Recurrent ovarian cancer : Can someone pls share... - My Ovacome

My Ovacome

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Recurrent ovarian cancer

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21 Replies

Can someone pls share positive stories about recurrence

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21 Replies
Educating-Rita profile image
Educating-Rita

I’ve have several recurrences, I’ve been treated quite successfully each time however it has come back. There are always trials that may be suitable. I’m now in my 9th year since diagnosis-do don’t think I would still be here but am grateful for each day. It’s a hard slog, get support where you can and try to stay positive

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Survivor-thank in reply to Educating-Rita

Thank you for the encouragement

babsclunn profile image
babsclunn

I was diagnosed Dec 13 had a recurrence 2019 had surgery and chemo again have been ned since I am stage 4 still going strong after 10 years x

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Survivor-thank in reply to babsclunn

Power to you lady. Thank you

Katmal-UK profile image
Katmal-UK

I was diagnosed stage 3b in Oct 2007, still here despite 2 recurrences, 3 trial drugs (still on one) and currently 10 years 7 months NED. Good luck x

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Survivor-thank in reply to Katmal-UK

You are a true inspiration. Anything you did or dint do ?

Katmal-UK profile image
Katmal-UK in reply to Survivor-thank

Nope. To be honest I was told I had a couple of years on diagnosis so I thought I’m going to live my life my way for however long I have. Prob the one thing I did that paid off is to take part in clinical trials. I’ve been monitored closely (done 3).

oystercatcher profile image
oystercatcher

I was diagnosed in August 2013 and had a recurrence in 2017 and again in 2022. I had three surgeries, chemotherapy for six months after the first and a course of radiotherapy after the third. Since my last recurrence and surgery in May 2022 all my scans are clear. Immense gratitude that I continue to live in relatively good health. My life has certainly changed with regard to work and I only work part time hours now. I also can’t believe that I am still going strong but I am!!! The very best of luck!!! X

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Survivor-thank in reply to oystercatcher

Loving all the positive responses. Feel so so very positive .

Pixiepurple profile image
Pixiepurple

Thank you for asking this question. Love seeing these positive stories 💕

KimLJ profile image
KimLJ

Hi there. I was originally diagnosed 3c OC in 2018 debulk op and chemo. I was then fine but had my first recurrence May 2023. I had 6 cycles of chemo - CA125 was 514 and at the end 19. As I reacted well to chemo I have just started Parp Inhibitors with no side effects. It’s a scary time when it comes back but go through the motions and it gets better. Good luck and take care xx

tutti profile image
tutti

I was diagnosed stage 4 in 2000,had four recurrences.five surgeries,chemotherapy and radiotherapy then suddenly no recurrence since 2011.I am left with two stomas which create problems and joint problems from chemo but I am still here at 72 much to the surprise of my consultant.Good luck.

Viv

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Survivor-thank in reply to tutti

Stay blessed 😇

Saintgermain profile image
Saintgermain

I was diagnosed stage 3B endometroid 2021. August 2023 had recurrence CA125 spiked had 6 treatments of Carbo/Taxol/Keytruda currently NED I'm getting Keyruda (immunotherapy) infusion every 6 weeks along with an estrogen blocker.

Tealgirl7 profile image
Tealgirl7

I was diagnosed stage 4 in 2006. My anniversary comes up this month and 18 years. Never been cancer free and a couple of chemos a surgery and now on a trial there's lots of good stuff out there

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Survivor-thank in reply to Tealgirl7

Thank you for taking time out to respond

Loving these stories

bananayo profile image
bananayo

Wow, it’s so inspiring to read all these replies from all you amazing ladies 💕💕

AuntyOrange profile image
AuntyOrange

I was diagnosed stage 4 in 2015, reoccurred in 2018, 2021 & 2024. Had 2 ops & lots of chemo. Currently on chemo + immuno. Grateful for 50% great treatment & 50% positive attitude. Best wishes to all of you wonderful warrior women out there 💜

lesleysage profile image
lesleysage

Hi, the surgical part of my story is written in an Ovacome leaflet:-

ovacome.org.uk/secondary-su...

Really good luck and warmest wishes. xx

Goodgirl98 profile image
Goodgirl98

So grateful to you for asking this q and seeing the encouraging responses. Love you ladies and long live!

Bobbyo1 profile image
Bobbyo1

I been diagnosed since 2014 not been cancer free but living my life and skiing (spending kids inheritance) onwards and upwards xx

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