Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2015

Still UCTD

Hi all, I am still in limbo as the rheumatologist (the one I went to for a 2nd opinion) is saying that my diagnosis will likely stay at UCTD for the time being...

Hi all, I am still in limbo as the rheumatologist (the one I went to for a 2nd o...

bestbuddy

•9 years ago

10 Replies

What is this now??? Lupus ? Or Sjogrens???

What is this now??? Lupus ? Or Sjogrens??? This just appeared out of no where a few weeks ago (old pic)...

What is this now??? Lupus ? Or Sjogrens??? This just appeared out of no where a ...

winterbaby07

•9 years ago

26 Replies

ERYTHROMELALGIA advice: I've found another good link

Hello all. Ever since my diagnosis in 2010, I've been trying to keep up to date on info about erythromelalgia (the burning syndrome). over the years, I've...

Hello all. Ever since my diagnosis in 2010, I've been trying to keep up to date...

Barnclown

•9 years ago

5 Replies

Want to take advantage of all our features? Just log in!

APS

Hi, I've got APS - Antiphosophilid Syndrome (SLE & 3 other conditions). Yesterday I found a lot a bruising the calves of my legs (bottom muscles). Also my...

Hi, I've got APS - Antiphosophilid Syndrome (SLE & 3 other conditions). Yesterd...

magSLE

•9 years ago

4 Replies

This flare is horrible!!! Is this lupus sore because of the flare?

I zoomed in on the sore on the roof of my mouth.. My tongue has been giving me issues also. Is this sore because of a flare I'm in? Also I'm being tested for...

I zoomed in on the sore on the roof of my mouth.. My tongue has been giving me i...

winterbaby07

•9 years ago

8 Replies

Is this a flare

Gave birth a month ago and I'm getting sever joint pain and rash all over my body. Please can someone tell me is this lupus flare up rash? Thanks in advance.

Gave birth a month ago and I'm getting sever joint pain and rash all over my bod...

ramada

•9 years ago

4 Replies

Physiotherapy

I have sle lupus and suffer with sever back nerve pain and numbness with my both knees.I have mobility issues and most days I can't even stand up and walk is...

I have sle lupus and suffer with sever back nerve pain and numbness with my both...

ramada

•9 years ago

7 Replies

What to do

Hi all, Its been a while since I posted anything but have been trying to deal with everything that has been thrown my way! All of my test results came back...

Hi all, Its been a while since I posted anything but have been trying to deal wi...

Hidden

•9 years ago

9 Replies

Meeting people that sync with your Lupus and symptoms is simply unique, needed and helpful.

Hello All! :) So glad that we all Lupus people can chat about our condition and lives here in this group. It's been so helpful for me. I've had Lupus for +13...

Hello All! :) So glad that we all Lupus people can chat about our condition and...

Dalilatm

•9 years ago

2 Replies

Coming to Grips with New Normal

This is just a long ramble, sorry; I'm just struggling a bit trying to process. I have been fighting extreme fatigue for months - actually for the past year...

This is just a long ramble, sorry; I'm just struggling a bit trying to process. ...

Silvergilt

•9 years ago

5 Replies

Pain in tailbone

This is a first, pain in my tail bone can hardly sit down. Started last night and I haven't fallen or banged it just started from nowhere. Have pain in every...

This is a first, pain in my tail bone can hardly sit down. Started last night an...

KarenC

•9 years ago

8 Replies

Breathing problems

With regard to breathing problems has anyone any ideas I have very mild emphysema but breathing has been getting worse and worse over past six months I've bin...

With regard to breathing problems has anyone any ideas I have very mild emphysem...

dawnbeaven

•9 years ago

1 Reply

Hydroxychloroquine and palpitations?

Does anyone have or believe they have heart palpitations from being on Hydroxychloroquine? Been on it about a week or two now and have extra beats etc. I've...

Does anyone have or believe they have heart palpitations from being on Hydroxych...

jp83

•9 years ago

3 Replies

Chest infection that wont budge

Hi guys, I am hoping for some advice. I have had reoccurring chest infections since last year. Since May of this year I have had 5 courses of antibiotics and...

Hi guys, I am hoping for some advice. I have had reoccurring chest infections s...

esky

•9 years ago

12 Replies

Me Too

Hi yes I do I seem to be the only one iwth this phenomon until now you have joint hyermobility not elasticted joints, I ws called a realife plastic man by a...

Hi yes I do I seem to be the only one iwth this phenomon until now you have jo...

angeldebs

•9 years ago

5 Replies

Sleep studies for sleep apnoea?

Just got back from rheumy review, and one of the nurses from my iron infusions was there. First infusion was amazing, I had so much energy, second one, not so...

Just got back from rheumy review, and one of the nurses from my iron infusions w...

Silvergilt

•9 years ago

10 Replies

Back pain is outrageous any ideas ??

Hi all another moany post and for that I apologise but it helps to have like minded people. Got my appointment with rhumey in 4 weeks consulted her and she's...

Hi all another moany post and for that I apologise but it helps to have like min...

Squeeshy

•9 years ago

14 Replies

Anyone with uctd diagnosis for now?

Hi I have had a uctd diagnosis for 3 years in November, recently I have come to terms that this may be permanent and lupus is just part of it rather than a...

Hi I have had a uctd diagnosis for 3 years in November, recently I have come to ...

Hidden

•9 years ago

16 Replies

Help: How to treat cold sores?

Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run down after a little urology op under general anaesthetic 3...

Hello all. I have a nasty but relatively small cold sore in the corner of my mo...

Barnclown

•9 years ago

27 Replies

Lyrica , for nerves damage

I'm not sure if starting on this tablet after reading the side effects.. Anyone knows if its an effective drugs for peripheral nerve damage or it's just...

I'm not sure if starting on this tablet after reading the side effects.. Anyone ...

Hidden

•9 years ago

11 Replies

Any advice regarding dealing with the nhs

I have just joined the group and as wondering whether anyone could offer some advice or help. I was diagnosed with lupus about 3 years ago and put on hydroxy...

I have just joined the group and as wondering whether anyone could offer some ad...

C101

•9 years ago

14 Replies

Any advice welcome

Hi all. I'm new to all this so apologise if I don't use the correct protocol. For the past 5 months I've had painful stiff joints in elbows, wrists, fingers...

Hi all. I'm new to all this so apologise if I don't use the correct protocol. F...

gwynedd

•9 years ago

8 Replies

Quinoric

I have started taking Quinoric (hydroxychloroquine sulphate) and have been told if I suffer any visual disturbances at all to simply stop taking the...

I have started taking Quinoric (hydroxychloroquine sulphate) and have been told ...

maddy21

•9 years ago

2 Replies

Information

Hi everyone I hope you all have a good weekend painfree I hope...... I went to see my consultant on thusday and she has referred me for another CT Scan bloods...

Hi everyone I hope you all have a good weekend painfree I hope...... I went to s...

Dobermanndale

•9 years ago

4 Replies

Plaquinal

Hi again, I have been on Plaq over a week now and still no improvement I know it takes a while so I am not panicking. But I noticed 3 days ago I got a rash on...

Hi again, I have been on Plaq over a week now and still no improvement I know it...

Razoo

•9 years ago

8 Replies

Rituximab infusion

Hi I'm 48 yes old and I've had systemic lupus for 13 years.I started having Rituximab infusion every 6 months.After my first course I became neutropenic so I...

Hi I'm 48 yes old and I've had systemic lupus for 13 years.I started having Ritu...

englishrose67

•9 years ago

7 Replies

Acronyms!

Any chance of an idiots guide to all the acronyms and what they mean please?

chandlermandy

•9 years ago

2 Replies

Dodgy tummy.

Can anyone please give me some idea as to what it could be or causing this problem. For about 6 months now I have had a runny tummy, docter seemed to think...

Can anyone please give me some idea as to what it could be or causing this probl...

addai

•9 years ago

15 Replies

Lupus and the liver

Hi there can anyone tell me there stories of Lupus effecting the Liver I know it one of the more rare organs for it to effect. I had a liver biopsy done and my...

Hi there can anyone tell me there stories of Lupus effecting the Liver I know it...

Charl80

•9 years ago

6 Replies

Daughter Facial Rash - Update

Good morning everyone. Isla's rash has been better the past couple of days. It has faded quite a bit as you can see. I'm not sure if this is becusee she hasn't...

Good morning everyone. Isla's rash has been better the past couple of days. It h...

Daisy_flower83

•9 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2015

Still UCTD

What is this now??? Lupus ? Or Sjogrens???

ERYTHROMELALGIA advice: I've found another good link

APS

This flare is horrible!!! Is this lupus sore because of the flare?

Is this a flare

Physiotherapy

What to do

Meeting people that sync with your Lupus and symptoms is simply unique, needed and helpful.

Coming to Grips with New Normal

Pain in tailbone

Breathing problems

Hydroxychloroquine and palpitations?

Chest infection that wont budge

Me Too

Sleep studies for sleep apnoea?

Back pain is outrageous any ideas ??

Anyone with uctd diagnosis for now?

Help: How to treat cold sores?

Lyrica , for nerves damage

Any advice regarding dealing with the nhs

Any advice welcome

Quinoric

Information

Plaquinal

Rituximab infusion

Acronyms!

Dodgy tummy.

Lupus and the liver

Daughter Facial Rash - Update

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive