Posts - My Ovacome | HealthUnlocked

My Ovacome

17,886 members • 20,113 posts

All posts for August 2017

Health unlocked/ Uganda promo!

OMG , journalist coming today to write article about ovarian cancer, health unlocked support group( that's you lot!!) and Uganda trip! Photographer too! Best...

OMG , journalist coming today to write article about ovarian cancer, health unlo...

Kayp

•7 years ago

4 Replies

Oh for a good poo

Hi everyone, One of my large orange-size ovaries is squashing my bowel and gradually blocking it up. I haven't been able to poo for several days. GP gave me...

Hi everyone, One of my large orange-size ovaries is squashing my bowel and grad...

Kryssy

•7 years ago

14 Replies

Recurrence

Well ladies I am feeling really down, 3 weeks ago I was ectastic having been told my brain mets had completely gone. Now I have had 2 nasty reactions slurred...

Well ladies I am feeling really down, 3 weeks ago I was ectastic having been tol...

valo

•7 years ago

21 Replies

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New here. In a bit of a pickle, to say the least!

Hello everyone. I hope I can become a member of your community as I don't live in UK. But, I am a UK citizen. I have been reading this site for some time...

Hello everyone. I hope I can become a member of your community as I don't live ...

Kryssy

•7 years ago

37 Replies

Carboplantin/taxoel is it really working?

Hi ladies, just 7 days ago I had my first round of chemo, having it every three weeks, after three sessions they may go to debulking, then further three...

Hi ladies, just 7 days ago I had my first round of chemo, having it every three ...

Joanie12

•7 years ago

24 Replies

Confused

Hi. I am 56. Thanks for letting me join. Have a cyst on one ovary. It was found when I was referred after restarting periods. Bloods came back normal. Had...

Hi. I am 56. Thanks for letting me join. Have a cyst on one ovary. It was found ...

Lesfar

•7 years ago

2 Replies

Letrozole query

Hi I'm going to start letrozole. Just wondering if anyone has found an optimal time of time to take it. And whether with or without food helps. Thanks

Hi I'm going to start letrozole. Just wondering if anyone has found an optimal...

Agility

•7 years ago

6 Replies

Loosing my hair very scared.

Hi you lovely lot.....🌟 I start chemo wed. And I've asked my nurse about cold cap and she said they don't offer it as it's time consuming. And it would be...

Hi you lovely lot.....🌟 I start chemo wed. And I've asked my nurse about col...

Zena41

•7 years ago

60 Replies

Endotremitios

I've been reading on this and the symptoms are the same as ovarian cancer . And last time I Had a scan she said I had endo scarring .im so confused why are all...

I've been reading on this and the symptoms are the same as ovarian cancer . And ...

lizalily

•7 years ago

6 Replies

Caelyx/carb help

Hi I am currently on 3rd line carbo /caelyx. I just have one more lot to go. Since my fourth chemo I have noticed the odd spot appearing which are itchy...

Hi I am currently on 3rd line carbo /caelyx. I just have one more lot to go. Sin...

Wiganw

•7 years ago

10 Replies

Sti possibly

Got to get to the out of hours . Can't stand this burning to Wee and pain in my lower back all the time .

Got to get to the out of hours . Can't stand this burning to Wee and pain in my ...

lizalily

•7 years ago

4 Replies

Chemo restarted

Well just 4 weeks after my bowel perforation following chemo 2, my treatment has re-started. Still feeling weak from surgery but all medical signs are good so...

Well just 4 weeks after my bowel perforation following chemo 2, my treatment has...

Eriksendi

•7 years ago

11 Replies

Sore skin

Good Morning everyone, Im on my fourth Carboplatin, which has been tough but doable, after number 2 experienced tingling in arms and tips of fingers which they...

Good Morning everyone, Im on my fourth Carboplatin, which has been tough but doa...

Hidden

•7 years ago

6 Replies

36 with 6 months of abdominal pain

Hi friends. Seeking guidance. I started having bloating and epigastric pain which started almost overnight and has persisted the last 6 months. I've seen gi...

Hi friends. Seeking guidance. I started having bloating and epigastric pain whi...

ccwbrca

•7 years ago

11 Replies

Dear Cancer, Thank you for...

Dear Cancer, Thank you for taking all the hair off my head, making me feel freakish and self-conscious. In the wee hours of the morning when my bladder wakes...

Dear Cancer, Thank you for taking all the hair off my head, making me feel frea...

Hidden

•7 years ago

19 Replies

Hi, I'm new here - advice for gynae appointment

Hello all, some very inspiring stories here, so I am going to ask for some advice from you lovely ladies! I recently had a weird bug which I gave me diarrhoea...

Hello all, some very inspiring stories here, so I am going to ask for some advic...

SeasideLover

•7 years ago

8 Replies

Lonely as hell!

Here goes. I'm in remission, have been for a while. Trying to meet someone. The women on traditional dating sites can't handle it when I tell them I'm...

Here goes. I'm in remission, have been for a while. Trying to meet someone. The...

Hidden

•7 years ago

9 Replies

Quick chemo response

Hi After just two cycles of Caelyx / carbo my CA-125 has gone down from being nearly 1000 to under 30. I am of course pleased to be responding so well , but...

Hi After just two cycles of Caelyx / carbo my CA-125 has gone down from being n...

2mini2

•7 years ago

9 Replies

Radical surgery experiences

Hello all If anyone has had radical surgery following a recurrence and would be willing to share their experience in our next newsletter, please could you...

Hello all If anyone has had radical surgery following a recurrence and would be ...

OvacomeSupport

Partner•7 years ago

4 Replies

Ding Ding Round 7

Some of you my remember that since February this year I have been on the LOGS trial for recurrent low grade serous ovarian cancer. I was at the hospital on...

Some of you my remember that since February this year I have been on the LOGS tr...

ScardyCat40

•7 years ago

17 Replies

Lymphoedema experiences

Hello all We will be doing a feature on lymphoedema in our next newsletter and would like to include stories of your experiences. If anyone would be willing...

Hello all We will be doing a feature on lymphoedema in our next newsletter and w...

OvacomeSupport

Partner•7 years ago

6 Replies

6th month check up not great :(

Hi ladies had my six month check today, was all going well until I ask about my ca125 results :(. They've gone from 13 to 192 😭 now being scheduled a ct scan...

Hi ladies had my six month check today, was all going well until I ask about my ...

Leianne7

•7 years ago

12 Replies

Greetings.....and Thanks!!!!

Hello All! So took a few days off work to refocus had a few days on the Wild Atlantic Way and my perspective has almost completely returned! I forgot to...

Hello All! So took a few days off work to refocus had a few days on the Wild At...

HogwartsDK

•7 years ago

12 Replies

Caelyx as a maintenance treatment.

Hi Lovely ladies, So far my treatment of Caelyx and Carbo is going well, 2 more to go. My oncologist has suggested Caelyx on it own as a maintenance treatment,...

Hi Lovely ladies, So far my treatment of Caelyx and Carbo is going well, 2 more ...

lorraine71-Australia

•7 years ago

24 Replies

CA125 reading 108

Please can anyone advise. Had blood tests got sent for urgent appointment. And now for an urgent scan 😢 I'm besides myself here

Please can anyone advise. Had blood tests got sent for urgent appointment. And n...

lizalily

•7 years ago

11 Replies

Belly swelling

Hi you lovely lot. Did anyone still have a swollen belly after ascites drained ? Ps haven't started chemo yet...... 💋

Hi you lovely lot. Did anyone still have a swollen belly after ascites draine...

Zena41

•7 years ago

15 Replies

Well I didnt expect that!

Hi everyone dont often post ..but wanted to share recent visit to GP. Been experiencing pain in hip and top of leg groin. Went to see a GP who was new wanted...

Hi everyone dont often post ..but wanted to share recent visit to GP. Been exper...

lou-b-lou

•7 years ago

21 Replies

ovarys

please help im so worried here. i had some bloods done on tues, had a call from the docter this morning that he needed to see me urgently. so i went and he...

please help im so worried here. i had some bloods done on tues, had a call from ...

lizalily

•7 years ago

36 Replies

Update: GP's don't want to help

Well after kicking up a fuss and throwing a strop I finally got a call from the GP who, having spoken to me is more than happy to prescribe the ant-isickness...

Well after kicking up a fuss and throwing a strop I finally got a call from the...

Katmal-UK

•7 years ago

23 Replies

Scan

Hi, My scan appointment is through for Wednesday this is nice and quick. I am scared but once I have forced myself to the hospital I feel better. It is five...

Hi, My scan appointment is through for Wednesday this is nice and quick. I am sc...

Ladyinred123

•7 years ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2017

Health unlocked/ Uganda promo!

Oh for a good poo

Recurrence

New here. In a bit of a pickle, to say the least!

Carboplantin/taxoel is it really working?

Confused

Letrozole query

Loosing my hair very scared.

Endotremitios

Caelyx/carb help

Sti possibly

Chemo restarted

Sore skin

36 with 6 months of abdominal pain

Dear Cancer, Thank you for...

Hi, I'm new here - advice for gynae appointment

Lonely as hell!

Quick chemo response

Radical surgery experiences

Ding Ding Round 7

Lymphoedema experiences

6th month check up not great :(

Greetings.....and Thanks!!!!

Caelyx as a maintenance treatment.

CA125 reading 108

Belly swelling

Well I didnt expect that!

ovarys

Update: GP's don't want to help

Scan

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