Posts - My Ovacome | HealthUnlocked

My Ovacome

18,205 members•20,349 posts

All posts for January 2024

Waiting for results

Hi everyone, I had a giant ovarian cyst removed, along with my ovary & fallopian tube 6 weeks ago. I have still not received any results. Is this normal?...

Hi everyone, I had a giant ovarian cyst removed, along with my ovary & fallopi...

Choc33

•10 months ago

18 Replies

Delayed neuropathy in one hand

Hi everyone, Happy New Year! Wanted to see if anyone has experienced this and what are ways to deal with it. I finished frontline chemo and didn’t have much,...

Hi everyone, Happy New Year! Wanted to see if anyone has experienced this and wh...

Doggies221

•10 months ago

7 Replies

CA125

Hello everyone. I’m currently NED from Stage 4 Ovarian cancer. My CA125 has always been 16-18 but it has now risen to 24. I know it’s still in the normal...

Hello everyone. I’m currently NED from Stage 4 Ovarian cancer. My CA125 has al...

Nectar24

•10 months ago

3 Replies

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Our Stories: being diagnosed with a rarer ovarian cancer - Monday 22 January, 3pm - 4pm

Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new...

Good morning everyone We wanted to let you all know that next week, we will be ...

OvacomeSupport

Partner•10 months ago

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Olaparib hasn’t worked for me . Anyone had this happen and had success with another PARP?

Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7...

Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. ...

Towergirl

•10 months ago

6 Replies

First Chemotherapy

First chemo for me tomorrow , any tips? I have Famotidine tablets to take 3 hours before Chemo , do you also take your normal prescribed tablets before going...

First chemo for me tomorrow , any tips? I have Famotidine tablets to take 3 ho...

Amber-0

•10 months ago

6 Replies

ca 125 test

hi I had symptoms. Mostly just stomach ache. For 2 months. I had a ca 125 test done. It’s was 36.7. Should I be worried? I’m 51. Peri menopause. But still get...

hi I had symptoms. Mostly just stomach ache. For 2 months. I had a ca 125 test d...

Coffeeandwinelover

•10 months ago

7 Replies

CA125 68 help

hi all I’m 31years old and last year went to the docs with pelvic pain and lower back pain fatigue Sex is painful sometimes. Ended up having a CA125 blood test...

hi all I’m 31years old and last year went to the docs with pelvic pain and lower...

NLK2023

•10 months ago

3 Replies

psoas Muscle Tumors

my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis. Various chemo and immunotherapy are helping keep it contained. Has anyone...

my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis...

Leniko

•10 months ago

1 Reply

second recurrence

Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been...

Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentatio...

Hota

•10 months ago

9 Replies

Carbo/Caelyx and CA 125

Hi Ladies, My mom has been treated for her first recurrence with the Carbo/Caelyx combo since September 2023 and she so far has finished 4 rounds. Her CA...

Hi Ladies, My mom has been treated for her first recurrence with the Carbo/Ca...

Centaur17

•10 months ago

6 Replies

Amitriptyline for neuropathy

Hi, I’ve been prescribed Amitriptyline for Polyneuropathy in my legs, have any of you tried this and was it successful?. I always get nervous about trying new...

Hi, I’ve been prescribed Amitriptyline for Polyneuropathy in my legs, have any ...

Hannah54

•10 months ago

17 Replies

How long does it take for ca 125 to drop with caelyx/ carboplatin?

Dearest, Hope all good. Do you have any idea, maybe based on personal experience , How long the tumour market ca 125 started decreasing with...

Dearest, Hope all good. Do you have any idea, maybe based on personal experience...

Pumpkininja

•10 months ago

18 Replies

Dealing with erm, unwanted smells in bathroom!

So I'm on chemo yet again, and a more slightly light hearted post I guess, but when my hubby uses the bathroom for erm number 2's the smell just makes me...

So I'm on chemo yet again, and a more slightly light hearted post I guess, but w...

Kouyate

•10 months ago

17 Replies

What's on at Ovacome next week (week commencing 15 January 2024)?

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•10 months ago

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Ovarian cancer advice

Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had...

Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months...

PaumicB123

•10 months ago

13 Replies

Trametinib

Hi , I have low grade serous ovarian cancer. I had debulking surgery in Jan 2020. I have been taking letrozole since then . The disease is present in pare...

Hi , I have low grade serous ovarian cancer. I had debulking surgery in Jan 202...

joanbaez

•10 months ago

6 Replies

Constipation from PARPS

Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo...

Hello, I had a recurrence last year after being in remission for over 6 years. ...

Chanterelle

•10 months ago

9 Replies

I am so affraid :(

I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 month off during DVT and covid and so on… mom is vomiting aprox 2 month…start...

I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 mo...

Inguc_is

•10 months ago

5 Replies

All the symptoms of OC but nothing seen on pelvic ultrasound or TV ultrasound and CA 125 of 11

Hi girls!! So my story started 4 months ago going to my GP with unusual bleeding, pain during sex, bowel and bladder changes and pelvic pain. Fast forward to...

Hi girls!! So my story started 4 months ago going to my GP with unusual bleeding...

redthedog85

•10 months ago

30 Replies

What's on at Ovacome next week (week commencing 8 January 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•10 months ago

Be the first to reply

Rising CA125- confused !!

Hi, hope you can help I'm very confused at the moment. I was diagnosed with Primary Peritoneal Cancer ( treated as ovarian cancer) Feb 2020. Great results...

Hi, hope you can help I'm very confused at the moment. I was diagnosed with Pri...

Rhonddalady

•10 months ago

10 Replies

Cold feet & change in toenail

Hi I am two years after chemo and since the I have been taking Niraparib highest dose everyday. I sometime have had cold feet but they seem to be cold a lot...

Hi I am two years after chemo and since the I have been taking Niraparib highes...

Jingles6

•10 months ago

3 Replies

Blood Test Results/Niraparib

Hello everyone I was diagnosed with High Grade Stage 4 ovarian cancer in July 2016, and have since had chemo, then surgery, and then 2nd line chemo following...

Hello everyone I was diagnosed with High Grade Stage 4 ovarian cancer in July 2...

Flora3

•10 months ago

4 Replies

possible recurrence…

Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of...

Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am hav...

sarah040866

•10 months ago

3 Replies

Advice needed!!

Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting...

Good morning, my mum has had a radical hysterectomy earlier this year followed b...

ORGM

•10 months ago

8 Replies

Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments

My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2)...

My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in Jan...

akhilsalwan

•10 months ago

14 Replies

Happy New Year

I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very...

I'm well and coming up to first anniversary of total hysterectomy for grade 1b ...

10Ronnies

•10 months ago

6 Replies

Slightly elevated CA125

Hi diagnosed with coeliac disease a couple years ago after suffering bloating for quite some time. Due to age (45) GP threw in CA125 for good measure, though...

Hi diagnosed with coeliac disease a couple years ago after suffering bloating ...

lauram1978

•10 months ago

12 Replies

chemotherapy dose reduced

hello first of all Happy New year to you all. I am now on my 4th Chemo and have just had my dose reduced due to low white blood count. It has been low for...

hello first of all Happy New year to you all. I am now on my 4th Chemo and have...

Kiara-52

•10 months ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2024

Waiting for results

Delayed neuropathy in one hand

CA125

Our Stories: being diagnosed with a rarer ovarian cancer - Monday 22 January, 3pm - 4pm

Olaparib hasn’t worked for me . Anyone had this happen and had success with another PARP?

First Chemotherapy

ca 125 test

CA125 68 help

psoas Muscle Tumors

second recurrence

Carbo/Caelyx and CA 125

Amitriptyline for neuropathy

How long does it take for ca 125 to drop with caelyx/ carboplatin?

Dealing with erm, unwanted smells in bathroom!

What's on at Ovacome next week (week commencing 15 January 2024)?

Ovarian cancer advice

Trametinib

Constipation from PARPS

I am so affraid :(

All the symptoms of OC but nothing seen on pelvic ultrasound or TV ultrasound and CA 125 of 11

What's on at Ovacome next week (week commencing 8 January 2024)

Rising CA125- confused !!

Cold feet & change in toenail

Blood Test Results/Niraparib

possible recurrence…

Advice needed!!

Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments

Happy New Year

Slightly elevated CA125

chemotherapy dose reduced

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