Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor.
Needless to say I am worried, what are the chances of the tumor being actual cancer? Does anyone know how accurate an ultrasound is?
They are doing an MRI soon but I am going out of my mind with worry.
in a way, you’re very lucky. I had a 1.8cm, which grew to 3.5cm cyst and no consultant ever said anything about it despite me doing ultrasounds every year. So I found the disaster when it was 10cm and they could no longer ignore it but to tell me about it. It seems ovarian cysts and tumors are the best kept secret in the gynecological world until one day, it ruins your life just like that. So kudos to your consultant for raising a flag. There must be some other glaringly obvious symptoms of a borderline tumor in your case, otherwise, this is the most proactive consultant in the history of human kind. A 2cm cyst could be a million kinds of benign cysts. Wishing you the best of luck but I wouldn’t worry over a 2cm cyst.
Thank you for replying and I’m sorry yours wasn’t picked up until it got bigger. The only reason mine has been flagged is because I have been having pelvic pain. He initially thought it was just a cysts but looking at the ultrasound he said a 2.2cm cyst shouldn’t cause pain hence the testing
I see. Yes, doctors don’t pay attention unless there’s pain. Although pain doesn’t correlate w the severity of the problem. You’re lucky he’s concerned. I’m almost sure it’s nothing to worry about. You might have pain from endometriosis, not from a small cyst like this, but it’s excellent this consultant is thorough. That’s very lucky indeed. Best of luck and let me know if I’m right on my guess that this is either an employee endometrioma or a hemorrhagic cyst. As opposed to a bot.
Hello, I had my follow up appointment today and the consultant said my blood tests were negative and the mri was showing that the growth had shrunk
He said it might just be one of those things where an ultrasound doesn’t give a clear picture but the mri showed there is no reason to be concerned
I have a follow up scan in a few months. Thank you to all of you who responded and offered words of comfort xx
I was same mine started out at 2cm in 2016 now over 7cm. Was yours a complex cyst if you don't mind me asking. I wasn't told that this should possibly be taken out early stages...now I stand to lose an ovary or two... I don't really have confidence in any of them if I am to be brutally honest or any of the medical profession to be honest after caring for my Dad with Parkinson's and seeing all the failures there and now minding my mum but that's me. I take everything they say with a pinch of salt. It is surprising they said to that lady borderline tumor.. there are no borderlines with these things they generally use the word suspicious... unless they are seeing obvious features. I had pelvic pain with 2cm but then I had endometriosis and they couldn't be sure. The pain can be IBS as well which tends to flare with these things and often gets undiagnosed. They still refuse to say if my own pelvic pain is related to the cyst... everything gets blamed on hormones.
thank you for replying, I did wonder if it was something else but I don’t know how ultrasounds work. I’ve had the pain with the last two cycles, it starts 10 days before and then vanishes once period arrives but this month it’s continued during my period but now gone again.
I think I’m making myself sick with worry! I will let you know. Thank you again
Hi, I can understand that you would be worried about your growth but if it helps at all, 13 years ago I had a much larger tumour which did turn out to be cancer. I was told previously that cancer could not be confirmed until they did a biopsy when removing the tumour. I had the scans which showed the tumour and was told it probably was cancer. It turned out to be stage 3C. I'm still here to tell the tale so do your best to be positive which ever way it goes. I wish you all the best. Zena x
I had the same last year and had ovaries and fallopian tubes removed. However my cysts were benign. Unfortunately my daughter had the same and she was not so fortunate but they missed it twice because they did not do a CA125 blood test and she was diagnosed at Stage 3C. She is now No Evidence of Disease (NED) and doing well. Please ask for a CA125 blood test. My count was high but benign. The results can indicate there may be a problem that may need checking. Please ensure you are having all the tests available. Good luck and I hope there is nothing to worry about.
Thank you for taking the time to reply, they are doing a CA125, CA19-9 and AFP blood test, I’ve already had a full blood count which was ok but im guessing it doesn’t show things like this. I just want these tests out the way, my pelvic pain feels worse today and my chest is starting to hurt with all the worrying.
Dear Scared-88,
I'm sorry to hear that you are feeling so worried at the moment. We know from our members that waiting for further tests to be done and for the results of these can be an anxious time indeed.
Our support team are here for you. If you have any questions or just want to talk things through, do give us a call on 0800 008 7054. You can also send us an email: support@ovacome.org.uk. We're here from Monday to Friday, 10am to 5pm.
Best wishes,
Alice - Ovacome Support
Breathe! Your team is working on it, and that's the best possible situation to be in. Ultrasound is not 100% accurate and the MRI should give a lot more information. The only definitive diagnosis is by biopsy or surgery. I had a complex cyst in 2006, 15 cm at diagnosis, 17 cm three weeks later, removed by surgery, followed by chemo. I've been NED ever since. Just breathe. Whatever it is, you will find out before very long and then there will be a treatment plan. Sending hugs!
try not to panic. If you’ve had the children you plan to have, you may want to consider a TAH, whether there’s a malignancy or not. If it’s malignant, and they recommend chemo, please take it. Hopefully it would kill off any “stragglers”.
The only problem is that TAH does not add anything to curing cancer. That is the other best kept secret in gynecologic oncology. How does removing organs that are necessary to the body’s normal function (beyond reproduction, such as hormonally and sexually) and that don’t have cancer help treat a potential cancer?
to each his own. I didn’t want to take any chances, Once I found out I had malignant ovarian cancer. They found some on my bowel and on my bladder so it had already spread a bit. I did have chemo, which kept it at bay 6 years. But it is a very personal choice.
If it helped cure cancer, I’m all for it. But unfortunately, it doesn’t and it creates even more problems for a cancer patient to tackle in addition to their cancer. It handicaps the body even further. All of this is very unfortunate 🙁, unfortunately.
It doesn’t cure, but it keeps other reproductive organs from developing cancer. OVCA is so scary due to its high recurrence rate.
did he say what makes it look borderline - there are criteria. Poor you.
did they say it was complex cyst?
I am going through the same at the moment myself I found this website helpful differences complex and simple cysts.
volusonclub.net/empowered-w...
Thank you for the link, do you know what type your cyst is?
don't go down rabbit holes just get scan done and CA125 blood test and a good consultant who listens and takes questions. Worrying won't help matters I have learned. They generally use the Risk of Malignancy Scale they told me which is just a risk predictor... so the cyst has certain features also they take into consideration age, premenopause, post menopause, your CA125 blood results. The points go up based on whether it is solid, multioccular etc...(If a cyst has more than one complete septum ie. wall) etc.
mdcalc.com/calc/10103/risk-...
try not to be scared just take the bull by the horns and do the necessary and then you will know where you stand or be in a better place.
Mine is a complex cyst.I have had 2 consultants say that they can't tell if malignant or benign but the most recent gynae said she doesn't think it is!! Doctors differ... Try not to worry but you have a right to the information/findings when you have your scan done. I had a recent TV ultrasound, it seems that is a better way for them to look at it but prior to that I had MRI with contrast dye.
on and make sure to get MRI pelvis contrast dye because they did mine without contrast dye and I only had to go back and do it again
I’ve already had the ultrasound, that’s where mine was picked up. I’ve just had the MRI with the contrast dye and the blood test. There’s now the waiting game of the blood test results. My C-section has been throbbing since my period started, I just want this all over with.
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