Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for August 2020

TAXOL

Hi Ladies. Well the saga continues! Telephone call with consultant today. She had to ask if I'd had a scan before she found it on the system. After a quick...

Hi Ladies. Well the saga continues! Telephone call with consultant today. She ha...

Hidden

•4 years ago

30 Replies

Megace

I had a scan last week, the first since December due to Covid restrictions. They didn't want to do this one, said they still weren't doing routine scans. I...

I had a scan last week, the first since December due to Covid restrictions. The...

Di16

•4 years ago

7 Replies

Bowel problems

I am starting my third round of chemo as I have had bowel changes and it was found the cancer had grown around the bowel which my oncologist says it could make...

I am starting my third round of chemo as I have had bowel changes and it was fou...

Kempyhillbilly

•4 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Therapeutic writing session - what would you like to see?

Hello All We know many of you find writing helpful as part of managing living with ovarian cancer, whether its diaries and journaling, poetry, or stories. We...

Hello All We know many of you find writing helpful as part of managing living wi...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Tired and in pain

Hi, I am waiting for my first chemo appointment since I found out last week about my diagnosis. In the last few days my lower abdomen pain in back has...

Hi, I am waiting for my first chemo appointment since I found out last week abo...

Dubai18

•4 years ago

11 Replies

Post Chemo eye issues

I finished 2nd chemo three days ago. Today my right eye is red, watering and painfully sensitive to light. Does this sound familiar to anyone? Sashay

I finished 2nd chemo three days ago. Today my right eye is red, watering and pai...

Sashay2020

•4 years ago

18 Replies

Doxile

Had chemo today. Carbo/doxile. 15mins into doxile starting. Started breaking into a sweat and throwing up. Lot of pain in stomach. Pushed emergency button....

Had chemo today. Carbo/doxile. 15mins into doxile starting. Started breaking int...

patricia54053

•4 years ago

12 Replies

Virtual support events from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis...

Hello This is to let you know about the online events on our programme this w...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Changing consultants[edited by moderators]/clexane bruises [picture]

Is there a good way to go about this? [Edited by moderators] Mine at the mo is the opposite of simpatico. I tell myself she's hardened by the job but am not...

Is there a good way to go about this? [Edited by moderators] Mine at the mo is t...

candyapplegrey

•4 years ago

18 Replies

Parps.

Hello Ladies.. could someone tell me whether you need a tumour sample or what other criteria maybe needed to be prescribed Parp-inhibitors . I’m on 2nd line...

Hello Ladies.. could someone tell me whether you need a tumour sample or what ot...

rossnbren

•4 years ago

9 Replies

Bad Avastin reaction

Hello all. I was diagnosed with OC back at the end of Feb, after a cyst burst. At the time the emergency hysterectomy showed it was 'contained' and they staged...

Hello all. I was diagnosed with OC back at the end of Feb, after a cyst burst. A...

truewordweaver

•4 years ago

7 Replies

Sickness on Gemcarbo

Day 6 and I’ve been sick all day and every day since day 3. They only gave me 3 days anti sickness. Any advice. I feel ghastly....

Day 6 and I’ve been sick all day and every day since day 3. They only gave me 3 ...

Lockygill

•4 years ago

15 Replies

Sorry to keep moaning.

I'm so sorry I feel like I'm always whingeing. As previously stated I started second line treatment of carbo/caelyx last Thursday 11 days ago. I just feel so...

I'm so sorry I feel like I'm always whingeing. As previously stated I started se...

Cazbird

•4 years ago

12 Replies

Finally surgery! Swollen Inguinal lymph node.

Hi guys, I hope you are having a lovely Sunday. Dodging rainstorms here! I had posted a while back about discovering a fairly large hard, immovable inguinal...

Hi guys, I hope you are having a lovely Sunday. Dodging rainstorms here! I had...

Mommoo65

•4 years ago

10 Replies

Will My Ca125 Rise Again at Recurrence?

Hi ladies I know not everybody has a raised Ca125 level with ovarian cancer. My levels were raised at diagnosis at 374. Does that mean that when I have a...

Hi ladies I know not everybody has a raised Ca125 level with ovarian cancer. My ...

Jacky5

•4 years ago

20 Replies

Just to say hello

Just wanted to say hello to everyone. Joined this supportive and knowledgable site after being diagnosed with recurrence after 18 years. I have found a great...

Just wanted to say hello to everyone. Joined this supportive and knowledgable si...

Lizzieanne

•4 years ago

14 Replies

Update on MDT meeting Friday the scan

Hi everyone just to let you know that I had the news from the MDT meeting on Friday that the senior radiologist does not believe that the misting on the...

Hi everyone just to let you know that I had the news from the MDT meeting on Fri...

win_56

•4 years ago

18 Replies

Doxil

Hello Everyone- Has anyone had success with Doxil ? Going to start next week and running out of options. Hugs to All, Carol

Hello Everyone- Has anyone had success with Doxil ? Going to start next week an...

caf132

•4 years ago

6 Replies

First Follow-up

Hi everyone I finally had a follow up for my OC having fallen through the cracks! As I also had uterine and was discharged back to my surgeon for that, it...

Hi everyone I finally had a follow up for my OC having fallen through the cracks...

Yorkiepudd

•4 years ago

5 Replies

Ovarian cancer query

Hi Im new to this page. 46 year suffering from bloated tummy for past 4 to 5 months. Gp didn't see me (cause of covid) but based on my symptoms referred my to...

Hi Im new to this page. 46 year suffering from bloated tummy for past 4 to 5 mon...

Hidden

•4 years ago

10 Replies

CA 125

If the result of CA125 is low prior to surgery, does that mean no OC?

LMMG

•4 years ago

11 Replies

Recently diagnosed, chemo or not?

Hi everyone, I’ve read your stories and you all sound so brave and so positive but I’m fighting negativity as my experience of doctors has been pretty much all...

Hi everyone, I’ve read your stories and you all sound so brave and so positive b...

candyapplegrey

•4 years ago

28 Replies

Laura Update 2 - The Fight

First of all, let me thank all of you who have responded to my last Update with your support and helpful advice. I can’t answer everyone as I usually would,...

First of all, let me thank all of you who have responded to my last Update with ...

Lindaura

•4 years ago

75 Replies

Join us for the first virtual Touch of Teal gala on 3 October 2020

Dear All Some of you may be aware of, or have taken part as catwalk models, in the Touch of Teal events that have been run by the wonderful Touch of Teal team...

Dear All Some of you may be aware of, or have taken part as catwalk models, in t...

TheOvacomeTeam

Partner•4 years ago

2 Replies

Staging from scan

Does anyone know how accurate staging from ct and mri is before surgery? I'm worried the stage will be even higher after the op.

Does anyone know how accurate staging from ct and mri is before surgery? I'm wor...

Miniwilf

•4 years ago

12 Replies

Mucinous Ovarian cancer at 27

Hello, I had a benign Mucinous cyst in my right ovary in 2018 which was removed In December 2019 the Mucinous cyst came back in the same ovary and it was a...

Hello, I had a benign Mucinous cyst in my right ovary in 2018 which was removed ...

Memo_

•4 years ago

6 Replies

Thank you

just to say I've got the results from my scans and met with my medical team and the chemo is doing its stuff, and have my debulking surgery planned. Met my...

just to say I've got the results from my scans and met with my medical team and ...

Slipper1

•4 years ago

25 Replies

surgery is scheduled

Thank you to all the ladies who gave advice. Yesterday was my appointment with the surgeon. He viewed the CT scan and yes in fact found the mass that was not...

Thank you to all the ladies who gave advice. Yesterday was my appointment with t...

LMMG

•4 years ago

13 Replies

Carbo caelyx combo. Side effect.

Hi, I had my first treatment of this on Thursday. Has anyone experienced having very wobbly legs and feeling giggy? X

Hi, I had my first treatment of this on Thursday. Has anyone experienced having ...

Cazbird

•4 years ago

15 Replies

Stage 4B OC, 1st Recurrence. How is CarboPlatin and Gemcitibine as treatment?

I have just been diagnosed with a recurrence after 18 treatments of Carbo and Taxol and debulking surgery. Diagnosed originally in June 2019 with OC stage 4B....

I have just been diagnosed with a recurrence after 18 treatments of Carbo and Ta...

Kit_Culpepper

•4 years ago

20 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2020

TAXOL

Megace

Bowel problems

Therapeutic writing session - what would you like to see?

Tired and in pain

Post Chemo eye issues

Doxile

Virtual support events from Ovacome this week

Changing consultants[edited by moderators]/clexane bruises [picture]

Parps.

Bad Avastin reaction

Sickness on Gemcarbo

Sorry to keep moaning.

Finally surgery! Swollen Inguinal lymph node.

Will My Ca125 Rise Again at Recurrence?

Just to say hello

Update on MDT meeting Friday the scan

Doxil

First Follow-up

Ovarian cancer query

CA 125

Recently diagnosed, chemo or not?

Laura Update 2 - The Fight

Join us for the first virtual Touch of Teal gala on 3 October 2020

Staging from scan

Mucinous Ovarian cancer at 27

Thank you

surgery is scheduled

Carbo caelyx combo. Side effect.

Stage 4B OC, 1st Recurrence. How is CarboPlatin and Gemcitibine as treatment?

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive