Caelyx/carb help: Hi I am currently on 3rd line... - My Ovacome

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Caelyx/carb help

Wiganw profile image
10 Replies

Hi

I am currently on 3rd line carbo /caelyx. I just have one more lot to go. Since my fourth chemo I have noticed the odd spot appearing which are itchy sometimes. I actually thought they were insect bites at first . They are just like pimples you would get on face but they don't go I think I have had first one 8 weeks. I have noticed more appearing and just wondered if anyone else had had these.

Thanks

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Wiganw profile image
Wiganw
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10 Replies
Lewisriley47 profile image
Lewisriley47

Hi Wiganw, I completed this chemo for 3rd line back in June, although I didn't have any spots I did find the skin on my legs was very dry and itchy, in fact 2months on I still have to moisture a couple of times a day. Pam

85live4ever profile image
85live4ever in reply toLewisriley47

Hi Pam, I have been using coconut oil with a few drops of frankincense oil in it. It has kept my skin nice & no dryness. I read both of these oils are ment to be cancer killers. I use them because I am not allergic to them where I am to normal body creams.

I hope you can keep this dryness at bay take care Cindyxx

Lewisriley47 profile image
Lewisriley47 in reply to85live4ever

Thank you I will give it a go Pam xx

85live4ever profile image
85live4ever

Hi Wiganw, yes,yes,yes, I got them too I thought they were bites. Very itchy won't go a way even waking me up through the night. I had my 4th carbo & caelyx then they came up with 2 on my foot & one on my leg.

I see the onc Tuesday to see if I am having any more chemo. I am hoping to have a break so hopefully the spots will go a way.

I am sorry you are suffering & hope they go a way very soon. The fact we both are suffering with very itchy spots that won't go a way I think it's the treatment. Thanks for posting at least I know what the spots are. Take care Cindyxx

Wiganw profile image
Wiganw in reply to85live4ever

Thanks for replying yes I thought it was but was not sure. I got a few after 4th but now after fifth have about 10 more. Especially around knees. I was wondering if I was going to have to fumigate😲 Sharonx

Jillwendy profile image
Jillwendy in reply toWiganw

Me too. Actually bought some stuff to combat flees as we have two cats and blamed them. Then realised they weren't scratching! Oncologist didn't seem to concerned and just said moisturise. Anyway finished chemo (fifth line) and all settled down now. Funny it's second time I had this cocktail, don't remember it last time. Hope it clears up soon and good luck with results. Jill

85live4ever profile image
85live4ever in reply toWiganw

Hi Wiganw, I only have 3 & thats enough not over 10 you poor thing.😣

Last night was the first time this month they didn't itch through the night.

I will mention it to my onc but I have a list as long as my arm at the moment so I will see. If they suggest anything I will let you know. By the time they see me they will need a week off with all the questions I have.

Good luck on your last chemo & hopefully theses naughty little spots will disappear. Take care Cindyxx

Wiganw profile image
Wiganw

Thanks everyone for your replays. It's not too uncomfortable but was more concerned it may have been something biting me. My propolis seems to keep skin moisturised well. Sx

Jenny1958 profile image
Jenny1958

I got a rash with my first chemo high dose treatment. It went away with lower dose. I used CeraVe cream. No smell & not oily or sticky. Someone who had recovered from breast cancer gave it to me. I give it to all my friends with cancer now. Works wonders. It's about $20 at Walmart but I only used half a jar thru chemo, surgery, chemo, maintenance.

Lily-Anne profile image
Lily-Anne

I would get it checked out. I'm not on Caelyx, but they have discussed adding it to Carboplatin as an option for next recurrence (the joys!), so I researched it, and itching or skin problems, rash, spots etc should be reported to the doctor as a less common side effect. I like to go armed with my list of what to expect and there plans for any reactions lol. (chemo phobia)

LA xx

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