Low Grade OC hope- Trametanib : This is at last... - My Ovacome

My Ovacome

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Low Grade OC hope- Trametanib

Levanah profile image
13 Replies

This is at last something we can look forward to. The results of the LOGS trial is now being reported on. Around about 8th October we should see a written summary of this but for now ESMO 2019 has revealed what we were waiting for .... scotsman.com/health/edinbur...

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Levanah profile image
Levanah
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13 Replies
Levanah profile image
Levanah

ecancer.org/en/video/8281-o...

Purple-iris profile image
Purple-iris in reply toLevanah

Thanks for posting, great link and fantastic news.

Let’s hope that NICE and NHS can fast track changes to treatment protocols

Best wishes Kim x

Lindaura profile image
Lindaura

That’s really great news. I hope they fast track it for approval!

Thanks for that,

Laura

Levanah profile image
Levanah in reply toLindaura

You’re welcome Laura. Fingers crossed ! Diane Xx

Spirit22 profile image
Spirit22

Thank you for sharing looks promising xx

Artgreen profile image
Artgreen

What brilliant news! I am feeling a bit more hopeful and I know my oncologist will be interested too. I’ve shared it and look forward to seeing him in December and seeing if the NHS can prescribe it.

Thank you for sharing!

Love

Alex x

Bev155 profile image
Bev155

Thank you for sharing.

thomas62 profile image
thomas62

Brill news. Lets hope it can get through NICE asap. We low graders need it! Gwen Xx

Levanah profile image
Levanah in reply tothomas62

Ovacome have been amazing .. I emailed them this morning and they have made contact with Novartis the pharma company that supplies Trametanib. I will do all I can to ensure this is accepted by NICE Gwen xxx

thomas62 profile image
thomas62 in reply toLevanah

Hi Levanah, Thanks so much - a good job done! Do you know what Ovacome are planning to say to Novartis. Perhaps sell if cheaper than the 9,000. per month that a low grader has just told me. I am off to London tomorrow for admission to Queen Charlotte's for more surgery. Hey Ho here we go (again). Gwen Xx

Levanah profile image
Levanah in reply tothomas62

Oh Gwen, good luck with your surgery dearest Teal Sister. Let us know how you get on when you can but I shall keep you in my thoughts.

Ovacome will be discussing how to make the drug available to low Grade ladies I should imagine. That amount of money is so much !!! I had no idea about that cost . There are compassionate grounds in which to apply too so that shouldn’t be ruled out whilst the drug is being introduced to NICE.

Sending you love

Diane x

Spirit22 profile image
Spirit22 in reply toLevanah

Well Done Levanah for taking this forward and Overcome Thank you XX

thomas62 profile image
thomas62

Hi Diane, Thanks for your good wishes. I will let you know when I can. Thanks for the other info. Also love and best wishes to yourself. Gwen Xx

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