Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2016

Lazy people piss me off.I'm in pain! Do not offer me up to do things you are too lazy to do thats total BS

I do as much as I can but by evening time I'm useless. I cannot walk literally.I sit on my bed with my foot massager and only walk to the bathroom.And it seems...

I do as much as I can but by evening time I'm useless. I cannot walk literally.I...

Julietsmombless2015

•8 years ago

8 Replies

PIP Denied

I did not get pip, received the letter today. I have to ring up and ask them to reconsider their decision before i can make an appeal the letter says. I think...

I did not get pip, received the letter today. I have to ring up and ask them to ...

LouLamb

•8 years ago

7 Replies

The funny side of lupus -taken from my own past 20 years. (If u dont laugh u cry, so laugh)

Keys in fridge Underware under pillow, including bra Credit card in cupboard Teabags in suger pot, on top of sugar Milk in freezer Cat treats in sweet treat...

Keys in fridge Underware under pillow, including bra Credit card in cupboard Tea...

amandalilley

•8 years ago

10 Replies

Want to take advantage of all our features? Just log in!

The dark side of lupus - the bits that are rarely discussed

My dark side of lupus is where at 5.20am u have been racked with such severe stomach cramps, for 3 hours, that all you have been able to do is place yourself...

My dark side of lupus is where at 5.20am u have been racked with such severe sto...

amandalilley

•8 years ago

3 Replies

Has anyone hear got TNF receptor associated periodic syndrome.

Had my routine Lupus consultant app today and was telling her how I have been and the usual things as we do..and well she thinks as well as SLE, serousitis etc...

Had my routine Lupus consultant app today and was telling her how I have been an...

willowwag

•8 years ago

10 Replies

Pip assessment tomorrow :(

I have my Pip assessment tomorrow and I literally feel sick to my stomach. Iv read all the horror stories about how awful it is and how they try to catch you...

I have my Pip assessment tomorrow and I literally feel sick to my stomach. Iv re...

Bellacat2011

•8 years ago

7 Replies

Waiting to be diagnosed...

Hiya all.. I'm only 20 years old and been extremely ill since October 2015 and signed off work, admitted to hospital for a week and was also wheelchair bound...

Hiya all.. I'm only 20 years old and been extremely ill since October 2015 and s...

Hidden

•8 years ago

7 Replies

The funny side of lupus.....

Is when your best friend, who has known you longer than you have had lupus, pays an unexpected visit (i am sure he smelt the chocolates from earlier) - bounds...

Is when your best friend, who has known you longer than you have had lupus, pays...

amandalilley

•8 years ago

1 Reply

Good days and bad days, the mind games of lupus

God day - When, despite the pain, you can feel glamorous, in your dressing gown, even sitting in your chair, enjoying indulgent chocolates and a great cup if...

God day - When, despite the pain, you can feel glamorous, in your dressing gown,...

amandalilley

•8 years ago

4 Replies

My soon to be sister in law has lupus as do I.Her insurance has just been canceled and she cannot get her plaquenil anymore

My fiance's sister has been on plaquenil for over 2 years now.They cut her off of her insurance because she is 26 and cannot be on her parents any longer.She...

My fiance's sister has been on plaquenil for over 2 years now.They cut her off o...

Julietsmombless2015

•8 years ago

6 Replies

My Stalker - lupus

Exhaustion, pins and needles, nausea, sickness, diarrhoea, Costrochronditis, lupus nephritis in both kidneys, loss of peripheral vision, memory loss, kidney...

Exhaustion, pins and needles, nausea, sickness, diarrhoea, Costrochronditis, lup...

amandalilley

•8 years ago

22 Replies

I need some advise/ help

Hi, When I was 9, I was a very nervous kid. Over thinking, freaking out and literally would worry a lot. Then it happened. My family named it "twitches" were...

Hi, When I was 9, I was a very nervous kid. Over thinking, freaking out and lit...

Emzii101

•8 years ago

32 Replies

Vitamins

Hi can anyone tell me what best vitamins to take with lupus. I'm already taking vitamin D3 and floradix. Many thanks

Hi can anyone tell me what best vitamins to take with lupus. I'm already taking ...

Faithing-it

•8 years ago

12 Replies

Pins and needles

Does anyone suffer with pins and needles in their feet and can anything be done

Lucyllama

•8 years ago

19 Replies

Angry after accident

Hi everyone sorry to rant but i feel so angry, feel lile crying. I have been battling lupus ,fibro,sjogrens arthritis ad raynauds for past 5 years. All meds...

Hi everyone sorry to rant but i feel so angry, feel lile crying. I have been bat...

Josieswolf

•8 years ago

6 Replies

Breathing pain

I'm nearly 40 been dx with SLE, SS and am on AZA and Hydroxychloroquine. I've been fairly well for the last year or so since being on AZA but started this week...

I'm nearly 40 been dx with SLE, SS and am on AZA and Hydroxychloroquine. I've be...

ADXLC

•8 years ago

2 Replies

Medication

Went for Rheumatology Appointment this week she told me that my heart scan had showed that I have to much pressure on my lungs this was what is making me...

Went for Rheumatology Appointment this week she told me that my heart scan had s...

sharon53

•8 years ago

3 Replies

had enough

Hi all I have had a constant headache for 2 weeks now it is driving me crazy, have been taking codeine topped up with paracetamol to no a vale. I am going...

Hi all I have had a constant headache for 2 weeks now it is driving me crazy, h...

julie1234

•8 years ago

7 Replies

I cannot get the medication bottles not baby proofed because I have a little 10 month old.I have relief from lupus because of a kidney stone

I know that sounds insane.But because I'm passing a kidney stone I'm on norco and I can open my own medicines and do what I use to do .Until I pass the stone...

I know that sounds insane.But because I'm passing a kidney stone I'm on norco an...

Julietsmombless2015

•8 years ago

3 Replies

Fibromyalgia

Went to see R/Consultant 30th January got diagnosed with Fibromyalgia on the basis of my symptoms, repeatedly spoke to him about my butterfly rash and swollen...

Went to see R/Consultant 30th January got diagnosed with Fibromyalgia on the bas...

JoJo0405

•8 years ago

2 Replies

Gastric Bypass Surgery?!

I just got out of my appointment with my rheumy about pain levels and, as per, I had to bring up the 'Why is it everyone just wants to talk about my weight'...

I just got out of my appointment with my rheumy about pain levels and, as per, I...

Silvergilt

•8 years ago

20 Replies

Not sure I have lupus, but........

Hi guys, I wonder if you can help, I was diagnosed with Fibro in Dec 2012, been backwards and forwards to the GP, consultants etc. Have also had gastric...

Hi guys, I wonder if you can help, I was diagnosed with Fibro in Dec 2012, been...

Imps

•8 years ago

2 Replies

Gastro info & support

Hello all Following on from my current saga of investigations into the flare of my chronic lower GI symptoms which began last October....I've just finished...

Hello all Following on from my current saga of investigations into the flare of...

Barnclown

•8 years ago

24 Replies

Blood Pressure

Hi All, After a few months of being on Abatacept my blood pressure had gone up very high for me as I'd always suffered from it being very low. The nurse at my...

Hi All, After a few months of being on Abatacept my blood pressure had gone up ...

Beverley_F

•8 years ago

7 Replies

Does you facial rash come and go throughout the day?

I'm curious if anyone else notice their butterfly rash comes and goes through out the day? Does it appear redder after you get hot or sweaty. Does it sometimes...

I'm curious if anyone else notice their butterfly rash comes and goes through ou...

momof15

•8 years ago

16 Replies

Missed Appointment, Not!

P'd off doesn't cut it. I've been waiting since November for my referral to Guys. I've just opened today's post and I have a letter saying that I didn't turn...

P'd off doesn't cut it. I've been waiting since November for my referral to Guys...

Alison-Brown

•8 years ago

14 Replies

Check up

Hello I've had a check up today there pssitive news! I'm having my check ups annually now instead of every 6 months. Also I'm aloud to bleach my hair if I...

Hello I've had a check up today there pssitive news! I'm having my check ups an...

xcuttsx

•8 years ago

2 Replies

Hydroxy - Quinoric ?

I'm just starting on my fourth month of taking Hydroxy, and had few side effects to start with. Since starting the most recent prescription, I feel terrible -...

I'm just starting on my fourth month of taking Hydroxy, and had few side effects...

Lupyknit

•8 years ago

23 Replies

DSE Echo Cardio gram

Hi everyone I have had a appointment to have this DSE Echo Cardiogram (Dobutamine Stress Echocardiogram) has anyone had this done its next Wednesday so a bit...

Hi everyone I have had a appointment to have this DSE Echo Cardiogram (Dobutamin...

Tasha1980

•8 years ago

4 Replies

Hi I'm a newbie

Hi all my name is Clara and am new to the site. I have had under active thyroid and been treated with thyroxine since 1995. It would appear I have gone '...

Hi all my name is Clara and am new to the site. I have had under active thyroid...

Clara500

•8 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2016

Lazy people piss me off.I'm in pain! Do not offer me up to do things you are too lazy to do thats total BS

PIP Denied

The funny side of lupus -taken from my own past 20 years. (If u dont laugh u cry, so laugh)

The dark side of lupus - the bits that are rarely discussed

Has anyone hear got TNF receptor associated periodic syndrome.

Pip assessment tomorrow :(

Waiting to be diagnosed...

The funny side of lupus.....

Good days and bad days, the mind games of lupus

My soon to be sister in law has lupus as do I.Her insurance has just been canceled and she cannot get her plaquenil anymore

My Stalker - lupus

I need some advise/ help

Vitamins

Pins and needles

Angry after accident

Breathing pain

Medication

had enough

I cannot get the medication bottles not baby proofed because I have a little 10 month old.I have relief from lupus because of a kidney stone

Fibromyalgia

Gastric Bypass Surgery?!

Not sure I have lupus, but........

Gastro info & support

Blood Pressure

Does you facial rash come and go throughout the day?

Missed Appointment, Not!

Check up

Hydroxy - Quinoric ?

DSE Echo Cardio gram

Hi I'm a newbie

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive