Inflamation of the mucous lining of the mouth - side effect Caelyx

[Pumpkininja]

Dears,

Hope you are well.

Since this weekend I have Inflamation of the mucous lining of the mouth .it start a few aftas and now is every where specially in my lips.is very painful.

I cannot drink without a straw or eat is very difficult ( only yougurte).

This is a side effect of Caelyx chemotherapy.

I already sent a mail to my doctors and tomorrow I will call.

Meanwhile is there anything you could advise someone that also had it please?

I'm using a mouth wash ( period aid) and using an anti aftas( was using elugel but was doing nothing so change it today for elgydium repair however is not helping

Any advise is very welcome

Thank you so much 🙏🏼🙏🏼🙏🏼

[SuffolkJen]

You poor thing that sounds awful

I’ve not had an inflammation of the mouth from chemo but did have one after surgery as a reaction from painkillers. A nurse advised pineapple juice as it’s apparently a natural antiseptic and it did help over a couple of days.

I hope you’re feeling better soon xx Jen

[Pumpkininja in reply to SuffolkJen]

Thank you do much SuffolkJen .unfortunate I'm not allowed to drink pineapple juice due an obstruction of the intestines stage III( also caused by the caelyx(. But appreciate anyway your recommendations.Thank you Dear xxx

All the best

[Lyndy]

Poor you Pumpkininja! Caelyx also attacked my skin and particularly the membranes of my throat and nose. I used a mild salt water solution to gargle with and as a nasal douche. It seemed to soothe and promote healing, although I am not sure I had it as badly.

You should definitely get on to your team, you need to be able to eat and drink xx

[Pumpkininja in reply to Lyndy]

Thank you do much dear Lyndy .hope you get also your skin,nasal and throat better.I notice indeed my nose really dry coming dry stuff...

Tomorrow first thing call my doctors.

Thank you so much dear.

In the end just hope all this has a good result and put cancer away for all of us.

All the best xxx

[Cheadle]

Difflam oral rinse slightly numbs the mouth and is anti inflammatory. you can use this every 90 minutes. Its what they prescribe on my chemo ward. Plus effervescent paracetamol, you can gargle then swallow, very effective.

[Pumpkininja in reply to Cheadle]

Thank you so much Cheadle .I'm going to the pharmacy as soon as I speak with my doctor.All the best xxx

[NewtonEmma1900]

I was too was given Difflam and benzydamine for mouth ulcers from caelyx. I am now on Niraparib and still occasionally get mouth ulcers.

[Pumpkininja in reply to NewtonEmma1900]

Dear NewtonEmma1900 thank you.my doctor pass a prescription for something prepared in the pharmacy with lidocaine etc.is already a bite better. Thank God!Best wishes xxx