After a wait of over 2 months since I saw a rheumy and hearing nothing, I made an appointment to see my GP to see if she'd heard anything. Yes, all test results back, but very odd - a lot of borderline ones. She said I had "could have Lupus", it looks like it, but also some connective tissue disorder (which I understand is a catch-all) and possibly inflammatory arthritis - my rheumatoid factor was also borderline... I've always felt I've had lupus for many years (three consultants - a dermatologist, an A&E and an immunologist all mentioned the possibility some 20 years ago). So I didn't look surprised. I'm confused by the 'borderline' thing though.
She said the rheumy would be in touch no doubt and sent me on my way with more meloxicam and gabapentin (which are keeping my joint pain and aches at bay).
Thanks for listening x