20,850 members16,554 posts


To every single one of you who have replied to my "Rhumy visit",, I just want to say a MASSIVE Thank You for your input. I am starting to feel a lot more positive about starting Plaq. This group has been a great sounding board for all of us. I will let you all know if I have good or bad results. So on that note, I will sign off and start my day here in Australia. I hope you all have a pain free day, lots of love and hugs.


2 Replies

You have a good day too Rhonda - glad you are feeling well and positive . I too am quite new (diagnosis 5 weeks ago) to all this and very grateful for my friends on the site in fact it's my life line . I am still struggling with the whole thing but it's great to hear positive stories makes me more determined - Thankyou Jane xx


Dear Rhonda,

Thanks for sharing your enthusiasm! My frustration - for more than four years - is trying to explain to people - especially my own husband - is what Lupus feels like. I don't think one out of 5 understand when you have a "fatigue" attack, that it doesn't mean you are just "tired." That's how people conceive it. They don't get that we feel "sick." For more than 4 years I've heard "I'm tired too." How can we make people understand??? Why isn't there more communication to the public about the difference between tired and fatigue?


You may also like...