Daughter face rash - update: Feel so upset this... - LUPUS UK

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Daughter face rash - update

Feel so upset this morning. Today my daughters rash is probably at its worst. I keep trying to tell myself there will be an explanation and she won't have lupus. But the what else could this angry rash be? It's not bothering her by the way.

Oh and a little bit has now appeared on her forehead if that's of any significance?

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I ended up taking isla to A&E this morning. She's fine in herself but the worrying is making me feel ill. The Dr we saw had been a paediatrician for 10 years and said never seen lupus in a baby. He's prescribed a course of antibiotics and a different steroid cream. He said both should rule out likely causes as if it's a common skin condition or infection, one of these will clear it up. If not then it's down to the dermatologist to run tests. He said lupus is at the bottom of a list of thins it could possibly be. I'm scared now that the cream and antibiotics won't clear it up but fingers crossed and we shall see. xx

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It's hard to sit and wait for some answers. I know. I'm not about to say if it looks like a lupus rash or not. I will say however, that my lupus rash drives me bonkers because it's so itchy. Try hard not to focus on it because it's only stressing you out. I know that's easier said than done. Good luck!

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Thank you for your reply Mamasibby. The rash is certainly not bothering her, it's not itching or causing any pain. Hopefully the cream or the antibiotics will clear it but I'm really nervous in case they don't.

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I just had a look at all your posts, it's interesting how over the days the rash started to fade and then back quite harsh. I'm not sure if I may have missed a suggestion so sorry if repeating. Have you thought about foods that she's eating?

I wouldn't like to comment on Isla's rash as I've no idea what it could be, I only know that babies/children always produce some very strange rashes.

When my daughter was little she used to have some strange rashes appear and it was all to do with foods. I had to keep a diary of what she ate. 34 years later she has now been told she has coeliac! BUT she was also 'ill' with other symptoms. You say Isla is healthy apart from the rash?

I have lupus sle and occasionally get an angry looking rash but mine becomes very itchy.

I'm not much help I'm afraid but I do remember how worrying it is when your baby is unwell/has something unexplained wrong. Just keep telling yourself she's happy, no temperature or any other signs of illness. I hope you get some answers soon.

Regardless of the rash, Isla looks a beautiful little girl. Try not to worry too much as an ill mummy will not be good!

Keep us posted how you both are. XX

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Thank you for your reply Chris21. Yes she is well in herself, thankfulky.

Her rash is always there but fades and comes back angry. To be honest, it seems to flare up at its worst when she is warm and fade when she is cool. The last few days have been quite humid and her rash seems to have been at its worst. It's not itchy or painful for her, she never puts her hands to her face as if it is bothering her.

I'm so frightened that antibiotics and Betnovate cream won't work, because then that rules out likely causes such as eczema, dermatitis, infection etc, according to the Dr we saw yesterday. Xx

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hello daisy...i've been distracted, so missed this update when you posted it yesterday. am so sorry these rashes continue to flare this way...and i think you're doing a brilliant job of coping and also of being proactive...and it really is good news that isla is well in herself and showing little sign of being distressed by the rashes. it's clear you're a wonderful mother....but the strain of keeping calm & carrying on can only be really really tough for you: and i'm so glad you're here with us on forum! it's at times like these that the solidarity here comes into it's own.

basically i do like the sound of the advice that A&E dr gave...my feeling is that otherwise i can't add much to what i've already given in my replies to your previous updates...and i feel that chris & mamasibby's comments are really great..the only thing i will contribute is that over the years, i have followed friends & their v young children going through the diagnostic/treatment process re really horrid, mysterious, early onset, persistent, flaring rashes...and my memory is that, more often than not, these rashes simply resolved gradually in time....and in some cases antibiotics & steroid creams like betnovate hadn't actually seemed to help much...+ there were no clear environmental explanations (diet, household chemicals etc). my impression is that the solution to these sort of problems can sometimes be a matter of time....and the cause/s can remain unresolved. but the rashes go, becoming a distant memory. i sense you are already well aware that these things can happen this way...and i hope this knowledge can help ease the strain even a little bit: there really really is reasonable hope!

sending you all lots of love

hoping you'll keep us updated

xo

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Thank you for your reply Barnclown. It's funny you should say that because I only said to my husband last night, as fearful as I am of it being lupus, my gut is telling me it's something that will go away on its own and we will probably never know what it was. I think sometimes, we are all to keep to label things, because it helps us to understand better what's going on and why? But I suppose there isn't always a label for everything? I do hope whatever it is buggers off soon (excuse my language!) I see past it and her beauty shines through to me. But the amount of people who have asked me if she has sunburn, i know they mean well, but it gets annoying and upsetting having to explain we don't know what it is! I'm also having to reassure mums at playgroup that she doesn't have anything, which I understand them asking completely, but still it's tough x

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I just felt you would be thinking this way: you articulate it all so well

There definitely are loads of labels missing out there, and loads of things mislabelled...and in just about every discipline under the sun, medicine is only one such: my degrees are in horticulture & art history: I know I'm really getting old cause so much I was taught has turned out to be WRONG....and, certainly, just in the relatively short time I've been aware of lupus, I've witnessed plenty of controversy even re lupus-related diagnostic terms...the best experts, in all fields, see no shame in admitting how much there is to learn and how much their speciality doesn't adequately label

Yes, comments like those are just so utterly annoying, frustrating, irritating + down right NOT helpful. I never seem able to come up with THE best reply when I need it...usually pops into my head 2+ hrs later...by the time Isla's rashes disappear, you'll have your patter totally prepared and ready on the tip of your tongue...

XO

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Thank you Barnclown. Your posts always perk me up!

It's a weird and wonderful world isn't it! For now I'll try and have faith that the cream or antibiotics will do the trick, and if not, I'll try my best not to jump to any conclusions. I think I forget sometimes that I'm actually NOT a qualified doctor ha ha ️xx

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👏👍🍀😘

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Could your daughter be allergic to something she is eating or drinking, etc?

What about seeing a good recommended alternative practitioner as well as the conventional tests? There are systems out there for testing that are very good such as bio-com, vega- export and bio-energetic testing. I would ask around and try to find one if it were me.

In the alternative world rashes, spots, boils, bleeding are explained as the body trying to get rid of something and this makes sense. Our bodies want to heal.

I have yellow stuff coming out of one of my nails that Lupus patients get and my doctor said well it is coming out and it is coming out of one of the end parts of the body - that is how the body works if the other ways - organs are overburdened or under a lot of stress on any level physical, emotional, mental or spiritual.

There is so much stress on our bodies these days and little ones even more.

Try not to get stressed over it because like you say it isn't bothering your daughter and she will pick up on your stress and that won't help her or you - you don't need stress just keep calm and continue trying to find out why she has the rash.

The only trouble with creams and antibiotics as well as the good stuff, they can have harmful stuff, too, which just adds to the burden on the body.

If you look at the ingredients you will see and antibiotics destroy good bacteria in the body as well as the bad and these have to be made up again each time.

We all have to weigh up the odds of further damage and symptoms as a result of taking anything.

I use alternative methods now because I have been the conventional route and almost died through ignorance believing everything that the doctors gave me was right for me when it wasn't.

Do bear in mind we are all different and doctors are limited in their knowledge and what they can prescribe.

I am just concerned for your baby from my own experience.

Take care and trust you will find the root cause either conventionally or otherwise. X

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I'm not sure Cann. As far as I'm aware I would say she isn't allergic to anything as she hasn't had anything 'new'. To be honest alternative methods of healing are a whole new world to me that I don't understand. I wouldnt know where to start. I agree that steroid creams and antibiotics aren't always a best bet. I was wary of giving them her,especially another steroid cream on her delicate baby skin, but the doctor reassured me that use for only a week won't cause any damage. It's a tough call sometimes what to do for the best. The Dr has suggested that the dermatologist we are waiting to see will probably want to biopsy her face, but to be honest I'm not entirely sure I could allow that unless absolutely necessary as I wouldn't want her to have a scar on her face, especially if it turns out to be nothing. ️Xx

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It could be something that she has eaten or drunk for a while as allergies can develop over time.

I quite understand how alternative methods of healing are a whole new world for you; they were for me in 2002 when I was seriously ill, but my GP told me we had come to the end of the road where conventional medicine could help me because I could take no more drugs of any kind and haven't since then.

He actually suggested a spiritual healer to me which I was very sceptical about, but went along because I genuinely believe he wanted to help me.

I was amazed at the experience at the second appointment.

I only had 3 in all, but it left me in no doubt that something was happening and after that it seemed that people who knew about the damage of the drugs and surgery to me were coming out of the woodwork.

I owe them so much - my life in fact, but I do understand that it is difficult to know where to start.

Have you got a good health shop near you? You could ask in there if they know anyone and show them the rash on your daughter's face; there are some very knowledgeable people around, but go by your gut feeling and do what feels right to you, which you seem to be doing regarding the biopsy. Keep us all posted on the progress. X

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I tried steroid creams for my rash along with many others. I found that Antihisan worked amazingly for me. It's for bee stings and rashes but don't know if suitable for babies. I used it for two days and my rash hasn't come back. Hope this helps xx

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Is yours a lupus rash littlemissmuffet? I did think about trying an antihistamine cream but going to wait until we've finished the antibiotics first x

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I don't know what mine is yet. I've had some blood tests done which showed inflammation and so am being re referred to rheumatologist. It was really bothering me though as it just looked so awful. Doctor didn't know what it was so just told me to use steroid cream which didn't help. Since using the cream it hasn't come back.

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Ah I'm glad to hear it went for you. And I hope your apointment goes well too. I think that's the thing that upsets me too, as well as wondering about the future of her health, that it's unsighlty and I can see people looking and wondering what's wrong. I can't blame them, I suppose it's human nature to look and wonder. x

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I know what you mean about it being unsightly but you're probably suffering much more than she is. If only we could swap places with our kids when they're having problems x my rash has started to come back now, it starts around my eyes and spreads from there so I'm hoping to get some pics from this time to show rheumy, I lost my other ones. It's started to get weepy too ......if it develops fully I will send you a picture. Hope your daughter s rash is improving x

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Sorry to hear your rash is coming back. At least you will be able to get pics though that will hopefully help rheumy. I hope it's not causing you too much discomfort?

Not sure if you've seen my separate update post today, but Islas rash has been better the past few days. It's still there but it's faded a lot. It's as though what was there has left its mark and you can see it under the skin. It's more of a pinky peachy colour now rather than red. I'm not sure if it's becuase she's not been in the sun for a few days, or whether the antibiotics and Betnovate cream have started to work (nearly a week in of use). I'm not sure if the way it's fading is characteristic of lupus rash or not but I'm trying to stay hopeful.

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When I think about it I've felt a little overheated today and wonder if there's also a slight change in temperature that comes with this rash or is a result of the heat? I have a couple of different illnesses and have found sites like this very helpful in terms of support etc. I've googled lots of rash images and its only lupus that looks like mine though it can present on chest and neck as well. At least they're going to look further into it for you and your picture of the rash is a very good one. Take care and let us know how you get on xx.

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I'm the same as you. I've searched high and low but can only find lupus as a reason for this type of rash isla has. Although the doctor assured my that there was a list of possibilities and lupus was at the bottom. I'm going to try and trust in her instead of Google. Islas also becomes more prominent when she is warm x

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The worry is horrible Daisy, I remember it well. But if you can only find Lupus as a possible reason, then I'd gently suggest that you're looking in the wrong places! There are LOTS of possible reasons for your daughter's rash, and Lupus is way, way, waaaaay down the list. :) It looks like a contact dermatitis to me - though I am no expert - and my bet would be that it is something that you're putting on her face, like suncream, or something that is getting on there accidentally, like a cream or spray you are wearing yourself. Faces are more sensitive than other areas of the body, so it is quite common for people to get rashes there to creams they can tolerate on their hands/limbs/etc. It doesn't necessarily need to be something 'new', either: the formulas of creams and powders can change, and/or children (and adults) can develop allergies to things they have tolerated with no problem before. Your plan to trust the doctor is a good one... Try a week without any lotions or potions, both of you... And try not to worry! Step. Away. From. The. Google!

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Thank you for your comment flow. Very sensible and reassuring words!! I am very guilty of latching onto worst case scenarios and managing to convince myself! I've done it many a time before!! I haven't googled however for nearly a week now and I have to say my head has been much calmer and more rational for it! Crikey, I sound like a member of an AA meeting, only for Google ha ha! X

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Hi Daisy, i hope you are your daughter are ok, just been reading your post.

Have you ever thought that this may be a allergic reaction to something on your clothes and not anything your daughters eaten or drunk. I work in the cosmetic industry and fragrance industry, and have seen rashes very similar on a child whos mum wore a fragrance and sprayed it on their clothes the rash was on the forhead of the little one and both sides of the childs face. It took a while to figure out but when we did the child have been allergic to the jasmine in the fragrans and because of the mum giving lots of cuddles the childs face was reacting to it as our skin on our faces are alot more sensitive to other parts x sending best wishes to you and your beautifull girl.

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Hi willowwag, I do wear perfume every day so maybe? Although I've not changed perfumes. I will stop wearing perfume for the next week and see if it helps. I will try anything! ️Xx

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Good morning Daisy, how's the bonny Isla today?

Dont 'overdo' all the different methods suggested, only because if something works/helps you won't know which one it was lol

I'm not sure you should use anthisan without medical advise as it is quite a strong cream and Isla is so little.

It supposed to be not so hot today, so hopefully this will help.

I hope your not so anxious now and feeling better that there are people listening to you. XX

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Hi Chris, she's fine thank you for asking! Her rash had seemed to had faded to a light pink colour this morning, but at the moment it's quite red again. I'm not completely sure but I think it must fluctuate with her body temperature? Yes you're right, I am conscious not to try too many things at the moment, because as you say, if it does disappear, we won't know what helped it.

For the time being I am happy giving the Betnovate and Antibitoics time to work, although they don't seem to be doing anything just yet x

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I've read your updates with interest, Daisy-flower. My daughter is now 19 and the number of rashes she had when she was little was astounding - baby excema (which took some getting rid of and she just eventually grew out of it), dermatitis, chicken pox, impetigo, teething rash - not exactly constant but not far off. Weirdly, she's never suffered from acne and has the clearest skin now of any of her friends! As someone said on here, the slightest change in detergent (a lot of brands change the ingredients without saying), change in diet, too much sun (not saying she has sunburn but she could be sun sensitive without it being lupus or anything else).. the list goes on. Lupus is very very rare in adults never mind babies. I'm a bit surprised to be honest, that that was your first thought.

However, I hope it clears up soon. I understand the worry. When my daughter had excema on her back and hands I was very worried (I have excema and asthma and know they are linked) but none of the above rashes really bothered her!

Take care, she really is a beautiful baby and it's a shame that your worrying is perhaps marring your enjoyment of your time with her - make the most of it, before you know she will be a grumpy teen!! xxx

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Hi smellydunlin, thank you for your reply. It's reassurung to hear that your daughter now has clear skin and it's not been a problem for her. Isla has proved to have very sensitive skin over the months, so maybe she is prone to rashes.

When it first appeared, I googled 'rash over bridge of nose and cheeks', expecting it to point me to teething rash it something of the like, but instead it popped up 'butterfly rash' which then lead me to reading about lupus. Because of the mouth ulcers and a period of hair thinning she had too months ago, I think I managed to convince myself it could likely be lupus. That coupled with the fact I can't find any other reason on the Internet for this presentation of rash. I know I shouldn't read the internet though, and you're right, I shouldn't spoil our time by worrying x

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I understand your worry - I've been there. I think the internet is a brilliant resource but at other times it can be a bane and can come up with stuff (often frightening illnesses) that you'd never even thought of! I think worrying is normal for us mums. I hope you get sorted.

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Thank you. I'm making a pact with myself not to google things in future!! X

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Haha, bet you do! It's too tempting! Google is my best friend BUT I do try to keep it all in proportion.

My 'babies' are in their 30s and have their own children but it doesn't stop me worrying over them. X

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LUPUS is very rare in children but tho l have met a 5yr old with LUPUS in my struggle of searchings. The thing is Lupus rush looks like a barrerfly across ur nose bridge to both chicks and its very irritating and itchy. Its worthy checking with the Dermatology and they can take a Biopsy.

Good luck lol

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Thank you. This is why I'm so nervous because I think this looks like a classic butterfly rash. Although it's not itchy or painful for her, thankfully.

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Lupus looks like a butterfly desighed on ur face

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