Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2015

Working whilst taking Mycophenolate

Hi I'm due to start mycophenolate on the 4th September. I work in a special needs school as the school nurse, my Rheumatoid specialist nurse has advised me to...

Hi I'm due to start mycophenolate on the 4th September. I work in a special need...

•9 years ago

Lupus groups on South East London

Hey guys Random question are there any Lupus support groups in south east london?

Hey guys Random question are there any Lupus support groups in south east lond...

wotshernameagain

•9 years ago

Saw a Rheumy today.

Hi everyone, I finally had a Rheumy Appt tday, she was lovely and very thorough. I have to get bloods and X-rays done, plus she has prescribed Plaquinal for...

Hi everyone, I finally had a Rheumy Appt tday, she was lovely and very thorough....

•9 years ago

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Lupus aches pains confused

Hi all please bare with me I haven't been on this for a good few years as I find it hard to communicate /open up about my lupus...past few days I've had a lot...

Hi all please bare with me I haven't been on this for a good few years as I find...

•9 years ago

Methotrexate injections

Hi I have been injecting methotrexate every week for several years today went to collect my prescription only to be told that injections are no longer...

Hi I have been injecting methotrexate every week for several years today went t...

•9 years ago

Blood pooling...chronic venous insufficiency anyone?

Has anyone had this diagnosed? My Drs, consultants & podiatrist have been muttering about this due to the purple my forefeet & toes go when I sit &/or stand....

Has anyone had this diagnosed? My Drs, consultants & podiatrist have been mutte...

•9 years ago

Mycophenolate duration

Does anyone know how long a patient usually stays on mycophenolate after stage 4 diagnosis of lupus nephritis? It has been 2 years and my daughter is now in...

Does anyone know how long a patient usually stays on mycophenolate after stage 4...

•9 years ago

Glaucoma

Hi all, I went to see an eye specialist for what I believed was for a cyst on my eye, really wasn't prepared for being told that I have to have laser eye...

Hi all, I went to see an eye specialist for what I believed was for a cyst on my...

•9 years ago

esa problem

I have been on ESA for 11 months now - basic esa £72 a week.I have not been seen by anyone and when I rang to say I should have been seen in 12 to 15 week of...

I have been on ESA for 11 months now - basic esa £72 a week.I have not been seen...

•9 years ago

Lupas info, very interesting.

Facebook group attached:

Facebook group attached:

•9 years ago

Clicking Joints

Hi, does anyone else suffer from clicking joints? I'm like my own personal one man band at moment - think im in a flare as Rheumy said ESR levels extremely...

Hi, does anyone else suffer from clicking joints? I'm like my own personal one m...

•9 years ago

weeing

hi, im up almost every hour in the night going to the toilet. my gp has tried me with several medications for this and yet im still up every hour, i have type...

hi, im up almost every hour in the night going to the toilet. my gp has tried me...

•9 years ago

Feeling low :(

Hi all, haven't been on here in a while but I thought I would as I feel I've hit a wall! I've been sent home from work today as I can't cope with that stress...

Hi all, haven't been on here in a while but I thought I would as I feel I've hit...

steffie_steph03

•9 years ago

Daughter facial rash - update

Hi all, thank you so much for all of your kind comments over the past week. You have definitely helped keep me sane and stopped me fretting so much. Been to...

Hi all, thank you so much for all of your kind comments over the past week. You ...

•9 years ago

Northern Ireland Lupus Information Day - 17th Oct 2015

The next Lupus Information Day will take place on Saturday 17th October 2015 at The Hilton in Templepatricl, Antrim, Northern Ireland. The afternoon will...

The next Lupus Information Day will take place on Saturday 17th October 2015 at ...

Partner•9 years ago

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methotrexate and azathioprine

Hi, has anyone been prescribed Azathioprine along with Methotrexate. I've just been to see Rheumy today and he is thinking of possibly introducing a low dose...

Hi, has anyone been prescribed Azathioprine along with Methotrexate. I've just b...

•9 years ago

Face rash update

Today my daughters face is looking a little better I think. Mind you, I say that and then in a few hours it will probably look angry again, that's the way it...

Today my daughters face is looking a little better I think. Mind you, I say that...

•9 years ago

Please help me win

Hey guys If this posts gets taken down I will totally understand but I figure it was worth a try! Hopefully it won't This year has been crazy for me with...

Hey guys If this posts gets taken down I will totally understand but I figure ...

wotshernameagain

•9 years ago

Daughters back rash

Barnclown, this was my daughters rash on her back. What do you think? Does this look like a lupus rash?

Barnclown, this was my daughters rash on her back. What do you think? Does this ...

•9 years ago

Daisy flower 83

Hello. I've read your post and seen the photo of your lovely little girl. I agree with other comments that rashes in young children could be caused by a...

Hello. I've read your post and seen the photo of your lovely little girl. I agr...

•9 years ago

Lupus rash?

Hi sorry I know I keep posting, but this is another photo of my 15 month old. The last pic I posted earlier was taken a week ago. Does this look like she could...

Hi sorry I know I keep posting, but this is another photo of my 15 month old. Th...

•9 years ago

Oh golly gosh, what next?

Hi there Lupies, have just been reading a few posts, and it's just not fair is it, one illness leads to another and another, no wonder we are all so flipping...

Hi there Lupies, have just been reading a few posts, and it's just not fair is i...

•9 years ago

Is this a Lupus Butterfly rash?

This is my 15 month old daughter. This rash started as a little spot in the middle of her nose, which lasted as a spot for about 2 weeks until it spread across...

This is my 15 month old daughter. This rash started as a little spot in the midd...

•9 years ago

London lupus centre

Hey guys, hope all well. New to the group. I suffer from lupus sle for past 21 years. My meds are steroids and plaquenil. I was never taken off steroids and...

Hey guys, hope all well. New to the group. I suffer from lupus sle for past 21 y...

•9 years ago

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