•8 years ago

13 Replies

Hydrochloquine

I been on hydrochloquine 200mg OAD when I was pregnant and have been taking it during pregnancy.my baby is now 7 month and I'm still breastfeeding. Iv been...

I been on hydrochloquine 200mg OAD when I was pregnant and have been taking it d...

ramada

•8 years ago

3 Replies

The darker side of Lupus #3

Is the occasions (& i have had a few), when, whatever you have tried, exercise, eating right, meditation, sleep, screaming, punching something, feeling good...

Is the occasions (& i have had a few), when, whatever you have tried, exercise, ...

amandalilley

•8 years ago

3 Replies

On BBC1 after the news is a programme called South East News. Tonight they are doing a piece on Lupus in a young woman.

I saw briefly tonight about a programme on the south East news after News on BBC1. It's about a young woman's struggle with Lupus and how ill it made her!...

I saw briefly tonight about a programme on the south East news after News on BBC...

goldengirl101

•8 years ago

15 Replies

The funny side of lupus #5

When a friend tells you of Chinese saying that may help....... 'Fall down 7 times get up 8' To which my imediate response was...please dont say that to a...

When a friend tells you of Chinese saying that may help....... 'Fall down 7 tim...

amandalilley

•8 years ago

6 Replies

Travelling with lupus

OK I know I should take all medicines in their original boxes with a copy of my repeat prescription, when travelling abroad. I'm going to Amsterdam this...

OK I know I should take all medicines in their original boxes with a copy of my ...

creaky

•8 years ago

7 Replies

Pills

Visited my gp because not well. She asked if I was taking any of my tablets I said not yet. She told me I should crush them. But im not sure if they can all be...

Visited my gp because not well. She asked if I was taking any of my tablets I sa...

LouLamb

•8 years ago

10 Replies

Help please

About this time last year I was feeling a bit rubbish, had a red, puffy face and my eyebrows were falling out. I didn't want to bother my very busy local GP...

About this time last year I was feeling a bit rubbish, had a red, puffy face and...

puffyface

•8 years ago

5 Replies

The funny side of lupus #4

When you have 6 chemists in your home town and you are on first names terms with every staff member in every one....... AND they ask you if there is anything...

When you have 6 chemists in your home town and you are on first names terms with...

amandalilley

•8 years ago

2 Replies

Sleeping problems!

Hi, I've recently had my medication changed and I'm now on 50mg of pred, I'm struggling to sleep longer than 4/5hours a night. Does anyone else suffer with...

Hi, I've recently had my medication changed and I'm now on 50mg of pred, I'm str...

Rachael23

•8 years ago

7 Replies

Benefits Warning

Hello all I had an interview at the Jobcentre yesterday where I was taken off ESA. It's little known that any DLA savings affect ESA, I was inadvertently over...

Hello all I had an interview at the Jobcentre yesterday where I was taken off ES...

misty14

•8 years ago

7 Replies

The darker side of lupus - #2

Is when you chose, after days and days of broken, painful sleep, to take a mild, over the counter sleeper to try and get some much needed rest, only for the...

Is when you chose, after days and days of broken, painful sleep, to take a mild,...

amandalilley

•8 years ago

2 Replies

Blood in bowel movements

Hi, I am currently going through a bad flare and was put on a seven day course of Prednisone - started off at four tabs, now down to one. Since yesterday, I...

Hi, I am currently going through a bad flare and was put on a seven day course o...

Jackiecnunez

•8 years ago

9 Replies

Stabbing pain in the head

I keep getting stab impair in the head it totally knocks me for six . Also keep smelling cigarette smoke, but know body smokes ? Any ideas

I keep getting stab impair in the head it totally knocks me for six . Also keep ...

Maggie26

•8 years ago

14 Replies

The funny side of lupus #3

When you realise that all the mouthwash and scrubbing of your teeth does not remove that awful metallic taste left in your month by certain medications and in...

When you realise that all the mouthwash and scrubbing of your teeth does not rem...

amandalilley

•8 years ago

9 Replies

Another moan I'm sorry....but.....

So it's been another few months since my last post and I need advice from people who understand cause who understands the pain having this pain in the backside...

So it's been another few months since my last post and I need advice from people...

Squeeshy

•8 years ago

6 Replies

Struggling with Lupus

Hi everyone, I thought I'd join as I've seen a lot of great posts on here. You'll have to excuse my rant below! As a quick background, I'm female and I've had...

Hi everyone, I thought I'd join as I've seen a lot of great posts on here. You'l...

NatDog

•8 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2016

Northern Ireland Lupus Group

The funny side of lupus #8

February's Topic of the Month - Coping with Brain Fog

Constipation Isn't Funny

Sicca/Sjogrens

The funny side of lupus #7

Diagnosis confirmed

The darker side of lupus #4

The funny side of lupys #6 (with a bit of the darker side of me, no apology attached)

Do I have lupus?

Hi, looking for a rheumy please

Is any of this familiar?

Hi, I am new here and wondering what sorts of syndromes you all had before being diagnosed with Lupus?

Crap time and need info on methotrexate??

Hydrochloquine

The darker side of Lupus #3

On BBC1 after the news is a programme called South East News. Tonight they are doing a piece on Lupus in a young woman.

The funny side of lupus #5

Travelling with lupus

Pills

Help please

The funny side of lupus #4

Sleeping problems!

Benefits Warning

The darker side of lupus - #2

Blood in bowel movements

Stabbing pain in the head

The funny side of lupus #3

Another moan I'm sorry....but.....

Struggling with Lupus

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