Research

[Lilymay9]

I am really grateful for all replies. Thank you so much.

I have been scrolling through people’s posts... I wondered if anyone knows of any research happening with clear cell ovarian cancer?

Sending you all positive thoughts.

[Hidden]

if you click on "posts" at top of this page - a search box will appear on the right hand side.

Type clear cell in the box and a whole array of posts and replies will appear from the incredible knowledgeable ladies on here that have clear cell. I would recommend this as apposed to Dr Google as a lot of the info is scary and out of date. Good Luck x

[Lilymay9 in reply to Hidden]

Thank you xxx

[Seasun36-uk]

Hi Lilymay,

There is a charity with a good website called, “Target Ovarian Cancer”.

I think there is some information on there about research into Clear Cell OC.

Linda x

[Lilymay9 in reply to Seasun36-uk]

Thank you Linda xx

[lesleysage]

Hello again Lilymay9,

Ovacome has a Fact sheet on clear cell (ovacome.org.uk/clear-cell-c... and in the next edition of their Magazine (ring the office, ask to be a member and put on their mailing list, if you are not on this already) will have an article on the more rare cancers of which clear cell is one. Target Ovarian Cancer has other summaries on their website.

I am a Patient Rep. on a trial being run by Cancer Research UK-University College London on the use of the immunotherapy drug, Pembrolizumab, for recurrent clear cell ovarian cancer, PEACOCC (ctc.ucl.ac.uk/TrialDetails.... so if your stage 2 clear cell returns this maybe relevant to you...if the results are encouraging, of course. You can download detail from this site I've just quoted, which includes how to contact the trials team co-ordinator. Your oncologist may know of it already and certainly should be able to find out more if you prefer to ask him/her.

The trial only started recruiting last year in five centres: UCLH, Western General Hospital in Edinburgh, Churchill Hospital Oxford, The Christie Manchester and Mount Vernon in Hertfordshire. Hence, there are no results available yet.

Warm wishes, Lesley

[Lilymay9 in reply to lesleysage]

Hello Lesley thank you for that. I’m just at the beginning aren’t I? I am reading how to starve cancer by Jane McLelland! It only arrived lunch time and I can’t put it down. So is your trial for people who’s clear cell has reoccurred?

Margaret

[lesleysage]

Hi Margaret,

Lots in your few words! Yes, you are at the beginning of this most unwanted and unplanned part of your life but asking questions and learning some sound principles from what you read and learn is a great start.

I've not read Jane's book but when I consulted a dietician on how best to maximise the quality of the small amounts of food my tummy could cope with during the chemos, I suspect some of Jane's principles would be there. I'm sure work is being done on what foods 'feed' cancer cell replication and which foods inhibit/slow it down.

Yes, the research for which I am just a Patient Rep, not thankfully a patient as my clear cell has not returned so far, is aimed at those who have already had the 'standard drugs, e.g. carboplatin and taxol. But, keep asking your oncologist questions....and always remember every NHS patient is entitled to seek a second opinion. Ovacome Factsheets or their helpline can guide you on this. Many of us on this website have sought second opinions and most modern clinicians don't feel 'miffed' if you do. But, I suggest you read Ovacome's guidelines, or talk with them before making this choice.

Warm wishes, Lesley

[Lilymay9 in reply to lesleysage]

Thank you Lesley xx