Very good CA125 result, over 5 years since last... - My Ovacome

My Ovacome
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Very good CA125 result, over 5 years since last dose of chemotherapy

drdu
drdu

Hi everyone.

Just to report an update that my CA125 is 6 again, same as 6 months ago. Ibuprofen appears to be still working as an anti-cancer agent for me. See previous posts. I am assuming my tumour has the PIK3CA mutation, see previous posts in last year. I am extremely fortunate to be here. I was diagnosed with stage 3 PPC in Sept 2009, and had 2 recurrences, the last one in May 2014. Each time I very fortunately got full remission.

Last chemotherapy dose was over 5 years ago on Nov 7, 2014, and I have been fit and well since then, with CA125 running in single figures. It is checked every 6 months and I have a 6 monthly check with my cancer liaison nurse.

I am enjoying seeing my 2 young grandchildren, and still playing team tennis and hillwalking, and will be 72 next month. Sometimes it seems unbelievable. Thank goodness I chanced on an article about ibuprofen and its anti-cancer effect in some people in 2011, after my first recurrence. I am sorry it doesn't work for more people with ovarian cancer. You will see more info in my previous posts, especially in the last 18 months.

All best wishes to you all.

Eileen x

52 Replies
oldestnewest

Amazing news❤️ Thank you for sharing

drdu
drdu
in reply to Lind58

Thank you. All best wishes.

Eileen x

I cannot take ibuprofen now because my kidneys are compromised. But I am glad it is working away for you

drdu
drdu
in reply to suzuki

Thanks very much suzuki.

All best wishes.

Eileen xx

That’s funny as I was only thinking about you today 😃. You were one of the first ‘inspirational’ women I avidly read about when I joined Health Unlocked two years ago. I’m so pleased you’re doing well and enjoying life. Take care x

drdu
drdu
in reply to sticky3006

Thank you very much sticky. All best wishes.

Eileen xx

Great news Eileen!! 🥂🎉🎈

drdu
drdu
in reply to Seasun36-uk

Thanks!

E xxx

That is great news, continues to work well for you!

My mom is taking baby aspirin, started it after I read your posts, plus Pantaloc daily. She is doing well - fingers crossed. Main complication is a large hernia. Any knowledge if this aspirin would affect a hernia?

And we only know she has the BRIP1 mutation. Noone ever asked or told us to check for this PIK3CA mutation though. I suppose it's too late to check that. Did you ever have genetic testing done?

Thanks for posting this update, best wishes.

drdu
drdu
in reply to Luci22

They were going to try to do testing in my original tumour sample, but for some reason neither my consultant or I would get the result. Must be some trial or something. Not very helpful

Best wishes.

E xx

Luci22
Luci22
in reply to drdu

That is too bad, but still good to know.

Any idea if one should avoid ibuprofen with a hernia thaw keeps getting larger?

All the best!

drdu
drdu
in reply to Luci22

Ibuprofen shouldn't make any difference to hernia. Good luck.

All best wishes.

Eileen xx

Awesome news! Thanks for sharing!

drdu
drdu
in reply to Patty802

Thanks!

All best wishes.

E xx

Great news. It’s so important to read positive posts- they lift spirits.

Joy x

drdu
drdu
in reply to JayGeeCee

Thanks Jay. All best wishes.

E xx

Wonderful news 🎉🎉💐

drdu
drdu
in reply to LittleSan

Thanks LittleSan. All best wishes.

E xx

great news 🥰🥰🥰🥰🥰🥰

Thanks claire. All best wishes.

E xx

Lovely to hear from you Eileen, I often wonder how you are doing.

Keep doing what your doing

Marian xx

drdu
drdu
in reply to MH500

Thanks very much Marian.

E xxx

Really pleased for you Eileen. Chemo must by now seem like a long ago bad dream. It's such a shame that no real research is carried out on cheap generic drugs. I understand that the drug companies won't want to do it, but the NHS perhaps?

drdu
drdu
in reply to WoodyB

There is some research going on in UK but it's very slow. Cancer research UK doing aspirin trial.

Thanks Woody. All best wishes.

E xx

So happy to hear. Congrats! Can't imagine that long a remission and its so nice you don't take it for granted. Thanks for sharing oxoxox Judy

drdu
drdu
in reply to Maxjor

No, I don't take it for granted. I get very nervous every 6 months before the test, as you never know what cancer will do next.

Thanks very much. All best wishes.

E xx

Great news! Thanks for sharing!

drdu
drdu
in reply to delia2

Thanks delia!

All best wishes.

E xx

Great news. Hill walking as well!

Thanks January. Yes, am very lucky.

All best wishes.

E xx

Great news Eileen ! Xx

drdu
drdu
in reply to Spirit22

Thank you! All best wishes.

Eileen xxx

Wonderful news, and a great inspiration. Just finished third line carbo for "gynae cancer" , (no primary ever found) . Everything seen was in lymph nodes. Some responded to last treatments others remained the same or grew slightly.. Now on "watch and wait".

Am trying ranitidine, berberine plus 1/4 aspirin daily but having read your post may up the aspirin.

Really good to hear positive news, keep it up.

Best wishes

Janet

drdu
drdu
in reply to janwen52

Thanks Janet. The dose of aspirin is one 75mg tablet daily. There is a bigger aspirin tablet which is 300mg. Don't take it, as that's way too strong.

Best wishes.

Eileen x

Hi Eileen so glad to hear your story it brings hope to us all. I too was diagnosed with stage 3C oc PPC 17 month ago, had 3 rounds of chemo then radical debulking surgery, full hysterectomy, spleen and omentum removed and gall bladder and small bowel removed, hence stoma, Had 3 more lots of chemo taxol and carboplatin now in remission. I am going to start taking ipbrofen and see my doctor ti get some meds to protect my stomach...not sure whether they will like me taking it though but its my body and my decision. My CA125 is currently 3. I will keep you posted how i get on Wishing you all the very best.x

drdu
drdu
in reply to win_56

Sounds good idea, win. Do discuss with your GP or oncologist. Yes you must take something like omeprazole 20mg daily if on ibuprofen to protect your stomach. I don't know your full medical history and am not your doctor, and so you must discuss it with a doctor who knows your background. Good luck, and please do keep me informed.

E xx

Amazing. My oncologist said that the expected path for my cancer is shorter remissions after each recurrence. As my first remission was 14 months that didn’t fill me with much hope.

I am using dipyridamole which I think has similar properties? Hope so anyway. All the best for many more years without recurrence.

drdu
drdu
in reply to bluepeterella

Not sure about dipyridamole. On train now. Will try and check it out. Good luck.

Best wishes.

Eileen x

drdu
drdu
in reply to bluepeterella

P.S. thanks very much for your good wishes. Just googled dipyridamole. It does have some anti-inflammatory effects. Honestly don't know if it is as good as aspirin or ibuprofen. Haven't seen it mentioned as having anti-cancer effect in any research but it probably hasn't been looked into. The fact it has some anti-inflammatory effect is something in its favour.

Eileen xx

Dear Eileen , this is so very encouraging! God bless you. I was diagnosed 5 yrs ago with one recurrence in 2018. I have been taking advil every night. Mostly with PM. Thank you for sharing that about ibuprofen.

Stay well and continue enjoying your life!!

Xox

Marisa

drdu
drdu
in reply to Mptelesca

Thank you very much Marisa. That's good re advil. All best wishes.

Eileen xxx

Thank you for letting us know of your wonderful and encouraging news! I cannot take ibuprofen because I take blood thinners but I have heard of its cancer fighting properties. Hugs!!!

drdu
drdu
in reply to Mommoo65

Thank you very much Mommoo. All best wishes to you.

Eileen xx

Wonderful news ❤️

drdu
drdu
in reply to Yorkiepudd

Thank you!

Love and best wishes.

Eileen xx

Just started flarin! 👍🏻

drdu
drdu
in reply to jools53

Excellent! Good luck. Be sure to take omeprazole or similar to protect your stomach.

E xx

drdu
drdu
in reply to jools53

P.S. I hope you have checked with your oncologist or doctor that that is ok x

Doctor prescribed naproxen so I’m taking flarin as it’s possibly better on stomach allegedly !

drdu
drdu
in reply to jools53

Yes fair enough. Are you taking something to protect stomach? It is essential you do xx

Omprezole! That’s all some gut probiotics! No 2 taxol today! Just want to see my ca12( come down! Probably starting my coc protocol Monday? Just fill like I’ve got to hit it with everything! Wish I could switch off thinking about it , just consumes me every day looking for answers and help! Why have we not found a cure? Just sent off my tumour profiling! Hope that might help ! £2000 plus! Always hope! Some say high ca125 is still liveable, getting a bit concerned as 5yrs now! No assites yet!

Ranting on as bit, thanks for listening all 🙏

drdu
drdu
in reply to jools53

Good luck with everything.

Lots of love

Eileen x

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