I have had this for years. Now it is destroying my lungs, liver, spine, immunity' situation is somewhat dim. I recently moved this is, a narrow thinking region. Am desperately in need of a new rheumatologist, , yet unable to discover a doctor who, despite all the evidence & belief of the doctors I had. who will actively administer therapy & adequate medicatioons for the SLE. I am sicker & there is no one who will help me. I need suggestions how to deal with these folks before I get sicker (kidneys failing I have no immunity & I am in 24/7 severe pain). If there is a single peron who has ideas how to stop this now, I am in your debt & will listen to all suggestions. thank you.