I love hearing positive stories and then realised I had one myself so thought I'd post it hoping these boost other people's optimism too! Just been on holiday in Ireland (thought it would be the safest place to avoid too much sunshine!). First summer since my daughter was diagnosed. She had one flare (exhaustion wipe-out) after the sun shone through her window when she was still asleep on the first morning, without suncream on, but after that (and taking a lot of care with the sun) she was absolutely fine. Felt completely normal and able to go for long walks up mountains, go out in the evening, etc.
She does stick to a very strict diet - completely gluten and dairy free and no refined sugar - which we think may be helping a lot, as she seems to be coping brilliantly with minimal symptoms. Incidentally, SW Ireland is a brilliant place for food; the food was incredible! Fresh, local, delicious and fantastic value, whether at a cafe, put, restaurant, B&B or whatever. They also have the highest incidence of Coeliacs in the world, so gluten (and dairy) free is completely run-of-the-mill to them. Even had puddings she could eat in pubs!
So I'm keeping my fingers crossed she stays well and am really hoping for a full and complete recovery, however unlikely that is supposed to be.
Problems with the sun with SLE
Puppy post
Diet
Been a good few weeks !! 
