This is my first post, iv loved reading everyone elses stories and advice they have received and it is lovely.
It has been a horrible year this year medically and then unfortunately due to the medical aspect it flooded the personal life and that went to ruins too.
I'm sero-negative sle have been for years but took years for a real diagnosis even tho been treated the same for years am currently taking azathioprine, plaquenil, pred, ampytriptyline, laprozole, naproxen, oromorph, co-codomol, sertaline and antihistamines. Which if all them weren't a pain enough daily they've constantly been adjusted all year due to constant flares no control and hospitalisation and it's still out of control go back to see rhumey in 5 weeks to see if improvement if not got to try another mix, I'm just so fed up now iv lost my job because of this which I loved to pieces iv had surgery my syptoms are progressive and now got a tremor due to steroid use and constant nausea with sickness and just don't know what to do anymore. And seems like there's no improvement anymore there used to be for a while but not no more and now rhumey even telling me I can't go back to work in the career field I was in and don't want me on full times hours it was the only thing to make me feel normal and now I can't even have that. Weight gain is a joke iv got a gorgeous little boy I should be enjoying as he's starting school in a few weeks and this year I just haven't been able to, any advice for help of symptoms or anything really a new perspective from understanding people would be lovely.