Ovarian cancer advice

[PaumicB123]

Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they talking about operation remove spleen ovary part bowel if it shows cancer am 76 any one had this experience thanks brave ladys in advance any help appreciated xx

[Leo2327]

Sorry to hear of the loss of your husband I have also been diagnosed 2 yrs I am stage 3c treatable but not curable but at the moment I am in remission i am 63 yrs I have had 2 major surgery with a stoma 8 lots of chemo a year with avastin and olaparib tablets the only bad side effect I have is the tiredness and sometimes low mood I wish you all the luck on this terrible journey

[PaumicB123 in reply to Leo2327]

Thanks so much for your comments could I ask how you going on with stoma and was it beneficial to you x

[Leo2327 in reply to PaumicB123]

I did cry my eyes out after my debulking surgery to find I had to have a stoma but the surgery would not be successful without I have got on great with it the stoma team are fantastic and it's just part of me now hope this helps you best wishes ❤️ ps you cannot tell with your clothes on not noticeable at all xx

[Kaitlinsmum]

Hello, hope you are feeling well today. I'm wondering if there is a cancer support group near you. Ovacome have some regional groups.

I have benefitted so much from the group I am in. I recently had surgery and was feeling miserable, a friend from my group came and took me out for a coffee and chat.

What part of the UK are you in?

I'm in Sam's Diamonds, which is based in the North west but there are ladies from further away who have joined and follow the group on Facebook. You can chat and ask the group questions. We support each other.

I would recommend doing a Google search for 'cancer support groups near me' .

Let me know if you need help with this.

Sending love xxxx

[Scaredgran]

Hi PaumicB123 so sorry for your loss,its so hard when you have to cope alone.I am 73,diagnosed 4b high grade serous in 2021.Had chemo then debulking surgery,then more chemo after.I had my spleen,appendix,and omentum removed,plus stoma.I can honestly say,it's tough to start,but am living a perfectly normal life now and enjoying and am grateful for every day.Positive thoughts help too,wishing you good luck x

[PaumicB123 in reply to Scaredgran]

Thankyou I will try be positive each day a bonus got decide if surgery worth going through how ongoing recovery as I live alone and can nly get so much help will they keep me in hospital if I don't have help Thankyou in advance any advice know all got own worries

[Pixiepurple]

Hi PaumicB123,

So so sorry for your loss. I cannot help as my journey has just started. But wishing you all the best. Xx

[PaumicB123 in reply to Pixiepurple]

Hope your journey is well

[grammeejill]

I am so sorry for the loss of your husband. I hope you have other family or friends to give you support during this health journey of your own. I wish you well. Hugs, Jill

[PaumicB123 in reply to grammeejill]

Thankyou x

[Trickysite]

Dear Paumic,

My 80 year old sister in law had an emergency stoma for a suddenly twisted bowel this year. She is doing absolutely fine with it, so, although, nobody relishes the thought of having one, if you do have one, you will be able to cope. And lead a normal life. At 75, I had a ten hour operation for OC stage 4B with multiple organs removed, so many I can't remember them all. It is now 2 years ago, and I am living a normal life and NED after carbo taxol and 2 years of Olaparib. I do hope you are getting the emotional support you need after going through your own treatment and at the same time so sadly losing your husband. Perhaps, the hospital or your GP can refer you to this kind of support. I have also lost my hair twice (breast cancer treatment 20 years ago, and then again with ovarian). I am just a great wig wearer and have had so many compliments from strangers who do not realise I am wearing one. Giving you a big hug and the strength to find the resilience. Love, Emma x

[PaumicB123]

Thankyou so much for your comments I am trying to be positive I see surgeon on Wednesday any help off lovely brave ladys what questions I should ask talking about remove o varies spleen fallopian tubes and maybe part bowel won't decide till they get in as they say as scans only tell part show so much I will have to decide no group for ovarian cancer advice only online there id dougie mac advice should I ring them sorry log post pain today so bit down Thankyou in advance xx

[Trickysite]

I suggest you call Macmillan and ask them if they have a booklet with information on what questions to ask before an ovarian cancer (or any cancer) operation. I would also try googling "what questions to ask for ovarian cancer operation". I have vague memories that one of the ovarian cancer forums publishes a booklet on this topic and it might give you a starting point for your questions and prompt you on how to approach the conversation. I think it would be good if you could take a relative or friend to the discussion for them to make notes and possibly ask questions. Also, I would give your hospital/Macmillan/GP/Ovacome a call and tell them how you feel about everything and ask for support. I hope your pain improves and your mood. Anyone would find it a lot to deal with and you deserve all the help you can get. Love, Emma x