Hi, I am new here and wondering what sorts of syndromes you all had before being diagnosed with Lupus?

Over the last 35 years I have been diagnosed with interstitial cystitis, chronic migraine, IBS, heart murmur, depression and anxiety, osteoarthritis, GERD, TMD, sleep apnea, and more I can't remember at this time. I am waiting on test results from my doctor on Monday. I am afraid he is going to say nothing is wrong with. I have headaches nearly all the time. I have a slight red blush type rash on my cheeks mostly, also some on my chest and neck(that I have wondered about for years), that of course my GP said he didn't see. Sometimes it is light, sometimes it is darker and redder. Have increasing joint pain and frequent muscle pain. Brain fog and fatigue that is off the charts today. My home life sucks, so I was thinking of moving 2 states away in 2 weeks. If my doctor insists I don't have lupus, would it better for me to not move at this time and keep trying to figure out what exactly is wrong with me? I am having so much anxiety over this move(half the reason for moving is to care for parents ): ) I think that might be what is causing my fatigue to be so bad.

Thanks for listening.

3 Replies

  • I'd get result and also if can and would help parent and better your situation move back to care and help them so can help each other maybe as sound in a lot of pain and lonely too.

    Thats my first thought on reading as you do have a lot to bear but dont say if on medication as some of these cause brain fog etc ask me - given up most like Tramadol Endep and load of others for chronic pain and now got mind back in tact rely on Norspan patch and Codeine alone - pain bearable and mind back feels like normal ha ha. So tell us more and get it off your chest. Helps to talk and share I find. Lightens the load somehow when realize not alone. Hugs.

  • HI Coralcee, welcome to the community.

    I'm sorry to hear that you are having difficulty getting a diagnosis. If you'd like a free information pack about lupus then you can download one from lupusuk.org.uk/contact-us.

    See what he says on Monday but if you aren't sure about his diagnosis, could you ask to referred to a different doctor/ rheumatologist?


  • Wow! You have quite a lot going on. Stress is definitely not helping. I've had SLE for 19 yrs - my health was good prior to being diagnosed a year after the birth of my first child. I recommend you wait for the results and if not satisfied get a second opinion. If you think moving will help with stress reduction then do what's in your best interest. I do have times when I have similar symptoms. You need a good rheumatologist. I wish you all the best.

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