Hi everyone, I thought I'd join as I've seen a lot of great posts on here. You'll have to excuse my rant below!
As a quick background, I'm female and I've had various symptoms for a long time now, starting with joint pain and fatigue at 16. My worst symptoms are chronic pain, joint pain, stiffness and fatigue but there are many more. I've had various diagnosis's in the past which have been wrong such as endometriosis, and my current diagnosis is Fibromyalgia, but I'm now being treated with hydroxychloroquine which has helped substantially with my joint pain and I'm waiting to see my rheumatologist in March for the first time in 8 months for a final diagnosis, or possibly more tests.
One of my GPs is sure its lupus as I have tons of classic symptoms and respond to the DMARDs, but can't give a diagnosis without a rheumatologist seeing me again.
But basically, I'm completely at a loss with what to do. Pregabalin barely helps the chronic pain and I've now been told to stop taking Naproxen/Diclofenac as my stomach is too damaged from years of taking them and I'm at risk for a bleed if I continue. I can't take painkillers like codeine as they make me sick. I'm having a real flare up at the moment with rashes on arms, chest and face, I keep getting feverish and nauseous and feel like I can't control my body temperature, the muscular pain is awful and the joint pain is noticeable again (the hydroxycholoquine pretty much got rid of it while my symptoms weren't so bad) and I've had really bad bursitis in my hip for a few weeks now.
I'm only 22 and I've just gone back to education after a 5 year break where I worked full time, and I'm barely coping. It's so difficult finding anyone who understands what it's like to feel utterly exhausted and being in too much pain to do anything normal. I feel really lost with lack of help from my doctors and specialist and just not being able to function like a normal person my age in general.
Does anyone have any advice to offer when anti-inflammatories can't be used for pain relief, or any advice to pain relief in general?
Also any advice on coping with flare ups would be great, bearing in mind I have to miss as little of uni as possible so a day in bed isn't really an option unless I physically can't cope!