First chemo: Help had first chemo yesterday after... - My Ovacome

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First chemo

Lavender2016 profile image
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Help had first chemo yesterday after postponing due to infection couldn’t have it as soon as carbo went in body had a severe reaction. Felt like I was on fire from tummy up to head and started going red in the face then breathing accelerated and had a full on panic attack so they stopped it straight away - back to see consultant on Thursday anyone else experience this?

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Lavender2016 profile image
Lavender2016
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12 Replies
Lindaura profile image
Lindaura

Dear Lavender,

Many people have allergic reactions to chemo. Evidently, it’s caused by an additive in the mixture, but with careful timing, appropriate antihistamines and steroids, and a VERY slow infusion, it can usually be dealt with.

It is a bit terrifying though.

So sorry you had to experience this,

Hopefully, your Oncologist and your chemo suite nurses will come up with a plan!

best wishes,

Laura

Lavender2016 profile image
Lavender2016 in reply toLindaura

Thank you Linda I’ve been very low today but you have managed to reassure me it wouldn’t be like that again x

RisaRob profile image
RisaRob

The same thing happened to me , they just gave antihistamines and steroids and continued the treatment. I didn't have any further reactions.

Lavender2016 profile image
Lavender2016 in reply toRisaRob

Did they carry on on the same day or did you wait till week after and did you have full dosage? Were you nervous about trying it again? X

RisaRob profile image
RisaRob in reply toLavender2016

They carried on the same day as soon as the reaction subsided. I was a bit nervous, but got through it :)

Lavender2016 profile image
Lavender2016 in reply toRisaRob

They wouldn’t carry on with me don’t know why maybe because I had breathing problems did get in a bit of a state good to know you were ok though x

Katmal-UK profile image
Katmal-UK

Hi Lavender, depending on how bad yr reaction was they may change you to cisplatin which is the forerunner to carbo. I can never have carbo again due to the reaction I had which given the way you describe your experience was a lot worse so hopefully the will prescribe additional antihistamine and you should be ok, they will monitor you very closely. Hope it goes well, Kathy xx

Lavender2016 profile image
Lavender2016 in reply toKatmal-UK

Thanks Xx

Flamingobeef18 profile image
Flamingobeef18

Hi Lavender

What an awful thing to happen at your very first chemo.

I don’t have any experience myself but just wanted to say how sorry I am that you had to go through this.

All I can say is that you were very unlucky and know that your medical team will sort it so it will never happen again.

The vast majority of infusions are very mundane and boring and pass without any incident . So here’s wishing for lots of boredom in your chemo future.

Lots of love

Juliax

fendweller profile image
fendweller

Hi you , very upsetting for you ,I had a reaction , extreme back pain ,they stopped it straight away , started it thirty minutes later at a slower rate ,it was fine ,try not to worry ,your team will have a plan for you ,good luck .xx

Caroles1 profile image
Caroles1

I had that, plenty of anti histamines and a slower infusion, done on the same day and it didn’t happen again, very scary, but don’t be scared, I had nothing like it after.

I am still here 5 years later xx

Lavender2016 profile image
Lavender2016

Thank you xx

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