Hello, I’ve read a lot of posts on here since the doctors first mentioned that my cyst might be cancer. In February I had lots of pain which was first seen as appendicitis, then PID, then nothing, then a cyst and now I know it’s cancer. I had an abdominal hysterectomy in July and it went well, the surgeon seemed pretty confident it wasn’t cancer at the time and then it hit me pretty hard when he told me 3 weeks later that the results showed cancer had started in my womb and moved to my ovary. So I’ve had another CT scan which I should get the results of today and I should also get my treatment plan - my nurse said it’s likely to be chemo followed by radiation. I guess I’m just reaching out to people who get it to say I’m scared as I’m trying to be positive with my family - I’m a single parent to 2 brilliant girls (12y and 10y)
Anyway, thanks if you’ve read this and I hope you’re all okay xx
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OrdinarySoul
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Hello, I hope your oncology appt goes/went well. I can only imagine how scary it must feel when you have little ones. Please reach out for support when you need to. Sending love xx
I know it’s a huge shock… I can remember that feeling of being completely flattened by the news even though I knew in my heart that it was cancer. I found that living one day at a time helped and still does when things are challenging. Take real pleasure in being with your lovely girls now today… none of us know what the future is (I don’t mean it will be bad..just that any of us could go under the proverbial bus!) xx
Thank you for you reply - one day at a time is really good advice (although sometimes it’s one hour or even one minute at a time at the moment!!) Take care x
Very sorry to read about your situation. I just want to wish you all the luck in the world with your Oncology appointment and treatment. A cancer diagnosis, expected or unexpected, is utterly terrifying. Macmillan offer free counselling - my consultant referred me as I was so all over the place and practically hysterical after cancer was confirmed in the histology. Your CNS should be able to organise this for you. It helped me enormously and I would really recommend it. Please ask your CNS what other support/advice they can offer you for yourself and your children - she will probably point you to Macmillan, who are brilliant. In the early days pre and post diagnosis and during treatment I followed all of my consultant’s advice and am very glad I did. Her advice was the best advice I could have been given. And I just kept putting one foot in front of the other, following her advice. Please let us know how you are. This site is fantastic and the ladies are lovely and a wealth of knowledge. Love from Mel
Thank you - it’s an absolute whirlwind at the moment, hoping that once my girls are back in school I’ll get a bit more time to process some of it and also maybe once I know more I’ll feel like I know what’s coming next. Hope you’re okay xx
It is a whirlwind once they get going! Once you know what you’re dealing with and you have your treatment plan you will feel a bit more in control. I am really well, thank you (as always, touch wood!) I am on holiday and having a lovely relaxing time in the last of our glorious summer ☀️. Love from Mel 💖
Hello 👋 I’m a Beth too! Thank you for taking the time to reply. Yes I’ve been pretty open with my girls from the start. At times I think it would be easier to not have to answer their questions on top of all the worries whirling round my brain but it’s been right for me to be honest with them. I’ve got other good support so I don’t feel like I’m burdening them with my stuff. My eldest seems most worried about whether I’ll lose my hair but my youngest is asking lots of questions about whether I’ll get better or not. It’s hard but I’m glad they’re talking. Hope you’re okay, good to hear your symptoms are mild right now as I’ve got all sorts of fears about what will happen to me xx
I was honest with my daughter from the start. I didn't find out until last month that I had confirmed Stage 2B ovarian cancer. I was admitted to A & E at Easter with stomach pain where I was told I had sinister looking ovaries 🤦. I had a full hysterectomy on 20 June.
I have now lost my hair, I got my daughter involved looking at headscarfs. At first it was a shock to us all when I had my hair shaved. I wanted to be in control as to when I loose my hair rather than chemo dictating to me when I loose it. I have also bought eyebrow stencils.
Can I ask when you shaved your hair? I’m feeling like you and want to be in control of something in all this. I’ve got a friend who does eyebrow stuff so she already microbladed mine after I got the diagnosis earlier this month because she felt like she couldn’t do anything to help but she could do that! Are the stencils any good? x
I had my hair shaved to 3mm the night before my chemo. Since the end of May I have had my hair cut shorter each time I went to the hairdressers. The night before my chemo I thought sod it, get it shaved. I then had it cut to 1mm last week when I realised my hair was falling out.
I wear my headscarfs around my village because when my daughter goes back to school I don't want children pestering her asking my I have a bald head. Away from the village, I have gone without a headscarf. To be honest half the time I forget I am bald. I wanted to go bald in public to show my daughter that it doesn't matter if you don't look perfect. That is just my personal opinion.
The stencils are good, I got them from Amazon. I dare not try and draw them free hand, I dread to think what they would look like 😂.
Sounds good 👍 I think I’ll be mixing bald head and headscarves too. It’s hard to picture how I’ll feel now but that’s what I’m thinking at the moment. My oncologist was good today so I’m feeling a bit more settled as I’ve got a plan now. Thanks for replying to me x
Hi , I’m doing the head scarf thing too at the moment.! Just one suggestion regardin* your children that I’m sure you have already done, which is talk to your children’s teachers so they can keep a close eye on them and offer more support and understanding to them, especially as they will be going back to a new term after spending the summer close to you.Wishing you all the very best.
Thank you 😊 I’ve emailed both schools but I’ve not had any response yet - I guess I might not hear until next week when the schools are back but thanks for reminding me to double check they got the information 👍 hope you are okay x
I cannot add very much other to wish you well. Regarding headwear, I cut my hair short so that when it fell out it was easier to cope with. I bought a wig and a couple of turbans, but I rarely wore the wig as it itched and it felt too ‘false’. The turbans (Christine) have been brilliant and I now have10; everyone says they looked very elegant and I feel super confident when I wear one. I was never brave enough to go out with a bald head! I would recommend getting one to wear in bed in the depth of winter! One again best wishes, use the ladies on here, they are all so helpful. Katy
I had ovarian cancer with a side of endometrial (womb) cancer in 2006. The endometrial ca was unsuspected until the pathology report came back. I have been cancer free ever since completing chemo in November 2006. Please ask if you need to be tested for Lynch syndrome (an inherited susceptibility to a range of cancers, most common of which is bowel cancer, but it's closely followed by endometrial and ovarian in women). If there's any family history, especially of bowel cancer, you should be tested. Think 3-2-1 = three generations affected, two in the same generation, one diagnosed under 50. If you fit all of those criteria you definitely should be tested! Hope all goes well for you.
Thank you - I think they said that I had been tested for this when they gave me the results but I can’t definitely remember so I will check with my team. My mum had bowel cancer last year so there’s definitely a reason to be tested. Hope you’re okay, it’s so good to hear positive stories of people in similar situations, helps ward off the negative spirals. Take care xx
Dear Ordinary Soul, very sorry read your post, I will be thinking of you and wishing you all the very best from across the pond . Fortunately, they are coming up with new and better treatments for this cancer all the time . I hope that you have a great doctor and support team to help you .All the very best,
Hello,Firstly- start believing that you can do this! Yes its scary. But its not hopeless. Your doctors have a plan. Ask them to explain it all to you. Do you have someone who can attend appointments or phone calls with you? It is often difficult to take in information so its helpful to have someone taking notes or asking your questions. You are on a journey but are not alone on it!
I have 2 girls, too. I would recommend talking to their teachers and head of pastoral care. My girls got Time Out passes if they ever felt upset, anxious or something triggered worrying thoughts. They could go to tbeir Year group pastoral team for some support.
Can I ask where you are? In the UK there are support groups. Im in north west england. I joined a women's cancer support group Sam's Diamonds who have been fantastic. Try to keep positive but allow yourself the release of a little cry when you need to!
Hi Claire, thank you for replying 😊 I’m in the UK too. I’m on my own with my girls so I’m going to appointments by myself but I think I kind of prefer it that way. I have great family and friends support so I could ask someone but so far I’ve felt that I need to digest it all myself before talking with someone else about it. My consultants and nurses have been so great that it’s worked for me so far. I got a call from someone in the health and well-being team from the hospital yesterday and she said that she’ll send me some info in support groups and stuff so I think I’ll go along to those because other people in the same situation just seem to get it in a different way to other people no matter how understanding and supportive they are. This was my first post on here and the responses have been so brilliant in helping me to not feel alone. Hope you’re okay xx
Keep positive thoughts even if it is only for small increments of time.........ask as many questions as you can and research exactly what type and stage you are at if it is in fact cancer. Also get genetically tested for braca and any mutations as that is helpful for what type of treatment they will give. Above all hug those precious little ones and hang tough this is not easy for you lean on ones you trust and also keep in touch with us here too. Ovacome is amazing and full of knowledge. Good luck and many hugs
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My doc is sending me to oncologist for a ct scan 
Unhappy with my last oncologist appointment
Hi everyone 
