Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for August 2015

ESA SUPPORT

Hi I've have been put in the ESA support due to all my disabilitys can some tell me if the job centre plus can call round to your home with out makeing an...

Hi I've have been put in the ESA support due to all my disabilitys can some tel...

buster123

•9 years ago

16 Replies

1st Rheumatology

I have my 1st appointment end of sept i have asked for a cancelation as dont think i can cope much longer trying numerous pain killers. It at runcorn halton...

I have my 1st appointment end of sept i have asked for a cancelation as dont thi...

paula1969

•9 years ago

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Disappointed and hopeless

I dont really know what im trying to say but I suppose I feel like Im not coping with everything how I should be, its not like ive never had anything to deal...

I dont really know what im trying to say but I suppose I feel like Im not coping...

e123

•9 years ago

10 Replies

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Inflamed peeling skin

Hi everyone I was wondering if you can help. When I have a really bad flare with my joints the skin around my fingers seem to either blister or go really dry...

Hi everyone I was wondering if you can help. When I have a really bad flare with...

Pickle33

•9 years ago

12 Replies

Test results - borderline lupus?

After a wait of over 2 months since I saw a rheumy and hearing nothing, I made an appointment to see my GP to see if she'd heard anything. Yes, all test...

After a wait of over 2 months since I saw a rheumy and hearing nothing, I made a...

achydunlin

•9 years ago

4 Replies

? Lacto intolerant or lupus.

For years now I have believed I was lacto intolerant. However since my lupus diagnosis and the wearing of factor 50 cream and staying out of the sun. It...

For years now I have believed I was lacto intolerant. However since my lupus dia...

curran61

•9 years ago

1 Reply

Lupus Comparison. Just for fun

Having sat and let the latest diagnosis sink in I thought what else? Then thought how having Lupus is like going into one of those automated car washes but...

Having sat and let the latest diagnosis sink in I thought what else? Then though...

littleeffie

•9 years ago

13 Replies

Shoulder update.

Following up from my post "when its not Lupus or associated" Just got back from orthopedic appt. and told can't do surgery for rotator cuff and. Bicep slap...

Following up from my post "when its not Lupus or associated" Just got back from ...

littleeffie

•9 years ago

2 Replies

Osteoarthritis in knee now a numb bum

Osteoarthritis in knee, now a burning sensation in bum cheeks , very sore hip, painful when Sat and get up to walk, now limping with pain. Got X-Ray and doctor...

Osteoarthritis in knee, now a burning sensation in bum cheeks , very sore hip, p...

molly19

•9 years ago

15 Replies

Shoulder

I forgot to mention, that I also have A Rotator Cuff injury which is why I can't even pull the sheets up over me in bed. Boy is it painfull, has anyone else...

I forgot to mention, that I also have A Rotator Cuff injury which is why I can't...

Razoo

•9 years ago

5 Replies

Plaquinal

Hi again, today marks 5 days being on Plaq. Is it far too early to be expecting any improvement yet? I was told it would take 6 months but I'm still in hope...

Hi again, today marks 5 days being on Plaq. Is it far too early to be expecting...

Razoo

•9 years ago

14 Replies

private rheumy

Can anyone recommend a rheumatologist in hampshire or chichester that will listen to symptoms and might recognise seronegative conditions. really need some...

Can anyone recommend a rheumatologist in hampshire or chichester that will liste...

birty81

•9 years ago

4 Replies

serum Negative lupus

I have had this for years. Now it is destroying my lungs, liver, spine, immunity' situation is somewhat dim. I recently moved this is, a narrow thinking...

I have had this for years. Now it is destroying my lungs, liver, spine, immunity...

Jerri

•9 years ago

20 Replies

Feeling fed up needed a moment

This is my first post, iv loved reading everyone elses stories and advice they have received and it is lovely. It has been a horrible year this year medically...

This is my first post, iv loved reading everyone elses stories and advice they h...

Squeeshy

•9 years ago

36 Replies

Muscle spasms

For the past five days I have been having spasms near my knee. They don't hurt just annoying. Is this a lupus related problem.

For the past five days I have been having spasms near my knee. They don't hurt j...

adrienneioannou

•9 years ago

3 Replies

Raynards type 3 ???

Anyone heard of type 3 raynards plz

amandajane76

•9 years ago

13 Replies

A good news story

I love hearing positive stories and then realised I had one myself so thought I'd post it hoping these boost other people's optimism too! Just been on holiday...

I love hearing positive stories and then realised I had one myself so thought I'...

yakamalayo

•9 years ago

7 Replies

At last 😀

I've had a great week, 8 mile walk with the other half today. Lupus has not won !! Tomorrow total detox, 》full week of night duty ( 9-8 nursing duty and in...

I've had a great week, 8 mile walk with the other half today. Lupus has not won...

clarelsmith

•9 years ago

5 Replies

Possible fluid retention

Hi, I'm 18 and have had lupus overlapped with dermatomyositis for 6 years. My usual symptoms are joint and muscle pain, fatigue, and nausea and I am currently...

Hi, I'm 18 and have had lupus overlapped with dermatomyositis for 6 years. My us...

educk

•9 years ago

4 Replies

Daughter face rash - update

Feel so upset this morning. Today my daughters rash is probably at its worst. I keep trying to tell myself there will be an explanation and she won't have...

Feel so upset this morning. Today my daughters rash is probably at its worst. I ...

Daisy_flower83

•9 years ago

40 Replies

New to this

My wife has lupus .how can I help her more on a day to day basis

tazz69

•9 years ago

13 Replies

When it's not the Lupus and associated.

Hi all, I recently said in a reply how I kept being told a problem with my neck was the Lupus or fibromyalgia until a locum looked and found I had thyroid...

Hi all, I recently said in a reply how I kept being told a problem with my neck...

littleeffie

•9 years ago

4 Replies

Methotrexate

Hi all I'm just starting methotrexate for the first time Monday. Can anyone give me any ideas of any reactions to expect. If I react badly I have a fallback. I...

Hi all I'm just starting methotrexate for the first time Monday. Can anyone give...

Peter55

•9 years ago

17 Replies

Interesting news about evaluating effectiveness of hydroxychloroquine

This link might be useful to someone else! http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/52978?xid=nl_mpt_DHE_2015-08-08&eun=g714072d0r

This link might be useful to someone else! http://www.medpagetoday.com/Rheumato...

Barnclown

•9 years ago

7 Replies

Lupus, immunosuppressed and catching lots of viruses

I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I started with a chest...

I've had a bit of a tough time since January. I've often caught the odd extra co...

Sarah74

•9 years ago

2 Replies

Damned UCTD

Hi, I have had UCTD for over 20 years, was told it was nearly all and any of the autoimmune diseases and felt I was stuck in a, it is it isn't loop. The many...

Hi, I have had UCTD for over 20 years, was told it was nearly all and any of the...

serenarian

•9 years ago

14 Replies

Thankfull

To every single one of you who have replied to my "Rhumy visit",, I just want to say a MASSIVE Thank You for your input. I am starting to feel a lot more...

To every single one of you who have replied to my "Rhumy visit",, I just want to...

Razoo

•9 years ago

2 Replies

Itching/crawling sentation methotrexate or disease activity?

Hi ive been taking methotrexate for RA/lupus for over 8 weeks now with no side effects I take it on thursday and since last saturday ive been getting really...

Hi ive been taking methotrexate for RA/lupus for over 8 weeks now with no side e...

e123

•9 years ago

4 Replies

Sjogrens Tongue?

Last week my lymph swelled and are still tender, then my tongue began to burn right at the tip now my left side of my throat is a little irritated and red and...

Last week my lymph swelled and are still tender, then my tongue began to burn ri...

winterbaby07

•9 years ago

6 Replies

Working whilst taking Mycophenolate

Hi I'm due to start mycophenolate on the 4th September. I work in a special needs school as the school nurse, my Rheumatoid specialist nurse has advised me to...

Hi I'm due to start mycophenolate on the 4th September. I work in a special need...

Hidden

•9 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2015

ESA SUPPORT

1st Rheumatology

Disappointed and hopeless

Inflamed peeling skin

Test results - borderline lupus?

? Lacto intolerant or lupus.

Lupus Comparison. Just for fun

Shoulder update.

Osteoarthritis in knee now a numb bum

Shoulder

Plaquinal

private rheumy

serum Negative lupus

Feeling fed up needed a moment

Muscle spasms

Raynards type 3 ???

A good news story

At last 😀

Possible fluid retention

Daughter face rash - update

New to this

When it's not the Lupus and associated.

Methotrexate

Interesting news about evaluating effectiveness of hydroxychloroquine

Lupus, immunosuppressed and catching lots of viruses

Damned UCTD

Thankfull

Itching/crawling sentation methotrexate or disease activity?

Sjogrens Tongue?

Working whilst taking Mycophenolate

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