When a friend tells you of Chinese saying that may help.......
'Fall down 7 times get up 8'
To which my imediate response was...please dont say that to a lupie as I am sure they will say....
I've fallen down 1000 times and got up 1001.........literally!
She laughed and said..... tooche......
Thats the funny side of lupus.
Let the rainbows of the sky fill your heart with peace and love. X 👅
Has anyone thought of collecting Amanda's lovely insights and making a booklet for fund raising?????????
Hi, Mandy, yet again we are delighted with your presence, yes, PMRpro that would be a great idea. Mandy said she was not intelligent to write a book I beg to differ.
Keep it up girl.
Love noonoo X
Yesterday I fell into bed so exhausted that I just took off my tights and jeans in one go (it was cold, hence the tights). Today, pulled on the jeans, began my music teaching and yesterday's tights crept down my leg, unnoticed by me, until they began sliding onto the floor. One very embarrassed teacher! Yes, publish your brilliant Funny Side of Lupus....love it! Xx
Embarresment yes, but pure gold in the world of...... the funny side of lupus..... much love and laughter. X
Thank you for your kind words. They really mean a lot. I have not communicated like this in a long time and find writing my posts very therapeutic.
It is fantastic that you find my snippets of some use. I hope to continue.
May that rainbow above you fill you with the colours of creativity.
🙏 x
Has anyone had neck gland scans to check if a dry mouth is Sjorgens? 
Shingles Jab
hydroxychloroquine? 
Photosensitivity, eye pain and headache.
I cannot bear this life
