Hi, I have had UCTD for over 20 years, was told it was nearly all and any of the autoimmune diseases and felt I was stuck in a, it is it isn't loop. The many labels hung on me, then taken off my a different doctor all but made me feel like a hypochondriac. I have had high ESR readings always, CPK high, double stranded ANA tests, in fact, all my blood tests are bonkers. My husband says I am descended from aliens, and at times it sure feels that way. One of my docs couldn't understand why a diagnosis that stuck was so important, maybe only those who have had multiple diagnosis can really understand the need to know just what keeps going wrong with out bodies. I was medically retired 8 years ago and miss the old me and working and dancing and drinking and all that jazz so much. I feel like a puppet with broken and very knotted strings, but I am still here. I have tried most meds but am allergic to most. Last try was Methotrexate which made me feel so lethargic (even more than usual) I chose pain rather than live like a zombie. I have recently had a bout of SVT's and ended up in A&E and wondered if anyone else has had these? I have awful chest wall pain and muscle spasms in my side and frequent bouts of tendonitis, I have mild hypermobility. Right now I have a Sjorgens thing going on, blisters up my nose and in my mouth, my teeth are becoming loose as the connective tissue becomes dodgy. However, I try to bear in mind there are always those worse off than me, at times I allow myself a short pity party. I really think more needs to be taught to new docs about autoimmune diseases and not just the main one's. While UCTD usually means no full blown disease, the multiple effects of all is a pain in the everywhere. Right now opiate pain meds are my friend. Nice to meet everyone, oh and I live in Scotland, not far from Elgin if anyone else is nearby.
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