Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for June 2023

Terrible Symptoms from Caelyx

Hi ladies! Just looking for some adivce for my Mum, who's half way through her course of six Caelyx treatments. For context, she was diagnosed HGS stage 3c/4a...

Hi ladies! Just looking for some adivce for my Mum, who's half way through her ...

georgialocksss

•11 months ago

7 Replies

Sleep After Cancer Study

Good morning everyone We have been approached by the Irish Society of Gynaecological Oncology Public and Patient Involvement Group. They have asked us to...

Good morning everyone We have been approached by the Irish Society of Gynaecolo...

OvacomeSupport

Partner•11 months ago

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pathology results tomorrow - nervous!!

So I had my total hysterectomy 4 weeks ago, and I’m pleased to say it was by keyhole. They removed the uterus, remaining ovary and tube, cervix and omentum...

So I had my total hysterectomy 4 weeks ago, and I’m pleased to say it was by key...

Atai

•11 months ago

10 Replies

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emotional

I have never been like this !!! I’m strong , looked after my husband until he passed and now a blubbering idiot with chemo and so weak xx 3 rd chemo next week...

I have never been like this !!! I’m strong , looked after my husband until he pa...

Cazy1010

•11 months ago

14 Replies

emotions during chemo

hi all, I am on the paclitaxel Carboplatin regimen for stage 2A clear cell ovarian, after optimal surgery. I am physically tolerating the chemo well after 2...

hi all, I am on the paclitaxel Carboplatin regimen for stage 2A clear cell ovari...

Elifebru

•11 months ago

22 Replies

3C Chemo Combo

Hi! I’m posting on behalf of my mum who’s 67 and was recently diagnosed with Stage 3C HGS Ovarian Cancer that’s spread to the peritoneum and omentum. She’s...

Hi! I’m posting on behalf of my mum who’s 67 and was recently diagnosed with St...

Tron103

•11 months ago

7 Replies

tummy bug

I’m stage 3c diagnosed 2019 recurrence 2022, at Easter I was in hospital with blocked bowel, I was lucky to have it cleared, my question is I spent two days...

I’m stage 3c diagnosed 2019 recurrence 2022, at Easter I was in hospital with bl...

SKpaints1

•11 months ago

4 Replies

oestrogen receptor positive - how do I know if this is me?

hello I hope the warm weather has brought some joy into your lives the last few days ladies I’ve been reading a little about oestrogen and adjusting diets...

hello I hope the warm weather has brought some joy into your lives the last fe...

Catfeeder

•11 months ago

10 Replies

Answer needed :(

My mom have recurrance 3rd but all time she get only carbo and palitaxel and it works, also this time she start it but on 2nd influsion she has very bad...

My mom have recurrance 3rd but all time she get only carbo and palitaxel and it ...

Inguc_is

•11 months ago

4 Replies

Talking About Mistletoe therapy (TAM) research study

Dear all, We have been contacted by a third-year undergraduate medical student at University of Bristol, who is conducting a research project called Talking...

Dear all, We have been contacted by a third-year undergraduate medical student ...

OvacomeSupport

Partner•11 months ago

9 Replies

CDK 4/6 inhibitor

has someone tried the CDK 4/6 inhibitors for low grade ovarian cancer?

Alex29

•11 months ago

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bowel obstruction

It looks like there’s no more options for me as I’ve been in hospital for a week with a bowel obstruction. HGSOC 3C. Had 2 lines chemo close together. Just had...

It looks like there’s no more options for me as I’ve been in hospital for a week...

Narna1

•11 months ago

9 Replies

second opinion

my 81 year old mum was diagnosed dec 2022 with ovarian cancer. Hgs stage 4 after she was admitted with a malignant pleural effusion. Alcitrs on abdomen she...

my 81 year old mum was diagnosed dec 2022 with ovarian cancer. Hgs stage 4 after...

Lolathestaffie

•11 months ago

19 Replies

lymparza/olaparix/olanib

hello! My doctor told me to start Olaparib, in Panama si very expensive have anyone usted a geneneric instead of lymparza? I found two: olaparix and olanib....

hello! My doctor told me to start Olaparib, in Panama si very expensive have any...

Marylight

•11 months ago

4 Replies

Ovacome Information Booklets 📖 📚 📗

Good morning All This post is to let you all know that Ovacome has over 30 clinical information booklets covering a wide range of topics including symptoms...

Good morning All This post is to let you all know that Ovacome has over 30 clin...

TheOvacomeTeam

Partner•11 months ago

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Referral from Wales to England - any experience?

Hi. I'm HGSOC stage IVb diagnosed in Feb. Just had CT scan following 3rd cycle of carboplatin/paclitaxol and 2nd of Avastin. CA125 has reduced from 374...

Hi. I'm HGSOC stage IVb diagnosed in Feb. Just had CT scan following 3rd cycle o...

Jpembs

•11 months ago

12 Replies

Will I be offered surgery?

Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to...

Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago m...

Guilane

•11 months ago

11 Replies

Dental care on Olaparib?

I have toothache and have a dental appointment this Wednesday. I am on Olaparib. Is it ok to have my tooth filled or taken out? Anyone know? Thanks, Emma

I have toothache and have a dental appointment this Wednesday. I am on Olaparib...

Trickysite

•11 months ago

12 Replies

CA 125 high 3 weeks after optimal Surgery

hi ladies, wishing everyone a bright new week. I was diagnosed with stage 2A clear cell carcinoma. Had cytoreductive surgery with no visible disease left...

hi ladies, wishing everyone a bright new week. I was diagnosed with stage 2A cle...

Elifebru

•11 months ago

10 Replies

Feeling sorry for myself

In bed most of day on a beautiful day like today !! Had my chemo on Monday and it has floored me again but at least it working sorry for the moan x

In bed most of day on a beautiful day like today !! Had my chemo on Monday and i...

Cazy1010

•11 months ago

14 Replies

not working? Need help!!

Dear all! What did do ur doctor if after 3 chemos there is some changes for mts they became smaller but some bigger and some the same size? Do they immediately...

Dear all! What did do ur doctor if after 3 chemos there is some changes for mts ...

Inguc_is

•11 months ago

2 Replies

Please tell me your success stories

So in short, I was diagnosed stage 3c back in Oct 2016 and had surgery followed by chemo. Had 1st recurrence summer 2021 so had surgery followed by chemo but...

So in short, I was diagnosed stage 3c back in Oct 2016 and had surgery followed ...

Kouyate

•11 months ago

19 Replies

frame trial

hope this is ok to share for low grade serous ovarian cancer. Looks promising....

hope this is ok to share for low grade serous ovarian cancer. Looks promising......

Starbarn

•11 months ago

4 Replies

Where do I go from here?

Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of...

Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lym...

Guilane

•11 months ago

6 Replies

I need your help pls…

Hi ladies, I hope you’re all as well as can be. I have been dipping in and out of this forum for 4 years. Sometimes I find it triggering so find myself...

Hi ladies, I hope you’re all as well as can be. I have been dipping in and out...

N-A-58

•11 months ago

26 Replies

and breathe…

Thanks to all of you that replied to my insurance rant! Spoke to MIA in person today and the result is a policy that covers me for medical emergency for...

Thanks to all of you that replied to my insurance rant! Spoke to MIA in person t...

Lyndy

•11 months ago

6 Replies

trial stopped working

Hi ladies. So six months in on weekly taxol and catequintanib at the marsden it was going so well I had partial response which was good. Then a month later I...

Hi ladies. So six months in on weekly taxol and catequintanib at the marsden it ...

Duvin1

•11 months ago

9 Replies

carbo caelyx

any advice or anyone had a good response for second line treatment?

Worrieddaughter95

•11 months ago

9 Replies

Insurance Rant

Sorry folks, I just need to sound off about the way insurance companies treat us in their medical screening. Generally I feel quite good, yes I have had...

Sorry folks, I just need to sound off about the way insurance companies treat us...

Lyndy

•11 months ago

21 Replies

Targeted therapies?

Hi, I am really struggling with the Avastin & Lynparza, constantly tired & breathless, has anyone else experienced this?

Hi, I am really struggling with the Avastin & Lynparza, constantly tired & breat...

Bleubleu

•11 months ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2023

Terrible Symptoms from Caelyx

Sleep After Cancer Study

pathology results tomorrow - nervous!!

emotional

emotions during chemo

3C Chemo Combo

tummy bug

oestrogen receptor positive - how do I know if this is me?

Answer needed :(

Talking About Mistletoe therapy (TAM) research study

CDK 4/6 inhibitor

bowel obstruction

second opinion

lymparza/olaparix/olanib

Ovacome Information Booklets 📖 📚 📗

Referral from Wales to England - any experience?

Will I be offered surgery?

Dental care on Olaparib?

CA 125 high 3 weeks after optimal Surgery

Feeling sorry for myself

not working? Need help!!

Please tell me your success stories

frame trial

Where do I go from here?

I need your help pls…

and breathe…

trial stopped working

carbo caelyx

Insurance Rant

Targeted therapies?

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